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National Lymphedema Network

Lymphedema support group and discussion community

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National Lymphedema Network

Longest loniless journey

LymphNot78's journal

LymphNot78

longest-loniless-journey

200233

I have never shared or been apart of a group. As I type this from my phone i am in the hospital bed because I got cellulitis in my leg. Worst thing anyone with our condition can get. Espeically when the infection swell the limb and since you cant wear the garment the leg gets bigger, but i got my machine from home. Unfortunately it seems my thigh may have gotten bigger which i am more ... Read More

National Lymphedema Network

New Book: Let's Talk Lymphoedema

In: Newly diagnosed

LEsucks

new-book-lets-talk-lymphoedema

200233

  • 11 Replies
  • Processing ...

I just found this book and started reading it (Kindle edition), so I don't know much about it yet. Just wanted to let everyone know in case they're interested. Paperback edition: Let's Talk Lymphoedema: The Essential Guide to Everything You Need to Know Authors Peter Mortimer, Gemma Levine Paperback: 210 pages Publisher: Elliott & Thompson (June 1, 2017) Language: English ISBN-10 ... Read More

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National Lymphedema Network

How You Can Help Lymphedema Research

In: Living with lymphedema

LEsucks

how-you-can-help-lymphedema-research

200233

I recently added my name and information to the Patient Registry for Lymphedema, a confidential database of patients being gathered by Stanford University, in conjunction with LE&RN (Lymphatic Education & Research Network). I urge everyone with lymphedema & related diseases to add your information to this registry to help gather more data about this disease. You will need to fill out ... Read More

National Lymphedema Network

Dry Brushing

In: Living with lymphedema

Healthyaim

dry-brushing-1

200233

  • 12 Replies
  • Processing ...

Anyone experience measurable, noticeable benefits using the dry brushing technique or any wisdom/hints that would be helpful to know. Dry brushing has never been recommended to me by PT staff or LE doctor, yet by my reading of the technique, it seems that it should be a positive to add to my routine that includes MLD......or is it overkill? As always, thank you for your responses ... Read More

National Lymphedema Network

Help Needed with Pump Use

In: Living with lymphedema

DrBEP

help-needed-with-pump-use

200233

  • 5 Replies
  • Processing ...

Finally - nearly a year after my lymphedema diagnosis, I received an Entre pump. I have used it a couple of times and am wondering now: Is there an optimal time of day to use the pump? Should it be used the same time every day, or can I vary based on my schedule for the day? I'm wearing long cotton pants and a diabetic sock when I use the pump. Is this the best? Any other suggestions ... Read More

National Lymphedema Network

Inspire's New Search Engine

ErikInspire's journal

ErikInspire

inspires-new-search-engine

200233

  • 44 Replies
  • Processing ...

I’m very happy to share with you Inspire’s new search engine. We believe the recent improvements that we have made will make it much easier for you to find what you are looking for. The search box at the top of the page (the magnifying glass if you are on mobile) will allow you to search across All Communities by default, or narrow it down to a single community that you belong to ... Read More

National Lymphedema Network

Just wondering

In: Living with lymphedema

Caslynn15

just-wondering-146

200233

  • 9 Replies
  • Processing ...

I've been battling lymphedema in my legs for a couple of years now. Just wondering. I can get up in the morning and my legs will look awesome, no swelling. But within half an hour they start to blow up. I can practically sit there and watch them blow up like a balloon. Does anyone else have their limbs do this? It just kills me on how fast the fluid builds up. It's depressing. It just ... Read More

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National Lymphedema Network

Summer weather and truncal lymphedema

In: Newly diagnosed

imme

summer-weather-and-truncal-lymphedema

200233

Hi, I have truncal lymphedema as well as lymphedema in my upper left arm after cancer and radiation treatments. My physical therapist who is a trained lymphedema specialist, has me wearing a compression bra, compression foam and a compression tank top. Does anyone have any suggestions on how to survive the summer heat? I'm tired of feeling sweaty and sticky all the time. Staying indoors ... Read More

National Lymphedema Network

Swollen legs need help

In: Living with lymphedema

mizk2001

swollen-legs-need-help

200233

  • 8 Replies
  • Processing ...

I had TG December 2015. Stage 4 which has spread to my peritoneum and doing more chemo. I am now experiencing extreme swollen legs to the point I can hardly walk at times. I feel like I have lost all muscles and strength in my legs. Has anyone else experienced this ... Read More

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