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About this Community

About this community

The American Lung Association connects patients, families, friends and caregivers for support and inspiration as they face pulmonary fibrosis. Here members can share stories, find important information and learn from the experiences of others like themselves.

Community topics
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News and notes
Living better with pulmonary fibrosis
Diagnosis and testing
Partnering with your medical care team
Medications for PF
Supplemental oxygen
Pulmonary rehabilitation
Lung transplantation
Emotional support
Good news, hope and humor
Caring for the caregiver
Research and clinical trials
Advocacy and awareness
In loving memory
Hospice/palliative care
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New
New reply April 17, 2024 • 2:49 AM

We are excited to announce that the new Inspire Android app is available and ready for download. Now, Android users can connect with other patients and caregivers from our convenient, easy-to-use app ... Show more

TeamInspire30 replies28 Reactions

Inspire is always free, safe, and completely anonymous

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New reply April 10, 2024 • 6:59 PM

Do you have family/friends who help you as a caregiver?

Mark-LungHelpLine1 replies0 Reactions
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New reply April 17, 2024 • 2:53 PM

What advice would you give to a caregiver of someone undergoing lung transplantation?

Mark-LungHelpLine4 replies0 Reactions
Posted February 29, 2024 • 11:17 PM

Good Afternoon! Below is the American Lung Association’s “Resource Roundup” for February: 1) Have you recently been prescribed supplemental oxygen and want to learn more? In our recent Each Br ... Show more

EliseLungAssociation0 replies0 Reactions
New reply March 10, 2024 • 6:00 PM

I have just been diagnosed with pulmonary fibrosis. I have COPD, asthma, but now this. What treatments and medication is used? I heard they are expensive. I want to be able to start soon. I'll see my ... Show more

justmeR6 replies1 Reactions
New reply April 18, 2024 • 6:52 PM

Hello! My name is Steph Shuff, and I am a writer working here at Inspire. Every month, I help to write, edit, and publish our Monthly Dose newsletter, a monthly email that highlights articles from ac ... Show more

StephShuff152 replies54 Reactions
New reply February 22, 2024 • 6:31 PM

Hello new member here from the UK 🇬🇧 My mum (69 yrs) has been living with PF since 2018 however her condition has worsened over the last few weeks. Still doesn’t require O2 and is mobile but has ... Show more

shaneabbasrajani5 replies0 Reactions
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New reply February 15, 2024 • 1:34 AM

Hello everyone, as we approach to make exactl two years since our brother Abduljabbar (who created this account), we (family) request to save some minutes to pray for his soul to continue rest well w ... Show more

AbduljabbarKasirye1 replies1 Reactions
New reply February 14, 2024 • 1:34 AM

My fiance was recently diagnosed with IPF at the age of 47. We live in a very rural area & need to find a pulmonary doctor that specializes in IPF because his local pulmonary doctor isn't going to be ... Show more

CassieSimmons3 replies0 Reactions
Posted February 02, 2024 • 9:24 PM

If we do have an early spring, what are you most looking forward to doing outdoors?

Mark-LungHelpLine0 replies0 Reactions