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ALS Association

About this Community

About this community

The ALS Association Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the ALS Association, an Inspire trusted partner.

Contact

The ALS Association
1275 K Street, NW
Suite 1050
Washington, DC 20005
Phone: (877) 444-ALSA
Fax: (202) 289-6801
advocacy@alsa-national.org
www.alsa.org

Community Leaders

Community topics
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National ALS Advocacy Day
Familial ALS
Medicare prescription drug benefit
Children and families
ALS and the military
Newly diagnosed
Living with ALS
Medications and therapies
Assistive technology and equipment
Symptoms
In the News
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New
New reply March 28, 2024 • 1:35 AM

Hello! My name is Steph Shuff, and I am a writer working here at Inspire. Every month, I help to write, edit, and publish our Monthly Dose newsletter, a monthly email that highlights articles from ac ... Show more

StephShuff124 replies46 Reactions

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New reply March 18, 2024 • 8:50 AM

Almonds, Blueberries, strawberries and orange juice and drink plenty of fluids . . . new years resolution for patients and brain diversion: Opinion: What my cat taught me about life after Covid htt ... Show more

MuonOne1 replies0 Reactions
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New reply December 04, 2023 • 1:20 AM

I have no idea if this is where I am supposed to share my story but here we go. My Grandmother, Shirley, was diagnosed with ALS when I was around the late 15 year age (1987/88 ). At the time I had n ... Show more

helopoh1 replies0 Reactions
New reply November 15, 2023 • 5:22 AM

Hi Guys, Please help In September till now I have been experiencing muscle cramps, twitching, on and off weakness, lost over 10kg. I am really worried and I hope I am not terminal. Wk1, Noticed a l ... Show more

Oggg1 replies0 Reactions
Posted November 09, 2023 • 7:26 PM

03 October 2023 BCI award 2023 . . . Ceremony the US Davis neuroprosthetics lab https://youtu.be/Q1rctJd37a8 Neurotech 2023 was very exciting but nothing was said about Amyotrophic Latera ... Show more

MuonOne0 replies0 Reactions
New reply March 16, 2024 • 7:36 AM

Dear Members, Many of us have been involved in clinical trials, or have considered enrolling in one, or have supported someone who has. At Inspire, we believe that all of us, as patients and caregiv ... Show more

Brian432 replies30 Reactions
New reply March 15, 2023 • 4:11 AM

My grandma has Lou Gehrig’s disease, she is about 75 years old it was diagnosed 2 years ago. Right now it’s getting more difficult to live for her, because of stiff muscles she can’t even move. Riluz ... Show more

vearonicamckall1 replies0 Reactions
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New reply March 31, 2023 • 1:10 AM

Hello I am new here. I was diagnosed with CMT VIIB with a unknown mutation now I’m deteriorating I know that the inheritability is 50/50 i was diagnosed with Cramp Fasciculation Syndrome in my l ... Show more

lilbuggie364 replies1 Reactions
New reply March 10, 2023 • 4:16 PM

Has anyone else developed ALS following Covid vaccine shot?

lloydseidel81 replies0 Reactions
New reply November 06, 2022 • 12:43 AM

Had anyone heard of stem cell therapy for ALS? We are looking into it & praying For a place in Arkansas that does the therapy

mamgtm19951 replies0 Reactions