Rare and Genetic Disorders
Rare disease and genetic conditions support group and discussion community
About this community
Contact
Community Leaders
1 cup butter, softened 1/2 cup packed brown sugar 1/4 cup sugar 2 tablespoons instant coffee granules 1/4 teaspoon salt 2 cups all-purpose flour 1/2 cup semisweet chocolate chips 2 teaspoons shorteni ... Show more
“Because what may be known of God is manifest in them, for God has shown it to them. For since the creation of the world His invisible attributes are clearly seen, being understood by the things that ... Show more
This piece was sent to Pastor Carnes by a member of the devotional family. “The Bummer Lamb” What happens to a little lamb that is rejected by its mother? It will hang its head so low it loo ... Show more
Are You Anxious To Meet People Here? Sure you are, so let's do this! We know…new people come to Inspire and they don’t know where to start, or what to do, so I am here to tell you….JUST JUMP RIGHT ... Show more
Hi! I'm Sarah, a patient of HHT, a rare genetic blood vessel disorder. Hoping to connect with others who share similar rare diseases. It took me 3 years to get clinically diagnosed and I still haven' ... Show more
My grandson was born addicted to heroin he was in the n.i.c.u for 1 month where i lived there and cared for him and got him weened off morphine.. Fast forward to now he is 2 years old and had geneti ... Show more
Diagnosed with polycythemia Vera at age 2, TIA at 12yrs old, diagnosis changes to secondary polycythemia at some point after. Genetic testing at 32 led to Chuvash Polycythemia diagnosis. Chronically ... Show more
Hello! My name is Steph Shuff, and I am a writer working here at Inspire. Every month, I help to write, edit, and publish our Monthly Dose newsletter, a monthly email that highlights articles from ac ... Show more
With their bright yellow color and refreshing scent, lemons go beyond just being ingredients in the kitchen. They are useful in unexpected places and ways, including everything from practical househ ... Show more
Our friend Pastor Carnes has a way of coming up with life lessons just when they are needed most. Here is todays, and it gives us all a reminder of IMPORTANT things. “When the Tanks’ Empty” ... Show more