Search results for Down syndrome

i tested possitive for down syndrome

godsblessing
  • By godsblessing · Posted March 20, 2010
  • Journal entry · 13 replies
  • So yesterday I got a call from my obs office saying that the quad screan tested possitive for down syndrom. It has me so worried cause I'm only 18 almost 19 and my husband is out training for the marines ...

positive for down syndrome

suley17
  • By suley17 · Posted April 12, 2010
  • Journal entry · 12 replies
  • my dr. just called me to let me know my test came back positive for down syndrome the risk is 1 in 57 im still waiting to get the level 2 ultrasound hopefully everything goes good im very worried ...

Down Syndrome Test

Shannonle03
  • By Shannonle03 · Posted April 22, 2009
  • Discussion in Preemie · 21 replies
  • Hi I am new on here. I am 16 weeks and my doctor called and said that my down syndrome test came back postive. I am about to go crazy this is the first time i have had this happen to me I have 3 health ...

27 weeker with Down Syndrome

LoganandCameronsMom
  • By LoganandCameronsMom · Posted July 23, 2010
  • Discussion in Preemie · 7 replies
  • My little man was born at 27 weeks and has down syndrome. He is currently 131 days old and is stil in the NICU. He has chronic lung disease and is receiving steroids. He also has a g tube because he struggles ...

Down Syndrome and EDS

Misssmif
  • By Misssmif · Posted June 6, 2012
  • Discussion in Ehlers-Danlos National Foundation · 9 replies
  • My daughter has Down Syndrome and EDS, plus my mom has EDS, and I am undiagnosed but pretty sure of it. I have two older children with all of the signs of EDS. Does anyone by chance have a history of ...

false positive for down syndrome test?

joyjoyjoy
  • By joyjoyjoy · Posted December 30, 2008
  • Discussion in Preemie · 43 replies
  • has anyone ever had a false reading for the down syndrome test that they do when your pregnant? my doc says mine came back positive but could be a 60 % chance its wrong. iam so worried ...

Positive test for Down syndrome

MommyJT
  • By MommyJT · Posted January 8, 2009
  • Discussion in Preemie · 19 replies
  • I am 28 years old and 4 months pregnant. My doctor just called and said my blood test aka screening came back positive for down syndrome. They are now referring me to do an amnio, which I am against because ...

Down syndrome child

Miss_riya
  • By Miss_riya · Posted September 22, 2012
  • Discussion in Preemie · 3 replies
  • My son is 1 yr & 5 months old. He is having down syndrome features. Of course it is mild but still i am having lots of tension for it. He is only 6.9 kg weight at this age. Please give me some suggestion ...

False positive for down syndrome?

Jessi101088
  • By Jessi101088 · Posted January 29, 2009
  • Discussion in Preemie · 10 replies
  • Today i got the worse news that i could ever get. I got the call from my DR. saying that i had got a positive on the blood test (Maternal Serum Screening) they had done to see if i would have a chance ...

new parent of baby born with down syndrome

bsoo
  • By bsoo · Posted April 16, 2010
  • Discussion in My Child Without Limits and Brave Kids · 4 replies
  • I was surprised to learn my newborn has down syndrome, and I was just trying to find some support in coping with all my overwhelming feelings ...

Dealing with down syndrome

tay_18
  • By tay_18 · Posted November 17, 2008
  • Discussion in Pregnancy & Parenting · 4 replies
  • I'm 6 months pregnant and the doctors say that my baby might have down syndrome. They want to do an amnioscentisis (I think thats how you spell it) to check and see but I dont know if I should let them ...

Down Syndrome

npf-10173 (Inactive)
  • By npf-10173 (Inactive) · Posted June 27, 2008
  • Discussion in TalkPsoriasis · 2 replies
  • ** Originally posted by debimay ** hi there, this is my first post, so some background: i am 51 years old, dealing with P for the last 25 years. my youngest son is 7 years old and he has down syndrome ...

