Search results for Torticollis

Torticollis in 4 mo. preemie

  • By LVMLundahl · Posted March 9, 2010
  • Journal entry · 5 replies
  • My son is 4 months old in actual age right now. He and his twin brother were born t 32 weeks and spent 2 weeks on the NICU and 1 week on the special care nursery. Recently, he was diagnosed with torticollis ...

Any Torticollis input??

  • By monkey---1212 · Posted September 15, 2011
  • Discussion in Preemie · 19 replies
  • If any one has experienced Torticollis with their little one maybe you could help me. My son Ethan is 7 mos. He has GERD(severe reflux) and Torticollis. He has been in physical therapy for close to 4 ...


  • By mommyinneed · Posted April 21, 2009
  • Discussion in Preemie · 17 replies
  • my son has torticollis and plagiocephaly and will be starting physical therapy soon for it. I've done some research on my own and despite what other doctors have advised me it can cause gross motor delay ...

For those who had a LO with torticollis

  • By Noah20 · Posted September 22, 2010
  • Discussion in Preemie · 8 replies
  • My son went to the developmental ped a couple of weeks ago and they noted some tightness in his right shoulder, neck and arm. This is causing him to tilt his head slightly to the right (which is also ...


  • By doug2 · Posted July 21, 2007
  • Journal entry · 1 reply
  • I have an apptmt 8/28 to see a Neurologist, referred by a friend. But am not sure I have torticollis: no neck spasms, just pain whenever I turn to left or right. Otherwisw my head is held normally. I ...

Torticollis does not seem to go away completely even at 22 months

  • By jyotim · Posted May 18, 2009
  • Discussion in Preemie · 6 replies
  • I greatly value and appreciate the posts on this forum. This is my first time posting my son's condition, as I did not find a lot of information searching through existing posts. My son is 22 months ...


  • By mrileyoct1 · Posted November 5, 2009
  • Discussion in Preemie · 12 replies
  • One of my twin daughters born at 33 weeks isd thought to have torticollis or twisted neck. The muscles in her neck and back are very strong and she archs her back. She is only 4 months actual and can ...

Torticollis avoidance

  • By slbriggs · Posted September 16, 2008
  • Discussion in Preemie · 4 replies
  • Destiny got her first real visit to be evaluated for EI yesterday. I pointed out to them that I was worried that she almost always tilts her head to the right side. They watched it and by the end of everything ...

Low Muscle Tone, Torticollis

  • By barwest2 · Posted March 2, 2010
  • Discussion in Preemie · 6 replies
  • I'm sort of combining these into 1 discussion. My son has both, is almost a year old, 8.5 mo adjusted, and we don't seem to be making headway with the torticollis. He was recently fit with a helmet about ...

Torticollis or not?

  • By Bklynmom · Posted February 13, 2011
  • Discussion in Preemie · 9 replies
  • Hi! I have a question about my FT son who is 2 months old now. He Likes to keep his head twisted to the right, and often won't turn his head to the left when tracking objects or when I call him from that ...

torticollis/plagiocephaly/muscle tone

  • By mommyinneed · Posted July 9, 2009
  • Discussion in Preemie · 4 replies
  • Just wondering if any of your babies (who had torticollis) developed muscle tone issues on the same side of body that their neck tilts to? My daniel is 14 months and has tone issuse that are slightly ...


  • By meggs2003 · Posted October 16, 2009
  • Discussion in Preemie · 7 replies
  • Hello everyone! The last time we went to see the Neurosurgeon(sept 29th) i told him that Everest favors his right side, we will lay him with his head facing to the left and he immediately turns it to ...

Vision/Torticollis mystery and your little ones' experience

  • By monkey---1212 · Posted September 26, 2011
  • Discussion in Preemie · 1 reply
  • As it turns out we are pretty certain but not 100% our 7 mos old Ethan (3 weeks shy of full term) has a vision problem that is causing his reoccuring Torticollis. He has more of a head rotation to the ...

