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Leukemia Support Community

About this Community

About This Community

The Leukemia Support Community connects patients and caregivers affected by leukemia for support and inspiration. This community is sponsored by the Leukemia Research Foundation, an Inspire trusted partner.

Contact

Leukemia Research Foundation
191 Waukegan Road, Suite 105
Northfield, IL 60093
Phone: 847-424-0600
Info@lrfmail.org
www.leukemiarf.org

Community Leaders

Community topics
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Acute lymphocytic leukemia (ALL)
Chronic lymphocytic leukemia (CLL)
Acute myelogenous leukemia (AML)
Chronic myelogenous leukemia (CML)
Newly diagnosed
Treatment
Managing side effects
Stem cells and bone marrow transplants
Survivors
Recurrence
Adolescents and children
Family, friends and caregivers
Living with cancer
Financial issues
News and research
General
See less topics -
New
New reply March 29, 2024 • 7:21 AM

Hello! My name is Steph Shuff, and I am a writer working here at Inspire. Every month, I help to write, edit, and publish our Monthly Dose newsletter, a monthly email that highlights articles from ac ... Show more

StephShuff133 replies47 Reactions

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New reply November 16, 2023 • 1:19 AM

My mom was just diagnosed with MPAL. She is currently receiving chemo in China. As her only daughter, I am hunting for info regarding her life expectancy, possibility of bone marrow transplant, possi ... Show more

ammasgrasshopper1 replies0 Reactions
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Posted November 01, 2023 • 6:28 PM

Has anyone discontinued treatment with Bruton's tyrosine kinase inhibitors (BTKi) due to the toxicity of the treatment? We know CLL can be so challenging to treat, and covalent BTKi created such a sh ... Show more

Christine_Inspire0 replies0 Reactions
Posted October 23, 2023 • 5:50 PM

I read some exciting news recently about a new study working towards finding a way to leverage CAR T-Cell therapy as an available CLL treatment option. While it's still in phase 1, aka years off ac ... Show more

Christine_Inspire0 replies3 Reactions
Posted October 18, 2023 • 1:29 AM

I recently read this in the National Library of Medicine. “UE DVT (upper extremity Deep vein Thrombosis) is a relatively common complication among patients with AML and ALL and has a significant imp ... Show more

JanetSchuurman_12050 replies0 Reactions
New reply September 11, 2023 • 6:13 PM

Happy to report my recent PET scan showed me clear of Hodgekins. Bone Marrow had around 5% CLL which is very good.Treatments do work!

Barry-LRF1 replies4 Reactions
New reply March 16, 2024 • 7:36 AM

Dear Members, Many of us have been involved in clinical trials, or have considered enrolling in one, or have supported someone who has. At Inspire, we believe that all of us, as patients and caregiv ... Show more

Brian432 replies30 Reactions
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Posted September 03, 2023 • 9:39 PM

I understand that HCL is a very small percentage(2%) of leukemia cancers. I will start my treatment soon and wondering if there are other members who have already completed their treatments , and do ... Show more

jayson0 replies1 Reactions
New reply September 10, 2023 • 2:14 AM

Please help my friend and colleague's ten year old son who has a rare bone marrow disorder and is in need of a transplant. See his story below. Please consider donating via #bethematch . Matt was ... Show more

Laura_Marie1 replies1 Reactions
New reply September 10, 2023 • 2:09 AM

Okay, so I posted up here a couple of weeks ago about some symptoms that I’ve had and now I’ve just noticed this bruise on me this morning. I did not bump anything! I noticed a couple small ones over ... Show more

ToriRowan1 replies0 Reactions