I was told my baby has a 1/260 chance of baby having Down Syndrome

mama-erin
  • By mama-erin · Posted May 19, 2009
  • Discussion in Pregnancy & Parenting · 7 replies
  • Yesterday I get a call on my cell at work, it was my doctor telling me the results of my 16wk lab draw from last wed. Says everything came back fine except that I was increased risk for my baby having ...

DOWN SYNDROME AND HOW IT IMPACTS THE FAMILY

Ogbuja
  • By Ogbuja · Posted November 19, 2010
  • Journal entry · 1 reply
  • Facts about Down syndrome! The first physician to identify genetic chromosomal basis of Down syndrome was a British Physician, John Langdon Down. Langdon Down was named after this syndrome because he ...

"Building Bridges for Down Syndrome” 4th Biennial Research & Awareness Co

KristyColvin
  • By KristyColvin · Posted June 12, 2009
  • Discussion in Down Syndrome Exchange · 2 replies
  • June 10, 2009 - Parents of children with Down syndrome (DS) are universally concerned about the wellbeing of their child’s health, future, and ability to connect with other DS families. The Down Syndrome ...

child born with downs

carterdane
  • By carterdane · Posted April 4, 2009
  • Discussion in My Child Without Limits and Brave Kids · 5 replies
  • Just found out on Friday that are 2wk old son Carter has tested positive for down syndrome . We are parents of 3 other healthy boys 19,11, and one, so this is a huge transition for our family and we were ...

DOWN SYDROME TEST....CONFUSION

AVLW
  • By AVLW · Posted February 7, 2011
  • Discussion in Preemie · 29 replies
  • SO AT 11 WEEKS PREGNANT I DID THE SCREENINGS FOR DOWN SYNDROME, ULTRA SOUND AND BLOOD WORK. EVERYTHING CAME OUT WONDERFUL AND MY ODDS WERE 1 IN 10,000. THIS WAS GREAT NEWS OBVIOUSLY. SO I WENT BACK THIS ...

expecting a child with down syndrome

teachk20
  • By teachk20 · Posted June 22, 2009
  • Discussion in Pregnancy & Parenting · 3 replies
  • We are expecting in late August and this is our first. Our child has been diagnosed with Down Syndrome after an amnio. He also has two congenital heart disorders. We know we will love our baby boy so ...

Downs Syndrome

jamied1
  • By jamied1 · Posted November 30, 2007
  • Discussion in Preemie · 1 reply
  • Can anyone who has good educational websites or books about downs please pass that along? I have a co worker who has a niece born last week 9 weeks early and she is believed to have downs. I have been ...

1:5 chance of Down Syndrome and 1:9 Trisomy 18

angelgrayson
  • By angelgrayson · Posted May 28, 2011
  • Discussion in Pregnancy & Parenting · 6 replies
  • I lost my first pregnancy at 25wks due to premature rupture of membranes and the cause has never been determined. Now, after 3 years of trying, I'm 13 wks pregnant and have been told by my dr that I have ...

The Mysterys Of Down Syndrome

quiact
  • By quiact · Posted March 4, 2009
  • Journal entry · 0 replies
  • Down syndrome is one of about twelve identified chromosomal disorders- some of which are caused by additional chromosome, in whole or in part. With Down syndrome, that extra chromosome is added to the ...

End the "R" Word....

jenbait
  • By jenbait · Posted March 26, 2009
  • Journal entry · 6 replies
  • There is, perhaps, a day for everything, every cause, disease, condition or celebration we can consider. This year, March 31, 2009 is particularly close to my heart. The story begins here: http://www.youtube.com/watch?v=PGvppz_OZ ...

Cat's Cry Syndrome

seminolesr4ever
  • By seminolesr4ever · Posted May 1, 2010
  • Journal entry · 5 replies
  • MY name is Rebecca and my niece has cats cry syndrome.It is in the same family as down syndrome/Autism.Is there anyone who knows more about it so I can learn more.Maybe I can be more helpful to her and ...

