Search results for Ostomy


  • By dontgetanyonya · Posted November 15, 2013
  • Discussion in Ostomy · 16 replies
  • There isn't much about caring for our ostomies that is particularly earth friendly. Let's face it... plastic bags full of poop are not of much use down at the recycling center. Have you found a way of ...

Life With My Ostomy--For Better Or For Worse

  • By jasta · Posted August 12, 2010
  • Journal entry · 23 replies
  • Since my two year journey, I have had many ups and downs. When I decided to go for the rc, my surgeon encouraged me to get a 2nd opinion. He gave me 2 options for surgery, the Neobladder and the Urostomy ...

new ostomy

  • By chris082 · Posted August 16, 2012
  • Journal entry · 7 replies
  • It has been 4 weeks today since I had my colostomy. After being critically ill in January 2012 w/ a rare autoimmune disease that caused a lack of blood flow to the colon I developed a stricture in the ...

My Ostomy Bag Now Has a Name!

  • By ageml · Posted October 3, 2013
  • Journal entry · 37 replies
  • What's in a name? it's not always plain to see, But everything has one from a family to a tree; With but one exception and it really is a shame, My ostomy bag was born without a name. And so I sit here ...

Ostomy support belt.

  • By candacepoet · Posted March 30, 2013
  • Journal entry · 8 replies
  • I've been having trouble with leaking from my new ostomy, which is flush and needs not just a convex barrier, but the use of the Adapt 7805 ring to build it up. I saw my ostomy nurse, who got me started ...

Ostomy Patient Visitor Program Certification

  • By franinlv · Posted August 6, 2013
  • Journal entry · 4 replies
  • I encourage all of the support groups out there to continue to run this worthwhile educational program for their support group members. To have a good number of certified Ostomy Patient Visitors is a ...

What you wish your ostomy nurse knew about you??

  • By Joannajoy · Posted March 2, 2013
  • Discussion in Ostomy · 62 replies
  • Dear Friends, I am hoping that you will help me. Many of you know my story as an ostomy patient (since the age of three and then again at 29) and as an ostomy nurse. I see myself in the unique situation ...

What was the biggest obsticle you had to face after your ostomy surgery?

  • By COLJustinBlum · Posted May 1, 2011
  • Discussion in Ostomy · 79 replies
  • This is a post for experienced ostomates to assist/provide guidance to those who just received their ostomy. In addition, if a new ostomate is experiencing a similiar obsticle, please comment as to how ...


dollyme (Inactive)
  • By dollyme (Inactive) · Posted August 7, 2012
  • Discussion in Ostomy · 59 replies
  • I am glad and hope this helps people understand what an ostomy is. I had some general knowledge about an ostomy because I have a cousin who had a colostomy for over 40 years. She was very open about and ...

How do you tell someone you have an Ostomy?(Dating)

  • By neshama49 · Posted July 29, 2012
  • Journal entry · 14 replies
  • I looking to get back out there in the dating world. When do you tell someone you are dating when you have an ostomy ...

Ostomy History Inquiry

  • By KayakJan · Posted April 19, 2013
  • Discussion in Ostomy · 18 replies
  • I have an unusual thought process sometimes. I was in the shower thinking about discussions and thought about how we all complain about our ostomy products and issues. What were things like 20, 25 or ...

Do you wear an ostomy belt?

  • By Softy · Posted March 16, 2013
  • Discussion in Ostomy · 51 replies
  • Hi Everyone, I was wondering if you guys wear an ostomy belt and how well they work. Are they meant to help support your stoma or the pouch as it fills to extend the life of the wafer? My stoma was flat ...

My Ostomy Seal System

  • By PatentAttorney · Posted June 28, 2011
  • Journal entry · 7 replies
  • I use an Eakin® seal in combination with a convex barrier seal in a two-piece barrier-bag system that greatly increase the integrity and life of a seal around my stoma. An Eakin® seal is a pliable pectin ...

