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National Lymphedema Network

Lymphedema support group and discussion community

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National Lymphedema Network

Looking for doctors doing SAPL in USA

In: Secondary lymphedema

Chocolate-e-Clare

looking-for-doctors-doing-sapl-in-usa

200233

Hi members, I know a lady who would like to reduce the size of her leg with secondary lymphedema. She is in Texas. I can only find surgeons doing suction assisted protein lipectomy in California and Maryland. Does anyone out there know of other doctors/centers doing this ... Read More

National Lymphedema Network

Hello, everyone!

Radha_Inspire's journal

Radha_Inspire

hello-everyone-96

200233

Hello everyone! My name is Radha and I am the digital editor at Inspire. We’d like to share some news about an editorial initiative that we hope will be of use to you. Your community is a space where you can express your thoughts, seek support, and share information with fellow members, and will, of course, continue to be. My goal is to take cues from your discussions, your questions ... Read More

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National Lymphedema Network

What’s the story of your rare disease diagnosis?

Brian's journal

Brian

whats-the-story-of-your-rare-disease-diagnosis-1

200233

Dear members, Today, more than 200,000 Inspire members have a rare condition. You have made Inspire a place to share your experiences with others who understand what you’re going through and help others at the same time. Many of you have described how long it took for you to receive an accurate diagnosis for your rare condition, while some of you found your diagnosis quickly. If you’d ... Read More

National Lymphedema Network

My New Wraps

In: Treatment and garments

ScottieOwner

my-new-wraps

200233

I received my Medeven Circaid ready wraps today - thigh, knee and calf. I believe ALL wraps slide down, it's inevitable - gravity and weight working together to pull them down. The knee and calf are working well but the thigh needs quite a bit of tightening throughout the day. I'm not going to complain because at least they are easily tightened by the Velcro straps and my legs are ... Read More

National Lymphedema Network

Pokemon Go and the gamification of health

John2's journal

John2

pokemon-go-and-the-gamification-of-health

200233

  • 458 Replies )
  • Processing ...

Dear members, Like many, we’ve been watching the phenomenon of the Pokemon Go app, and not only many of our employees and friends are actively catching Pokemon, but several Inspire members have recently shared their experiences about how this has positively impacted their health. The game, as I suspect many of you know, allows players to use their mobile devices to explore real-world ... Read More

National Lymphedema Network

How do you make medical decisions?

Brian's journal

Brian

how-do-you-make-medical-decisions

200233

Dear members, As patients and caregivers, we have more sources of medical information available to us than ever before to help us make the best decisions possible for our health. Advice from our doctors is sometimes not the same as the information we learn from the experiences of our peers, and there are often other sources of information available as well. Some of our decisions feel ... Read More

National Lymphedema Network

Use of A.R.T. for Lymphedema

In: Living with lymphedema

jayv73

use-of-a-r-t-for-lymphedema

200233

I am finding improvements in my circulation and hopefully my primary lymphatic issue with many sessions of A.R.T. (Active Release Technique). A.R.T. is gaining momentum and recognition among rheumatologists and ortho surgeons. I started using an A.R.T. Therapist in conjunction with my Personal Trainer, who is a FMS (Functional Movement Specialist) to improve upon the range of motion ... Read More

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National Lymphedema Network

Solaris Ready Wraps

In: Living with lymphedema

KaceysMom

solaris-ready-wraps

200233

I got my wraps (4 pieces for left leg - foot, ankle, knee and thigh) today at the orthopedic place. They put them on me and showed me how to place them. By the time I got home, the thigh piece was down around the knee. I have taken it off and put it back on seven times so far - what on earth. Who has had this problem and what did you do about it. I was urged to get these wraps because ... Read More

National Lymphedema Network

Treatment and Garments

In: Treatment and garments

PSF56

treatment-and-garments

200233

  • 315 Replies )
  • Processing ...

Hi! So glad to find supprt for Lymphedema. I have been fighting this for about 10 yrs so far. Recently I got a perscription for treatment at one of our nursing homes for out patient therepy. To find out that I have to pay mostof this out of my pocket. I am not rich, and am on disability because of it. What do I do to help myself? I have read where you suggest getting an advocate to ... Read More

National Lymphedema Network

How to break the bad news – expert tips

Chronic-Inspire's journal

Chronic-Inspire

how-to-break-the-bad-news-expert-tips

200233

By Radha_Inspire Digital Editor, Inspire Breaking the news that you are sick is no easy task, nor is an easy thing to hear. The difficulty can be compounded when the illness is chronic, life-altering, or even terminal. While there is no right or wrong way to go about bringing others into the know, experts say there are things you can do to feel more comfortable and in control. Take ... Read More

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