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Rest in peace Brittany Maynard

teamcc
  • By teamcc · New reply 1:41 pm
  • Discussion in Advocacy and awareness · 1 reply
  • Today being All Saint Day.....and your last....rest in peace babygirl....a new life is dawning ...

PNET High Grade

-gotur6
  • By -gotur6 · New reply 11:00 am
  • Journal · 3 replies
  • My question is simple. Where is the best facility for a diagnosis of PNET High Grade? We live in Louisiana and know that NOLA is one of the best places to go, but does their expertise include PNET High ...

Abnormally Low Serotonin Levels

jillfa
  • By jillfa · Posted yesterday at 8:43 pm
  • Discussion in Living with PNET · 0 replies
  • Does anyone one have abnormally low serotonin levels? I'm on 10mg of Afinitor and 30 Sandostatin. Also 20mg of Lexipro. If so, what do you do about it if anything? Thanks ...

Results for Xeloda/Temodar CAP/TEM Combo

bmichalski
  • By bmichalski · New reply yesterday at 7:58 pm
  • Discussion in Chemotherapy and targeted therapies · 75 replies · Photos
  • For those of you who have tried the CAP/TEM combo and found it to be helpful with reducing the size of the tumors, how long did it take for the tumors to begin to shrink? After 3 cycles of the combo ...

gastro, oncologist and nutritionist

marypricej
  • By marypricej · New reply yesterday at 2:55 pm
  • Journal · 13 replies
  • I have seen all of these doctors and I still have the same issue (diarrhea). I have increased the Creon and I am taking the Imodium. I am seeing solid sometimes. I go back to the Gastro doctor on 11/11/2014 ...

Post-Op Update

Mizzbrenners
  • By Mizzbrenners · New reply yesterday at 2:22 pm
  • Discussion in Surgery · 4 replies
  • Well I have not posted for a while, but I am finally able to do a little bit more. I want to thank everyone for all of their prayers and well-wishes I received when I announced my surgery. I had my surgery ...

External beam radiotherapy my experience/Immunotherapy

nowt
  • By nowt · Posted yesterday at 8:18 am
  • Discussion in Living with PNET · 0 replies
  • Hello I have met Nick Plowman who was involved in introducing Cyberknife to the UK a few years ago. I have also discussed treatment of bone metastases with doctors at other Cyberknife Centres worldwide ...

Conference notes from ACOR list

dmjoyner89
  • By dmjoyner89 · New reply yesterday at 4:28 am
  • Discussion in News and research · 8 replies
  • This is some notes shared with the ACOR list from someone who attended a conference a U of Penn featuring Dr. Metz and Wolin that I found very informative so I thought I'd pass it along. This is cut and ...

OK let's freak out about CAR T

teamcc
  • By teamcc · New reply yesterday at 12:13 am
  • Discussion in News and research · 6 replies
  • Novartis has throw down big money on this designed or modified leukemia treatment about 25% of the trial patents appear to be cured of the deadly form of the disease. Big thanks to the Israelies for discovering ...

Is Chemo a Fraud?

DrYes
  • By DrYes · New reply October 29, 2014
  • Discussion in Living with PNET · 45 replies · Photos
  • Chemo seems, at best, to add a few years of life to anyone with the PNET form of cancer. Since too many chemo poisons, particularly those administered intravenously, spread their poisonous effects throughout ...

Liver Load?

DrYes
  • By DrYes · New reply October 29, 2014
  • Discussion in Living with PNET · 4 replies
  • Often discussions about PNET-mets in the liver arrive at deciding on "tumour load". Unfortunately, this term is too ambiguous; it often is taken to mean only the size of the largest tumour. What is more ...

CAPTEM and MGMT

JLeeL
  • By JLeeL · New reply October 29, 2014
  • Discussion in Chemotherapy and targeted therapies · 7 replies
  • My husband's first oncologist was proactive in ordering the expensive molecular profiling (Caris Labs) when he was first diagnosed. Since then, very few oncologists will even bother looking at the results ...

Caturday VII

CentaurInaChinashop
  • By CentaurInaChinashop · New reply October 29, 2014
  • Journal · 5 replies
  • I've saved up a few, so it's a long one, here goes... Who says you can't train a cat? photo catsatgif01_zpsjkvfyvnc.gif photo catsat13_zpscdf5e7ab.jpg photo catsat26_zpsd4507c2a.jpg photo catsat02_zps06da8dcb.png ...

suggestions to stop " diarrhea "

1faith
  • By 1faith · Posted October 29, 2014
  • Journal · 0 replies
  • maryprice: this works for me oatmeal with nutmeg ,also cheese helps too 1 faith ...

Help me find a good Oncologist for my husband

Sheeljan
  • By Sheeljan · New reply October 29, 2014
  • Discussion in Chemotherapy and targeted therapies · 40 replies
  • Hello Everyone, My husband and I live in Northern Virginia, and he was diagnosed with PNET on 2/11/2013 after an untreated Pulmonary Embolism and DVT sent him to the hospital. A full pelvic CT showed ...

chemo embolization

tjcornelius
  • By tjcornelius · New reply October 28, 2014
  • Discussion in Chemotherapy and targeted therapies · 15 replies
  • So it seems that after liver mapping for a possible radio embolization they find that due to collaterals etc. I am not a good candidate for the nuclear option. However, I can opt for chemo embolization ...

Nets in anus rectum

Irishjackie
  • By Irishjackie · New reply October 28, 2014
  • Discussion in Watchful waiting · 11 replies
  • I am supposed to start a new chemo chemtem shortly, but with my last 2 chemos I found constipation a huge problem, once nearly killed me got so backed up, I have a big tumour down below and I know another ...

Feeling overwhealmed

lkg5966
  • By lkg5966 · New reply October 26, 2014
  • Discussion in Watchful waiting · 4 replies
  • I'm been fighting PNET since March of 2008 (or even longer). I am NOT seeing a NET specialist, although I love my doctor and am happy with the treatment I've gotten over the last 6 years including 3 major ...

Black Cumin Seed Oil - an alterntive approach

Bonnie63
  • By Bonnie63 · New reply October 25, 2014
  • Discussion in Living with PNET · 4 replies
  • Hi all. Just wanted to pass on a little more information on an alternative approach to fighting cancer. Attached is an article you may be interested in regarding the affects of black cumin seed oil on ...

Immune Boosting Vaccine from AARP mag

rayala
  • By rayala · New reply October 25, 2014
  • Discussion in News and research · 1 reply
  • http://www.aarp.org/health/conditions-tr eatments/info-2014/medical-breakthroughs .html The second one is the Immune boosting Vaccine part. This does not change the game for us at this time but it does ...

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