About This Community
The Leukemia Support Community connects patients and caregivers affected by leukemia for support and inspiration. This community is sponsored by the Leukemia Research Foundation, an Inspire trusted partner.
Contact
191 Waukegan Road, Suite 105
Northfield, IL 60093
Phone: 847-424-0600
Info@lrfmail.org
www.leukemiarf.org
Community Leaders
Hello! My name is Steph Shuff, and I am a writer working here at Inspire. Every month, I help to write, edit, and publish our Monthly Dose newsletter, a monthly email that highlights articles from ac ... Show more
My mom was just diagnosed with MPAL. She is currently receiving chemo in China. As her only daughter, I am hunting for info regarding her life expectancy, possibility of bone marrow transplant, possi ... Show more
Has anyone discontinued treatment with Bruton's tyrosine kinase inhibitors (BTKi) due to the toxicity of the treatment? We know CLL can be so challenging to treat, and covalent BTKi created such a sh ... Show more
I read some exciting news recently about a new study working towards finding a way to leverage CAR T-Cell therapy as an available CLL treatment option. While it's still in phase 1, aka years off ac ... Show more
I recently read this in the National Library of Medicine. “UE DVT (upper extremity Deep vein Thrombosis) is a relatively common complication among patients with AML and ALL and has a significant imp ... Show more
Happy to report my recent PET scan showed me clear of Hodgekins. Bone Marrow had around 5% CLL which is very good.Treatments do work!
Dear Members, Many of us have been involved in clinical trials, or have considered enrolling in one, or have supported someone who has. At Inspire, we believe that all of us, as patients and caregiv ... Show more
I understand that HCL is a very small percentage(2%) of leukemia cancers. I will start my treatment soon and wondering if there are other members who have already completed their treatments , and do ... Show more
Please help my friend and colleague's ten year old son who has a rare bone marrow disorder and is in need of a transplant. See his story below. Please consider donating via #bethematch . Matt was ... Show more
Okay, so I posted up here a couple of weeks ago about some symptoms that I’ve had and now I’ve just noticed this bruise on me this morning. I did not bump anything! I noticed a couple small ones over ... Show more