TUMMY time : how to start gently

  • By rutiphysio · Posted October 12, 2013
  • Journal entry · 11 replies
  • tummy-tummy (chest-to-chest\): it is a beautiful (maybe most beautiful) exercise! and it is - in my view - the start of getting head-control, later trunk-control...and to start motor-development... very ...

i invented a new style neck brace ,cervical dystonia,torticollis,weak neck

  • By shanesbrace · Posted February 16, 2011
  • Journal entry · 0 replies
  • i just joined the group ,i have torticollis also known as cervical dystonia, caused from a serious permanant side effect from a medication called resperadol that i took for over 10 years for mental illness ...


  • By havengirlsmama · Posted December 26, 2009
  • Discussion in Preemie · 15 replies
  • My daughters--5 months actual 2 months corrected--have been on Reglan since they have been in the NICU. Last month their Ped upped their dose when I mentioned that they were exhibiting signs of discomfort ...

Feeling so scared and alone... Please help!

  • By God-gives-strength · Posted January 31, 2014
  • Discussion in Preemie · 8 replies
  • Hi, I am new to inspire... My little girl Gabriella is 8 months actual (5 and a half months adjusted) she was a 29 weeker (1.26kg/2lb7oz)with 11 weeks in NNICU. She had a tough time with lung issues ...


morgansmum (Inactive)
  • By morgansmum (Inactive) · Posted December 3, 2010
  • Discussion in Bones, Joints and Muscles · 0 replies
  • Hi i am new to the group and was wondering if anyone out there was experienced in torticollis. My son who is now 4 was born with congenital torticollis. We gave him physiotherapy he wore a collar and ...

My sweet boy...

  • By 3boysandaprincess · Posted March 31, 2012
  • Discussion in Genetic Alliance · 8 replies
  • The son we are constantly trying to get a diagnosis for is 5 years old. He has three siblings - two brothers ages 8 and 6, and a sister age 4. We have been fighting for a diagnosis for him since he was ...

Benign Paroxymal Torticollis

  • By advocate4myson · Posted April 15, 2009
  • Discussion in Genetic Alliance · 0 replies
  • Has anyone's little one ever had this? If so, what were your little one's symptoms? My 8 month old son was seen at Shriner's Hospital for Children yesterday for intermittent torticollis that he's been ...


  • By CoastieWife88 · Posted June 30, 2009
  • Discussion in Preemie · 6 replies
  • My son has torticollis which has made his head flat on the right side, well on the right back side of his head. It's not only flat but making his head somewhat protrude on the left because he won't put ...

how do I say this..

  • By mommyinneed · Posted July 7, 2009
  • Discussion in Preemie · 26 replies
  • I've been so happy to see my son learn new things and do new things, however; today my spirits are crushed. His PT came to my house once again (which I know he needs) and worked with him. She has asked ...

developmental evaluation

  • By mommyinneed · Posted January 31, 2009
  • Discussion in Preemie · 2 replies
  • My son had his developmental evaluation yesterday which lasted about 2 hours! I knew he was behind on gross motor skills. Adjusted he's 7 months and does what a 5 and 1/2 month old does gross motor wise ...

car seat issues

  • By mommyinneed · Posted June 1, 2009
  • Discussion in Preemie · 5 replies
  • When can I put my son in a forward facing car seat?? is it actually age or adjusted age? He is 13 months (11 adjusted) and he looks silly in his infant car seat because he is 20 plus pounds now. He has ...

Sternomastoid Torticollis

  • By shixson · Posted April 21, 2010
  • Discussion in Bones, Joints and Muscles · 0 replies
  • I went to my sons 2 month appt. for a well baby check up and because i was concerned that he had a stiff neck and always had his head tilted to the right. They told me he had Sternomastoid Torticollis ...

