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Pancreatic Neuroendocrine Tumor (PNET)

About this Community

About this community

Inspire connects patients, families, friends and caregivers for support and inspiration.

Community topics
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Welcome / Newly diagnosed
Living with PNET
Symptoms/Side Effects
Chemotherapy and targeted therapies
Hormone therapy
Radiation therapy
Radiolabeled hormone therapy
Radiofrequency ablation (RFA) and other liver treatments
Surgery
Watchful waiting
Caregiving for loved ones with a PNET
News and research
Advocacy and awareness
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New
Posted March 23, 2024 • 1:11 AM

As always, we have to keep in mind that we are all completely different in our general health, as well as our reactions to treatments. A Case of Acute Kidney Injury, Proteinuria, and Throm ... Show more

elgreato0 replies0 Reactions

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New reply March 19, 2024 • 6:52 PM

I am freaking out about having a CT scan 3 months ago that didn’t show anything. Then I had severe pain in my rib area and neck area. I then had the Galleum Dotatate scan and it showed Mets in 3 ribs ... Show more

Member_Aardvark78331 replies0 Reactions
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New reply March 20, 2024 • 10:50 PM

There is a patient education conference scheduled for May 4 hosted by the Neuroendocrine Tumor Research Foundation. Has anyone on this board attended one of these conferences? Are they useful or wo ... Show more

hfwatson24 replies0 Reactions
New reply March 01, 2024 • 6:46 PM

Husband, 76, is 7 years in. waiting for trial of the latest PRRT -actinium - any day (been saying that since November). In the meantime on everlimous which has him exhausted w blood sugar spikes. ... Show more

Chips33 replies0 Reactions
New reply March 28, 2024 • 1:35 AM

Hello! My name is Steph Shuff, and I am a writer working here at Inspire. Every month, I help to write, edit, and publish our Monthly Dose newsletter, a monthly email that highlights articles from ac ... Show more

StephShuff124 replies46 Reactions
New reply March 16, 2024 • 12:59 PM

Mets to liver, spleen and kidney coming from pnet 5.9cm. Surgery scheduled 3/13 at Roswell, Bufalo. Part or all of pancreas to be removed, along w/spleen, gallbladder and kidney. 4 spots on liver to ... Show more

gbrunn5 replies0 Reactions
New reply February 17, 2024 • 5:50 PM

It's known that tumor microenvironment (TME) is very immunosuppressive. That's why immunotherapy does not work for many cancers and many patients. There are different trials that address this problem ... Show more

fighterm2 replies27 Reactions
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New reply March 18, 2024 • 7:03 PM

Radiosensitizing Favors Response to Peptide Receptor Radionuclide Therapy https://journals.lww.com/nuclearmed/fulltext/2024/03000/radiosensitizing_favors_response_to_peptide.1.aspx

elgreato2 replies0 Reactions
New reply February 11, 2024 • 4:02 AM

Hi Everyone, I could post this in any of several different forums, but my pancreatic journey (including the Whipple) has generated the most documentation of my three different cancers, so I chose th ... Show more

bhw9612 replies0 Reactions
New reply February 08, 2024 • 8:54 PM

Hello - I was diagnosed with PNet pancreatic cancer at stage 3 in May of 2023. I had the primary tumor along with 10 lymph nodes removed in July (8 of the 10 were cancerous). Six months later and ... Show more

aineeithne1 replies0 Reactions