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Lung Cancer Survivors

About this Community

About this community

The American Lung Association connects patients, families, friends and caregivers for support and inspiration as they face lung cancer. Here members can share stories, find important information and learn from the experiences of others like themselves.

Living with COPD Support Community

The Living with COPD Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the American Lung Association, an Inspire trusted partner.

Living with Lung Disease Support Community

The Living with Lung Disease Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the American Lung Association, an Inspire trusted partner.

Community topics
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ALK mutations and lung cancer
Non-small cell lung cancer
Non-small cell lung cancer - General
Non-small cell lung cancer - Stage I
Non-small cell lung cancer - Stage II
Non-small cell lung cancer - Stage III
Non-small cell lung cancer - Stage IV
Non-small cell lung cancer - Adenocarcinoma
Non-small cell lung cancer - Large cell
Non-small cell lung cancer - Squamous cell
Small cell lung cancer
Small cell lung cancer - General
Small cell lung cancer - Limited
Small cell lung cancer - Extensive
EGFR mutations and lung cancer
KRAS mutations and lung cancer
RET mutations and lung cancer
Neuroendocrine (NETS) / Carcinoid tumors
Family members and caregivers
Treatment options
Complementary and alternative medicine
Nutrition
Good news
What, me worry?
Hope, friends and humor
Survivor stories
In memoriam
Lung cancer events
Lung cancer in the news
Help desk
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New
Posted March 18, 2024 • 11:06 PM

I'm scheduled for a colonoscopy early summer. Because of my lung issues, it's being done in the hospital and I'll need tests before the anesthesia. So I asked my PCP for a virtual colonoscopy which h ... Show more

Jan4710 replies0 Reactions

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New reply March 18, 2024 • 10:24 PM

Hello friends- I've gone through recent testing at Stanford in northern CA, and am receiving recommendations for either surgical or radiological interventions. I'd like to secure an online 2nd opini ... Show more

worriedhusband7772 replies2 Reactions
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New reply March 19, 2024 • 2:50 AM

I have egfr exon 20+ mutation NSCLC with PD-L1 came back as 0. I recently had my first scan afte two month of treatment, one of of the lesion in lung had growth from 9 x 6 mm 16 x12 mm. The rest of ... Show more

Exon20_journey2 replies0 Reactions
New reply March 18, 2024 • 4:21 PM

Hello, 4 years ago I had VATS upper left lobectomy. Recovery was not too difficult. 10 days ago I had robotic segmented surgery of upper right and lower right lobes to remove 4 pre-existing primar ... Show more

TrudyHopkins1 replies1 Reactions
Posted March 16, 2024 • 5:47 PM

Article on Immune Checkpoint Inhibition in EGFR : https://journals.lww.com/anti-cancerdrugs/abstract/2020/03000/successful_immune_checkpoint_inhibition_in_an.14.aspx

Marie0020 replies6 Reactions
New reply March 17, 2024 • 3:27 PM

Hi friends. Wrote a few months ago re new 0.5 mm nodule found in July. I am 10 years post right lobectomy for two primaries with a remaining right lower wedged lobe). Have had two CTs and a PET since ... Show more

vconnol4 replies1 Reactions
New reply March 19, 2024 • 3:55 AM

I had five daily consecutive radiation treatments for a small lung nodule at the end of January and had no side side effects throughout February. Beginning in March I've been increasingly anemic wit ... Show more

dougmc14 replies3 Reactions
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New reply March 18, 2024 • 7:26 AM

Does anyone know the status of Furmonertinib and when it might be available? Or, has anyone participated in the clinical trials with any success? My dad's lung cancer has advanced to leptomeningeal d ... Show more

anitamiwoo4 replies2 Reactions
New reply March 16, 2024 • 2:25 AM

I have a been on Targrisso since 2019 and in October this year I began to have rashes that itched a lot. It is mostly on my torso but will have on my arms a legs. Any solutions or suggestions?

lmbaaske19 replies2 Reactions
New reply March 14, 2024 • 1:25 PM

So my husband has NSCLC Stage IV. He recently started a clinical trial. This is his first clinical trial. We are trying to be very thorough on how we navigate with his treatments(reading, researching ... Show more

tnpeoples6 replies3 Reactions