World Ostomy Day

  • By lilymyiley · Posted October 6, 2012
  • Journal entry · 2 replies
  • Today, October 6, 2012, is world ostomy day. I never thought I would ever need to know this or even care! May 14, 2012 I became an ostomate and now care deeply about my ostomy peers and public education ...

ostomy wraps for ladies...ive tested them

  • By survived2000 · Posted July 25, 2013
  • Journal entry · 7 replies
  • ok, so I posted about swimming with an ostomy. I already purchased two "ostomy wraps" for everyday. These are secure, and hold everything in place, bonus...WATERPROOF. The swim ones are. The everyday ...

Stand your ground on ostomy supply insurance!

  • By candacepoet · Posted December 21, 2013
  • Journal entry · 15 replies
  • Yesterday I finally resolved a week old order with Edgepark. A week ago my automated order came up and I approved it, then got an email saying that there was a problem with it. Called Edgepark, and was ...

OSTOMY HUMOR: The Captains Shoe....

  • By stevelaymanaa · Posted January 24, 2014
  • Journal entry · 20 replies
  • I posted this story in a thread, but thought it deserved a repeat.... I was preparing for a flight one day in our Operations area. I stopped in the bathroom to empty "Puffy" (my ostomy), and it SLIPPED ...

swimming with an ostomy

  • By cak79 · Posted February 27, 2011
  • Discussion in Ostomy · 68 replies
  • I was told that swimming would create problems with the seal of the pouch. I want to enroll my son in swim lessons, however I this would mean I would have to be in the pool waist deep or more. Has anyone ...

Teenager with an Ostomy

  • By cb11 · Posted August 3, 2013
  • Discussion in Ostomy · 12 replies
  • I'm 17 years old and have an ostomy. I'm planning on getting my J Pouch within the next year or so. I have told myself to try to live my life as close to as I had lived it when healthy. A part of that ...

Elective ostomy

  • By daisy1234 · Posted February 14, 2014
  • Discussion in Ostomy · 27 replies
  • I have crohns' disease, and am contemplating having an elective ostomy. My last resection was two and a half years ago, and I haven't been right since then. I am in a great deal of pain, the pain is in ...

Ostomy Wear

  • By bbeachlover · Posted February 5, 2013
  • Discussion in Ostomy · 33 replies
  • I just recently had a temp iliestomy in early January and am starting to get out and wear regular clothes again - instead of sweats and pajamas. I was looking at some of the wraps from Ostomy Secrets ...

Forming an Ostomy Support Group

  • By FiddlerTom · Posted September 7, 2013
  • Discussion in Ostomy · 25 replies
  • My city, Jackson, Mississippi, has no ostomy support group. My urologist told me that there was once a support group at a local hospital. but it died for lack of interest. This town needs a support group ...

Benefit of special Ostomy Underwear?

  • By CincinnatiMermaid · Posted January 30, 2014
  • Discussion in Ostomy · 27 replies
  • I had my wet colostomy (colo+uro=one stoma for both) in August and while I got help choosing pouches & such, nobody mentioned ostomy underwear. But I did recently buy a half-dozen pairs through my medical ...

Dating and Ostomy

  • By everydayJo · Posted March 5, 2014
  • Discussion in Ostomy · 23 replies
  • I don't know how to explain how I was before it wasn't quite vain, I didn't show off or take selfies in the mirror to show the world like every other young D bag nowadays. But, I worked out often and ...

A winning ostomy solution for this Triathelete

  • By RandyHenniger · Posted June 28, 2012
  • Journal entry · 10 replies
  • A few weeks ago, Bo sent a private message asking for help finding an ostomy product solution that would stand up to the extreme physical demands of a triathlon. Here is a part of his blog from a race ...

