Rare and Genetic Disorders
Rare disease and genetic conditions support group and discussion community
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I had a in person meeting with my neuromuscular doctor and a few other genetic people. They were very surprised that my protein levels were coming back as normal. Because I had tested positive for a ... Show more
to those that pray or believe in that sort of thing, please pray for my friend caroline. last week, (monday), she rang me to say she didn't feel well and had a headache- but not to worry beca ... Show more
We are excited to announce that the new Inspire Android app is available and ready for download. Now, Android users can connect with other patients and caregivers from our convenient, easy-to-use app ... Show more
Maybe we all do! What am I talking about anyhow? Many of us…young or old, reach a point with our mobility (or lack thereof) where we will find that there are pieces of equipment available that will ... Show more
“The Day Jesus Died” Jesus had been accused of a crime he had not committed, arrested, charged, found guilty, and sentenced to death by crucifixion which was the most inhumane form of punishment ... Show more
1 cup butter, softened 1/2 cup packed brown sugar 1/4 cup sugar 2 tablespoons instant coffee granules 1/4 teaspoon salt 2 cups all-purpose flour 1/2 cup semisweet chocolate chips 2 teaspoons shorteni ... Show more
“Because what may be known of God is manifest in them, for God has shown it to them. For since the creation of the world His invisible attributes are clearly seen, being understood by the things that ... Show more
This piece was sent to Pastor Carnes by a member of the devotional family. “The Bummer Lamb” What happens to a little lamb that is rejected by its mother? It will hang its head so low it loo ... Show more
Are You Anxious To Meet People Here? Sure you are, so let's do this! We know…new people come to Inspire and they don’t know where to start, or what to do, so I am here to tell you….JUST JUMP RIGHT ... Show more
Hi! I'm Sarah, a patient of HHT, a rare genetic blood vessel disorder. Hoping to connect with others who share similar rare diseases. It took me 3 years to get clinically diagnosed and I still haven' ... Show more