Behavior when tired or stressed

  • By PinkyLee1 · Posted May 8, 2010
  • Discussion in Preemie · 2 replies
  • Hi all, My daughter has torticollis and before getting a helmet for plagiocephaly for three months, preferred to turn her head to the right. After the treatment she has full range of movement. I have ...

Breech Baby / C-Section / Pneumothorax / Torticollis related to CP?

  • By luzer · Posted June 21, 2010
  • Discussion in Cerebral Palsy · 1 reply
  • hi i am the proud father of a 22-month boy with mild CP. he has seen dozens of doctors/tests, including a head/neck MRI - to confirm the CP diagnoses, find a cause etc. the MRI was "normal", so we are ...

HELP, I getting worried

  • By nicumomof27weeker · Posted October 21, 2011
  • Discussion in Preemie · 3 replies
  • My LO was a 27 weeker who is now 13/10 months. She had seemed to be doing great but I cant stop worrying. She will not crawl, she will not get on all 4s.She will hold her self up with her arms. If I put ...


  • By mila25 · Posted December 31, 2012
  • Journal entry · 1 reply
  • I am most intrigued by the posts I am reading with children who suffer from PFAPA and fathers with Torticollis that are of UK descent. My son has been suffering with PFAPA for over 10 years now. My husband ...

sitting - for small kids (maybe cp, or delayed, or hypotonic)

  • By rutiphysio · Posted December 22, 2013
  • Journal entry · 4 replies
  • hi nariman! that's your discussion.... you just changed your picture of dear Omar, and already (compared to the older picture, his sitting improved: got better trunk control, you write he can keep himslf ...

muscle tone

  • By Noahs · Posted August 17, 2009
  • Discussion in Preemie · 17 replies
  • I am new to the support group. I recently brought my son Noah home from the NICU. He as born at 28 weeks gestational. It was completely unexpected. He spent 83 days in the NICU. He suffered breathing ...

Favouring one side of his head

  • By dominique19731 · Posted December 23, 2010
  • Discussion in Preemie · 12 replies
  • Hello Everyone !! My son was born at 24 weeks and is now 1 month corrected. Everything seems to be going well, except that he really favours the right side of his head, when sleeping, or sitting in his ...


  • By IansMommy · Posted January 29, 2009
  • Discussion in Preemie · 12 replies
  • I'm convinced myself my son has Plagiocephaly or a misshaped head. It's very noticeable with a mirror. We always reposition him when he sleeps and it hasn't gotten worst, but hasn't gotten better. What ...

long, frustrating day

  • By sshuckhart · Posted September 10, 2008
  • Discussion in Preemie · 3 replies
  • The kids had 2 appointments each in Sioux Falls yesterday. We thought we'd be in and out fairly quickly-they had appts with their pulminologist and then NICU follow up appts. Well, they decided to do ...

**** UPDATE**** Reglan - To use, or not to use... HELP!?!?

  • By EJandMAsMommy · Posted July 4, 2010
  • Discussion in Preemie · 25 replies
  • First, let me preface... I'm well aware of the controversy surrounding the use of Reglan. I've been outspoken, even on here, in the past regarding the dangers of the drug, so I'm not looking for information ...

HELP! flat head syndrome!

  • By Kaydencesmomma · Posted December 19, 2012
  • Discussion in Preemie · 15 replies
  • Hey guys I just got back from kaydences doctors appointment and I am now going to have to go to a specialist for her flat spot on the side of her head. Has anyone else had this problem with their preemies ...

Need Answers! Scared and Confused.

  • By Whiteivy · Posted April 5, 2009
  • Discussion in Preemie · 5 replies
  • My little boy is no 5 months old , correctivly he is about 10 weeks old. I have so many questions and I am so scared. He is constantly turning his head to the left, never to the right. Whenever I pick ...

Baby's Flat Head - cosmetic or cause for concern?

