Pancreatic Neuroendocrine Tumor (PNET)
Pancreatic neuroendocrine tumor (PNET) support group and discussion community
About this community
Inspire connects patients, families, friends and caregivers for support and inspiration.
Contact
Community Leaders
As always, we have to keep in mind that we are all completely different in our general health, as well as our reactions to treatments. A Case of Acute Kidney Injury, Proteinuria, and Throm ... Show more
I am freaking out about having a CT scan 3 months ago that didn’t show anything. Then I had severe pain in my rib area and neck area. I then had the Galleum Dotatate scan and it showed Mets in 3 ribs ... Show more
There is a patient education conference scheduled for May 4 hosted by the Neuroendocrine Tumor Research Foundation. Has anyone on this board attended one of these conferences? Are they useful or wo ... Show more
Husband, 76, is 7 years in. waiting for trial of the latest PRRT -actinium - any day (been saying that since November). In the meantime on everlimous which has him exhausted w blood sugar spikes. ... Show more
Hello! My name is Steph Shuff, and I am a writer working here at Inspire. Every month, I help to write, edit, and publish our Monthly Dose newsletter, a monthly email that highlights articles from ac ... Show more
Mets to liver, spleen and kidney coming from pnet 5.9cm. Surgery scheduled 3/13 at Roswell, Bufalo. Part or all of pancreas to be removed, along w/spleen, gallbladder and kidney. 4 spots on liver to ... Show more
It's known that tumor microenvironment (TME) is very immunosuppressive. That's why immunotherapy does not work for many cancers and many patients. There are different trials that address this problem ... Show more
Radiosensitizing Favors Response to Peptide Receptor Radionuclide Therapy https://journals.lww.com/nuclearmed/fulltext/2024/03000/radiosensitizing_favors_response_to_peptide.1.aspx
Hi Everyone, I could post this in any of several different forums, but my pancreatic journey (including the Whipple) has generated the most documentation of my three different cancers, so I chose th ... Show more
Hello - I was diagnosed with PNet pancreatic cancer at stage 3 in May of 2023. I had the primary tumor along with 10 lymph nodes removed in July (8 of the 10 were cancerous). Six months later and ... Show more