Advertisement
Oops, something went wrong.
Please try again later.

Amyloidosis

About this Community

About this community

Inspire connects patients, families, friends and caregivers for support and inspiration.

Community topics
Select all
Primary amyloidosis (AL)
Secondary amyloidosis (AA)
Familial (hereditary) and TTR amyloidosis
Cardiac amyloidosis associated with wild type TTR / isoleucine 122 variant
Localized amyloidosis, CAA, cutaneous amyloidosis, and others
Treatment options
Treatment centers, health insurance and financial issues
Awareness and fundraising
Amyloidosis in the news and new clinical trials
Support group meetings and online support
Help desk
See less topics -
New
New reply April 17, 2024 • 2:49 AM

We are excited to announce that the new Inspire Android app is available and ready for download. Now, Android users can connect with other patients and caregivers from our convenient, easy-to-use app ... Show more

TeamInspire30 replies28 Reactions

By joining Inspire, you can be connected with clinical research and trial opportunities

Join now
New reply April 18, 2024 • 6:52 PM

Hello! My name is Steph Shuff, and I am a writer working here at Inspire. Every month, I help to write, edit, and publish our Monthly Dose newsletter, a monthly email that highlights articles from ac ... Show more

StephShuff152 replies54 Reactions
Advertisement
New reply January 21, 2024 • 1:46 AM

Does anyone have this?

cipe1 replies0 Reactions
New reply March 16, 2024 • 7:36 AM

Dear Members, Many of us have been involved in clinical trials, or have considered enrolling in one, or have supported someone who has. At Inspire, we believe that all of us, as patients and caregiv ... Show more

Brian432 replies30 Reactions
New reply July 21, 2023 • 12:25 AM

Hello trying to decipher some of my test results all other blood work was normal but free light chain assay was elevated Kappa was 22.83 Lambda was 11.06 Kappa/Lambda ratio 2.06 Could anyone explai ... Show more

doggit19711 replies0 Reactions
New reply December 23, 2022 • 1:19 AM

Hi all just diagnosed with amyloidosis. Also have multiple myeloma and lpl lymphoma or waldenstroms disease. Kidneys are getting slammed. Will start treatment on the 6th. Any input will be wond ... Show more

Msmilli1 replies0 Reactions
New reply November 10, 2022 • 12:03 AM

I lost my husband in May to al amyloidosis. He was a marine and station at camp leguene. Only 55 years old. I heard benzene causes this. Anybody have this horrible experience?

Racoon1125 replies0 Reactions
Advertisement
New reply March 01, 2023 • 12:12 AM

In 2016, I had a horrible sharp pain on my left side. I went to the ER and thry noticed a narrowing of my sigmoid colon that couldn’t be ruled out as a stricture. I have hEDS, which since I have had ... Show more

mywackybody9 replies3 Reactions
New reply June 09, 2022 • 2:17 AM

So I had my Protein antibodies come back low, the whole thing came back low in general, Protein 6.0 (6.0-7.7) albumin 4.0 (3.8-5.0) alpha 1 globulin .2 (.2-.4) alpha 2 globulin .7 (.5-1.0) beta gl ... Show more

mywackybody18 replies11 Reactions
Posted February 22, 2022 • 6:41 PM

Have you looked at your member profile lately? We’ve made changes to make it easier to customize your profile, and you can be the first to try it out! Note: These changes are o ... Show more

Towbe0 replies18 Reactions