stacyl531's discussions

My John Hopkins Visit

  • By stacyl531 · Posted December 16, 2009
  • In Scleroderma Foundation · 10 replies
  • Hi all....Well, I went to John Hopkins on December 1st for my initial visit with Dr. Hummers. It has taken me a few weeks to gather all my thoughts regarding to what I wanted to say about my visit. I ...


  • By stacyl531 · Posted November 11, 2009
  • In Scleroderma Foundation · 13 replies
  • Hi Everyone! Well, I finally received my letter from disability - and I was approved. Now I can see all the Drs. I need to, without worrying how I was going to come up with all of the copays. It was a ...

Disability Status Decision

  • By stacyl531 · Posted November 5, 2009
  • In Scleroderma Foundation · 7 replies
  • Hi - I applied for Disability in August of this year. I just received an email stating a decision has been made on my claim and that I would be notified by mail. I called up the office to see if I could ...

John Hopkins - Anyone?

  • By stacyl531 · Posted September 11, 2009
  • In Scleroderma Foundation · 15 replies
  • Has anyone been to the John Hopkins Scleroderma Center in Baltimore? I have an appointment there December 1st and I am wondering what happens during my visit. I'm excited, but very nervous at the same ...

Anyone on Arava?

  • By stacyl531 · Posted August 20, 2009
  • In Scleroderma Foundation · 5 replies
  • My Dr. just switched me from weekly Methotrexate injections to taking Arava 20mg daily. After taking Arava for 2 days I had a bad reaction. (Rash, itchy skin all over and severe muscle cramps/spasms in ...

Things you can do