  • By wongson · Posted March 23, 2010
  • Discussion in Living After Infertility Resolution · 10 replies
  • Hi all again! One of my 4 1/2 month old twins has a noticeably flat head, mainly because up until 1 1/2 months, he slept in his car seat because of bad gas. At our 4 month ped appointment, our doctor ...


  • By ladies · Posted March 10, 2007
  • Discussion in Preemie · 4 replies
  • Our 5 month (Today) daughter (Baby Twin A) corrected 3 1/2 month, 34 weeker has plagiocephaly and tortocollis. She went to see a craniofacial specialist yesterday and he left the decision of helmet therapy ...

turning head to the left mostly

  • By majak · Posted January 7, 2009
  • Discussion in Preemie · 20 replies
  • hi my son tend to turn his had do the left mostly even in the TT he is more in the left ,he does turn right but not as often,I try to position him differently but he prefer this one side,are there any ...

My son dosn't always respond to his name

  • By mommyinneed · Posted June 13, 2009
  • Discussion in Preemie · 11 replies
  • He's a year now and he dosen't always respond to his name. he Was evaluated by E/I and she told me that he's not autistic and no cp either. sometimes he looks right at me like what now mom, but other ...

Should I be worried?

  • By gerbies · Posted May 19, 2010
  • Discussion in Preemie · 6 replies
  • We had our 4-month wellness check and vaccines for my son (he was born at 30 weeks). My pediatrician referred us for PT because she thinks my son might be favoring one side of his neck and may need some ...

Left hand dominant!

  • By feliflew · Posted February 4, 2011
  • Discussion in Preemie · 15 replies
  • I have a preemie born at 32 weeks, 4 days at 3lbs, 4 ounces. After 3 weeks in the NICU, she has been thriving and growing as she should. She is now 5 months, 3 months adjusted and weighs close to 13 pounds ...

Flat Head

  • By JenniferMisk · Posted September 2, 2011
  • Discussion in Preemie · 9 replies
  • What, if anything, did you do to reverse "flat head syndrome"? I mean other then the helmets. I know we are most likely headed in that direction but I have also looked at a ton of products on the market ...

early intervention? new to this!!

  • By cathyd173bx · Posted July 1, 2012
  • Discussion in Preemie · 11 replies
  • Charlize is 3 Mons(0 corrected) shes still in the nicu because of her shunts being changed and her feeds are slowly increasing.Ive asked the social worker about early intervention,going home care, etc..and ...

Worried about signs of cerebral palsy

  • By AQ · Posted March 18, 2013
  • Discussion in Preemie · 10 replies
  • My grandson was born 30 weeks, 2 days, spent 56 pretty uneventful days in the NICU, and is now 3 months adjusted. He is 13 lbs, eats well, is beginning to sleep through the night, and smiles at almost ...

CP toddler with head tilt

  • By Ajohnson6918 · Posted October 30, 2013
  • Discussion in Cerebral Palsy · 14 replies
  • My son is 20 months and has mild CP. He's been doing great (still trying to work on his sitting and crawling). However, I noticed that his head tilts back almost constantly. It's not permanent as I can ...

Evaluation for Early Intervention

  • By LucasMom1 · Posted March 7, 2008
  • Discussion in Preemie · 10 replies
  • My son's is being evaluated for Wednesday by Early Intervention and I was wondering what to expect. How do ya'll like therapy and is your child responding well ...

Help with developmental activities

  • By joja · Posted August 1, 2008
  • Discussion in Preemie · 6 replies
  • My 27-weeker is now 4 months actual, 1 month adjusted. Right now, I am taking care of her alone as my entire family, including my husband, all live out of state. Because I'm on my own, I find myself running ...

Do all micro-preemies end up in PT/OT?

t-chan (Inactive)
  • By t-chan (Inactive) · Posted August 6, 2008
  • Discussion in Preemie · 24 replies
  • Most of the time I hear about everyones micro-preemies having had to go through some sort of therapy or another, but the city welfare worker here in Tokyo told me that therapy would be done through the ...

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