Ostomy Education Day

  • By lilymyiley · Posted October 28, 2012
  • Journal entry · 2 replies
  • Yesterday, October 27th, was the annual Ostomy Education Day presented by the Ostomy Care and Supply Centre in New Westminster. This is where I get all my supplies and see the WOCN nurses. Every year ...

Diaper Genie for ostomy bag disposal??

  • By survived2000 · Posted May 30, 2013
  • Journal entry · 17 replies
  • So I am planning for surgery. Does anyone use a "diaper genie" for their ostomy bag disposal? Is there anything else out there anyone has found super convenient? I would luv to hear if anyone has had ...

Webinar - Ostomy and G-Tube Care Basics

  • By lilpeeps · Posted November 11, 2013
  • Journal entry · 4 replies
  • I always like to share educational events with the group - ThriveRx is having a Webinar this Thursday 11-14 @ noon est. Join us for a review of basic ostomy and G-tube care. Topics include: different ...

need new ostomy provider

  • By Janice1955 · Posted July 16, 2011
  • Discussion in Ostomy · 27 replies
  • I have been searching and cannot seem to find a source for my supplies, where the will accept medicade and medicare and will bill them. Right now I go through a group thats part of 6 hospitals, and hundreds ...

Doctors and Ostomy Nurses

  • By Hleefox · Posted June 24, 2011
  • Discussion in Ostomy · 6 replies
  • I am new here but have read a lot of posts and replies. One thing that bothers me is that most people talk about discussing problems with their family doctor or surgeon. For the most part, family doctors ...

Intimacy with ostomy

  • By dartmesmith · Posted February 28, 2012
  • Discussion in Ostomy · 22 replies
  • How do you regain a normal relationship again with your spouse after ostomy surgery? I had my surgery in July 2011 and still do not share a bed with my hubby. Have tried sex twice and it was uncomfortable ...

New resource available for Ostomy Support Group members!

  • By TeamInspire · Posted June 6, 2012
  • Discussion in Ostomy · 20 replies
  • This message is being posted on behalf of ConvaTec - who in partnership with the Crohn's & Colitis Foundation (CCFA), the United Ostomy Associations of America, Inc. (UOAA), the Intestinal Disease Education ...

Ostomy Pouch Will Not Stay On

  • By Tacatcon · Posted March 15, 2013
  • Discussion in Oley Foundation · 12 replies
  • So I know this is a little OT but I figure alot of you are dealing with an ileostomy or similar too. My daughter had an ileostomy on 1/31 (not planned, had to have emergency surgery and the decision was ...

Considering an ostomy

  • By kavita · Posted September 16, 2013
  • Discussion in Ostomy · 15 replies
  • Hello I have PDF and colonic inertia and I have suffered for 58 years. I am now in biofeedback but it is not working for my PDF, and for my inertia I have taken everything under the sun. I am going to ...

Bowel sounds from my new ostomy

  • By Quadmomoftwins · Posted March 16, 2014
  • Discussion in Ostomy · 23 replies
  • I have had my ostomy for 5 days now. I'm completely overwhelmed and intimidated. The farting and pooping sounds are so loud. I'm embarrassed, my daughters who are 7 are laughing. Every time the nurses ...

Ostomy Humor

  • By COLJustinBlum · Posted July 23, 2011
  • Discussion in Ostomy · 44 replies
  • Humor is what helped me tremendously transition from my life prior to having an ostomy to life as an ostomate. If we have had a colostomy or illeostomy for 6 months or longer, I am sure we have thought ...


  • By sunshynseeker · Posted December 26, 2011
  • Discussion in AGMD GI Motility Disorders · 4 replies
  • Hello, If you have had an ostomy, I would like to hear from you. I've had chronic bowel obstructions for the last three years. I've had two surgeries to lyse adhesions, but the obstructions came back ...

ostomy nurse

  • By gap43 · Posted October 9, 2012
  • Discussion in Bladder Cancer Advocacy Network · 39 replies
  • We live in The villages in Fl. I've asked everyone thats worked with us. No one can tell us how to get ahold a ostomy nurse if I have to problems. Or even a help group ...

