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Neuroendocrine pancreatic cancer

Carolsum
  • By Carolsum · New reply 11:18 am
  • Discussion in Living with PNET · 20 replies
  • Hi, I wonder if anyone can help, my husband has PNETS and is due to start sutent in October. After having bad side effects with afinitor . We live in the uk, but our son lives in miami, ideally we would ...

Six Monthly Follow Up

Indus
  • By Indus · New reply 10:45 am
  • Discussion in Watchful waiting · 6 replies
  • I just got my six monthly review reports of Harmon Tumor Markers and MRI .Both are normal ,I was greatly relieved to be NED.It is two years since my whipple(2.9 CMs,Grade 1,KF 67<2%,margins clear,LN 8/11 ...

Tumor lysis on PNET´s with liver metastasis?

rui_rc
  • By rui_rc · Posted 6:30 am
  • Discussion in Chemotherapy and targeted therapies · 0 replies
  • Hi. I would like to know if anyone as developed "Tumor Lysis", due to any kind of therapy/treatment to PNET liver metastasis? Thanks. Rui ...

New to PNET

marypricej
  • By marypricej · New reply yesterday at 10:04 pm
  • Journal · 11 replies · Photos
  • I signed up months ago, but I'm just now sitting down to do my first post into my journal. My journey started a year ago (September 20, 2013). I went to the emergency room with symptoms of an earlier ...

Meds to treat Bone Mets from pNet

stacheusa
  • By stacheusa · New reply yesterday at 8:43 pm
  • Discussion in Living with PNET · 2 replies
  • After 5 months of questions, told Medicare won't pay for Xgeva. My husband is getting this monthly to help treat his fractures from multiple bone mets. The letter says, no coverage because it is for his ...

Update on treatment...

Mizzbrenners
  • By Mizzbrenners · New reply yesterday at 8:38 pm
  • Discussion in Welcome / Newly diagnosed · 6 replies
  • It occurred to me that since my original post I had not been back to update in a while, and have instead been reading on here, and a little bit everywhere. In my original post I explained what led up ...

Synthetic or the real thing?

dgrotta
  • By dgrotta · New reply yesterday at 8:25 pm
  • Discussion in Living with PNET · 3 replies
  • Like many others with PNET cancer who must take a witch's brew of medication for stability, I am constantly beset with almost daily bouts of nausea. (Alas, exacerbated by diabetes and gastroparesis ...

Captem Dosage

lacarrol
  • By lacarrol · New reply yesterday at 7:57 pm
  • Discussion in Chemotherapy and targeted therapies · 12 replies
  • Hi All, I'm new here. My husband was diagnosed with P-NET with metastasis to the liver in June. He's just finished his first round of Captem and will start his second round this week. He is getting his ...

What´s the best therapy order?

rui_rc
  • By rui_rc · New reply yesterday at 7:51 pm
  • Discussion in Chemotherapy and targeted therapies · 2 replies
  • Hi. What´s would be the best order of therapy´s. Which one should be tried first? (Sutent, Affinitor, Captem, etc...) Thanks ...

Alpha treatment stopped

teamcc
  • By teamcc · Posted yesterday at 6:43 pm
  • Discussion in Radiolabeled hormone therapy · 0 replies
  • My alpha program was stopped and I will not recieve the last dose. Bad news, nope! Doc wants to save the treatments for later, since I'm not beating this. Pretty hard to get treatment of any kind while ...

trying the gynura plant to lower blood glucose

stratford
  • By stratford · New reply yesterday at 6:23 pm
  • Discussion in Living with PNET · 5 replies
  • I am presently taking metformin to help regulate my elevated blood glucose levels. I have had approx 90% of my pancreas removed and have managed to stave off diabetes with exercise, diet and good luck ...

stage 4 pancreatic cancer

poshlala
  • By poshlala · Posted yesterday at 3:01 pm
  • Discussion in Chemotherapy and targeted therapies · 0 replies
  • Hello all..... This is the 33rd day of my mum's chemo on tarceva. She still has the pain and its unfriendly, majorly in her stomach and at her back(Lungs). Is this normal with everyone with pancreatic ...

Do Sutent increases risk of tumor spreading and turn tumors more agressive?

rui_rc
  • By rui_rc · Posted yesterday at 12:26 pm
  • Discussion in Chemotherapy and targeted therapies · 0 replies
  • Hi. I readed some reports that said "Sutent" helps shrinking tumors. But it also increases the risk of tumor spread all over you body and when tumors begin to increase again, they come back more agressive ...

any nanoknife/IRE news for pancreatic pnets

stratford
  • By stratford · New reply yesterday at 1:25 am
  • Discussion in Surgery · 5 replies
  • I'm still investigating nanoknife surgery. Latest gallium 68 PET/CT shows posterior half of pancreatic head lighting up but no other progression. It could be residual disease (margins were not clear after ...

cannabis is a natural cure for cancer

rocky9962
  • By rocky9962 · New reply September 14, 2014
  • Discussion in News and research · 19 replies
  • Ever since the mid 70s, medical scientists have been well aware of the beneficial effects of cannabinoid compounds over cancerous cells. Thanks to modern science, over a dozen studies conducted during ...

Results for Xeloda/Temodar CAP/TEM Combo

bmichalski
  • By bmichalski · New reply September 14, 2014
  • Discussion in Chemotherapy and targeted therapies · 8 replies
  • For those of you who have tried the CAP/TEM combo and found it to be helpful with reducing the size of the tumors, how long did it take for the tumors to begin to shrink? After 3 cycles of the combo ...

Liver directed therapy with Y90

tjcornelius
  • By tjcornelius · New reply September 14, 2014
  • Discussion in Chemotherapy and targeted therapies · 10 replies · Photos
  • Has anyone had experience with embolisms using Y90? Was it effective in shrinking tumors and if so how long did it stabilize disease? Also, how uncomfortable was the experience? What type of anesthesia ...

Difference between Lanreotide and Octreotide?

Dstaud
  • By Dstaud · New reply September 13, 2014
  • Discussion in Hormone therapy · 7 replies
  • Apparently Lanreotide was approved this week for treatment of neuroendocrine tumors in the US. Apparently both Lanreotide and Octreotide both are synthetic somatostatin hormones. Both have short and long-lasting ...

Cap/Tem side effects

pnet35
  • By pnet35 · New reply September 13, 2014
  • Discussion in Chemotherapy and targeted therapies · 11 replies
  • I've received two rounds of Lu-177 PRRT in Dec. 2013 and Feb. 2014, two TACE's in May and June 2014 and a laparoscopic enucleation in July 2014 to remove the 2x2cm primary which was mostly on top of the ...

Enjoy Summer while it lasts!

CentaurInaChinashop
  • By CentaurInaChinashop · New reply September 12, 2014
  • Journal · 8 replies
  • photo snowday_zps5589d9a4.jpg Fortunately not here in Victoria, but ya know ...

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