Charcot-Marie-Tooth (CMT)

Hello! I usually wear pants under my AFOs because the calf strap starts to rub my skin. However as it is getting warming I am starting to wear shorts more. Does anyone have any ideas on how to keep t ... Show more

Recently, we received my son's genetic test results, confirming he has CMT2D, like me. This did not come as a surprise to us, but now we know for sure. I'm grateful for his diagnosis at such a young ... Show more

We are excited to announce that the new Inspire Android app is available and ready for download. Now, Android users can connect with other patients and caregivers from our convenient, easy-to-use app ... Show more

Session Topic: Putting CMT Blood Samples to Work A biomarker may be used to see how well the body responds to a treatment for a disease. Without them, clinical trials rely on clinical evaluation ... Show more

Good morning. My big toe on my right foot is bent like a hammer toe. I see lots of correctors online for the second toe but not the big toe. Does anyone have any suggestions? Thanks!

Do you want to make a difference in CMT research? HNF is looking for patients with a confirmed CMT diagnosis to participate in the CMT Biobank. Your vital blood samples and de-identified GRIN data wi ... Show more

Were you ever discriminated against when applying for a job, because you informed them of your disability? Were you told that the position was filled, soon there after informing them of your disabi ... Show more

CMT Clinical Trial Readiness Summit June 7-8, San Diego Are you ready to be part of a game-changing event in the world of CMT clinical trials? The moment you've been waiting for is finally here ... Show more

Hi all. Has anyone had acupuncture to treat neuropathy in the feet? I have an appointment on Saturday for my first treatment.

As NEW clinical trials emerge for CMT, the importance of optimizing measures, endpoints and the participant experience has never been more urgent! HNF is committed to derisking upcoming trials by bri ... Show more