Ostomy Education

  • By djcwiley · Posted April 8, 2013
  • Discussion in Ostomy · 10 replies
  • It's been 7 years since my first surgery and had a protocolectomy on 2/27/2012 and this also repositioned my stoma. I was at Northwestern University Hospital, a highly reputable hospital so you would ...

Successful Life after ostomy

  • By franinlv · Posted August 19, 2013
  • Discussion in Ostomy · 14 replies
  • Hi all: I'm working on a flyer as encouragement to new ostomates that life can be ok after the ostomy surgeyr. I'm looking for photos and or comments from people who have continued to do the things they ...

Ostomy AND rectum and anus removal???

  • By Leene · Posted February 12, 2014
  • Discussion in Ostomy · 58 replies
  • Hi, my friends. For the last month or so I've been talking to surgeons to get their opinions on having an ostomy and to choose the surgeon I want to use. Today was my last appt with the head of the Colorectal ...

Home After Ostomy Surgery

  • By Leene · Posted March 15, 2014
  • Discussion in Ostomy · 34 replies
  • Hi Friends! Had ostomy surgery on Monday at U of M Hospital and came home yesterday afternoon. U of M is a wonderful hospital and there's not enough praise to give all the people who work there. Was told ...

ostomy nurse/hospital appliances preferrence

akharper (Inactive)
  • By akharper (Inactive) · Posted April 2, 2012
  • Discussion in Bladder Cancer Advocacy Network · 7 replies
  • Does anyone know if hospitals/ostomy clinics receive financial compensation for recommending one brand of ostomy appliance over another? Possibly I am wrong but I noticed that at the Mayo Clinic where ...

Cruises & Ostomies

  • By Blondiezach · Posted June 12, 2013
  • Discussion in Ostomy · 21 replies
  • Long before my ordeal started, my husband and I booked a Disney cruise. Has anyone been on a cruise vacation with an ostomy? I just wonder if anyone has any experiences they can share ...

ostomy bag

  • By rileysmom · Posted October 21, 2007
  • Discussion in AGMD GI Motility Disorders · 5 replies
  • My daughter's doctor is talking about an ileostomy bag. She is still an infant but I am worried about her growing up like a normal kid. Anyone out there living with an ostomy bag? How do you manage? Am ...

Suggestions to ostomy companies

  • By balihigh · Posted March 8, 2012
  • Discussion in Bladder Cancer Advocacy Network · 55 replies
  • A while back there was a post about making suggestions to the ostomy companies to help them improve their products. Joannajoy said she had contact with them since she is an ostomy nurse and has 2 ostomies ...

My history with UC and my ostomy.

  • By igeorge923 · Posted July 5, 2013
  • Discussion in Ostomy · 6 replies
  • So i thought I would share my story (as briefly as i can) and hopefully it will be encouraging to any one who finds themselves in a similar situation. So i was diagnosed with ulcerative colitis the fall ...

Ostomy problem

  • By Maer · Posted January 27, 2012
  • Discussion in Ostomy · 22 replies
  • Before I began wearing an ostomy bag, I wore long nylon underwear in the winter to keep warm. I can no longer do that because of the location of the bag. Does anyone have any suggestions ...

Golfing with Ostomy

  • By barmar · Posted March 23, 2013
  • Discussion in Ostomy · 18 replies
  • I have just had Ostomy surgery 6 weeks ago and I am concerned about being able to play golf with the pouch. Can anyone give me some advice? Thanks ...

new to the ostomy products/life style

  • By kccolema · Posted April 5, 2014
  • Discussion in Ostomy · 9 replies
  • My mother just got her surgery on 3-4-14 and now is with a permanent ostomy . I have read with much interest several different comments about problems and helpful hints in situations. I would appreciate ...

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