About this community
The Ovarian Cancer Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Ovarian Cancer Research Alliance, an Inspire trusted partner.
Contact
14 Pennsylvania Plaza
Suite 2110
New York, NY 10122
Phone: 212-268-1002
Fax: 212-947-5652
info@ocrahope.org
www.ocrahope.org
Community Leaders
Happy Mantra Monday! My mantra of the week is: “I allow myself to feel whatever I need to.” Allow yourself to feel the good, the bad, and everything in between. Give yourself the choice to ... Show more
I cannot tolerate fibre nutritional drinks.I can tolerate only clear liquids nutritional drinks like ensure clear, boost breeze etc.my calories demand is 1500 to 1800z.I am able to tolerate only 800 c ... Show more
My mom was diagnosed with stage3c ovarian cancer in March 2022, she underwent debulking surgery and then chemotherapy and was on maintenance therapy until now. Recently her CA125 started spiking up. I ... Show more
Best laundry detergent that doesn’t leave a soap residue on clothes (which then transfers and irritates skin). I’ve cleaned my machine out like crazy with baking soda and vinegar. Not sure which ... Show more
I’ve been using dove bar sensitive soap and it’s leaving a film on my very sensitive skin no matter how much I rinse. Still have not found a good face wash, hand soap, body soap or moisturizer. It’ ... Show more
I’m having a hard time Finding a laundry detergent that doesn’t leave an irritating residue in my very Sensitive skin. Any suggestions? Thanks
I was diagnosed Stage 4b HGSOC Sept 2021, BRCA 1 +, NED Aug 2022 and continuing. The end of April I will finish my 2 years on oliparib. Not recommende to continue due to increased risk of MDS/AML. N ... Show more
We went for a second opinion yesterday and the dr confirmed that my mother has MDS /AML. He did not seem to be very positive about our outcomes. I know you should not be looking on the internet f ... Show more
hello lovely ladies I have first recurrence of high grade serous ovarian cancer in my spleen, surgery and six rounds of chemo, has anyone had the same story and what treatment did you proceed with
Hi Everyone , We were happy to have Dr Katie Kurnit ( @katiekurnit ) Gynecologic Oncologist from the University of Chicago @UCCancerCenter join us for the chat . Here is a link to the summary of our ... Show more
I have developed oral cancer on my tongue and will undergo surgery in two weeks. I do not fit the profile for oral cancer - no drinking, no smoking, no HPV connection. I am a 5 year survivor of Stag ... Show more