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National Lymphedema Network

About this Community

About this community

The National Lymphedema Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the National Lymphedema Network, an Inspire trusted partner.

Contact

National Lymphedema Network
225 Bush St. Ste. 357
San Francisco, CA 94104
Phone: (800) 541-3259
Fax: (415) 908-3813
nln@lymphnet.org
www.lymphnet.org

Community Leaders

Community topics
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Newly diagnosed
Living with lymphedema
Treatment and garments
Advocacy and awareness
Primary lymphedema
Secondary lymphedema
Breast cancer related lymphedema
Parents of kids with lymphedema
Young thrivers
Professionals
Upcoming events
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New
New reply March 27, 2024 • 5:23 PM

This is my process of me wrapping my legs for lymphedema maintenance daily. Sometimes I don’t get to do it if I’m in a hurry which results in swollen leg bottoms.

KimmiesButterfly1 replies0 Reactions

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New reply March 29, 2024 • 7:21 AM

Hello! My name is Steph Shuff, and I am a writer working here at Inspire. Every month, I help to write, edit, and publish our Monthly Dose newsletter, a monthly email that highlights articles from ac ... Show more

StephShuff133 replies47 Reactions
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New reply February 13, 2024 • 5:26 AM

I have lymphedema and was told to wear a compression garment. I chose the Solaris TributeWrap. The instructions that came with it are OK, but I have a couple of questions. First, is this strictly a n ... Show more

Olivia23041 replies0 Reactions
New reply March 07, 2024 • 3:58 AM

Has anyone found a company that knows how to get compression garments covered under the Lymphedema Treatment Act effective 1/1/2024?

khdurham4 replies0 Reactions
New reply December 04, 2023 • 9:40 PM

Hi all, my team has used physiotouch which is now lymphatouch and is currently using the 6d Action device. Our biomed team has asked that we replace these devices due to a couple reasons. However, we ... Show more

mar974852 replies0 Reactions
New reply October 19, 2023 • 2:33 AM

Does anyone know if medical insurnace pays for any part of these items. The therapist just placed and order and if no insurnace covers these items will cost well over 1200.

mpc662712 replies0 Reactions
New reply March 16, 2024 • 7:36 AM

Dear Members, Many of us have been involved in clinical trials, or have considered enrolling in one, or have supported someone who has. At Inspire, we believe that all of us, as patients and caregiv ... Show more

Brian432 replies30 Reactions
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Posted September 03, 2023 • 4:18 AM

What do you after a serious case of Cellulitis?

Kevinb120 replies1 Reactions
Posted August 13, 2023 • 3:27 AM

Mid January of 2023 I returned home from the medical rehab I was at. I was there learning to walk again. This is a brief video of some the workouts I learned from there and the V.N.A.'s ( Visiting Nu ... Show more

Kevinb120 replies2 Reactions
Posted August 12, 2023 • 9:36 PM

This is Thursday before Christmas 2022. Before returning to hospital for a serious case of Cellulitis and blood clots in my lungs. Which I did not know I had at the time until reaching the hospital. ... Show more

Kevinb120 replies2 Reactions