Modeling and Disability

mel106
  • By mel106 · Posted August 25, 2012
  • Journal entry · 13 replies
  • A fellow blogger and parent of a child who is disabled commented on a post of mine on Facebook regarding a little girl who has Down Syndrome that was chosen to be the main model for a swimsuit designer ...

4th Down Syndrome Biennial Research & Awareness Conference

KristyColvin
  • By KristyColvin · Posted June 13, 2009
  • Discussion in Pregnancy & Parenting · 0 replies
  • June 10, 2009 - Parents of children with Down syndrome (DS) are universally concerned about the wellbeing of their child’s health, future, and ability to connect with other DS families. The Down Syndrome ...

4th Biennial Down Syndrome Research & Awareness Conference

KristyColvin
  • By KristyColvin · Posted June 13, 2009
  • Discussion in Health News · 0 replies
  • Jun. 10, 09 Contact: Kristy Colvin IMDSA President Web: www.imdsa.org Toll free: 1-888-MDS-LINK email: President@imdsa.org Parents of children with Down syndrome (DS) are universally concerned about the ...

4th Biennial Down Syndrome Research & Awareness Conference 2009

KristyColvin
  • By KristyColvin · Posted June 13, 2009
  • Discussion in Children's Health · 0 replies
  • For Immediate Release: Franklin, TX Parents of children with Down syndrome (DS) are universally concerned about the wellbeing of their child’s health, development, future, and connecting with other DS ...

4th Biennial Down Syndrome Research & Awareness Conference 2009

KristyColvin
  • By KristyColvin · Posted June 13, 2009
  • Discussion in Genetics and Birth Defects · 0 replies
  • For Immediate Release: Franklin, TX Parents of children with Down syndrome (DS) are universally concerned about the wellbeing of their child’s health, development, future, and connecting with other DS ...

4th Biennial Down Syndrome Research & Awareness Conference 2009

KristyColvin
  • By KristyColvin · Posted June 13, 2009
  • Discussion in Parents of Children with Disabilities · 0 replies
  • Parents of children with Down syndrome (DS) are universally concerned about the wellbeing of their child’s health, development, future, and connecting with other DS families. The Down Syndrome Association ...

4th Biennial Down Syndrome Research & Awareness Conference 2009

KristyColvin
  • By KristyColvin · Posted June 13, 2009
  • Discussion in Developmental Disabilities · 0 replies
  • Parents of children with Down syndrome (DS) are universally concerned about the wellbeing of their child’s health, development, future, and connecting with other DS families. The Down Syndrome Association ...

Isaac's Syndrome

Griff
  • By Griff · Posted July 18, 2010
  • Discussion in Genetic Alliance · 23 replies
  • Isaac's Syndrome goes by many names such as Cramp Fasciculation Syndrome (CFS), Peripheral Nerve Hyperexcitability (PNH), and Neuromyotonia just to name a few. The symptoms are all the same, severe muscle ...

Problems with 2nd prego

angelgrayson
  • By angelgrayson · Posted May 28, 2011
  • Discussion in Preemie · 21 replies
  • I lost my first pregnancy at 25wks due to premature rupture of membranes and the cause has never been determined. Now, after 3 years of trying, I'm 13 wks pregnant and have been told by my dr that I have ...

Fetal abnormalities?

bunbuns1
  • By bunbuns1 · Posted February 29, 2012
  • Journal entry · 3 replies
  • Hello , I am wondering if anyone else on here who has kids was ever told around mid pregnancy ultra sound that their baby had dilated kidneys? IF yes Was your baby diagnosed with NF after they were born ...

Harlequin Syndrome

BRAY
  • By BRAY · Posted June 2, 2011
  • Discussion in Genetic Alliance · 7 replies
  • Sudden onset of asymmetrical flushing on left sign of face with increased sweating. Seems to be exercise induced following walk/run but also flairs up when working in yard on hot day. Right side of face ...

DS

sophiam
  • By sophiam · Posted July 1, 2011
  • Discussion in Preemie · 10 replies
  • I had a screening for down syndrome and it came back I was at risk 1 to 10 chance of having a baby with down syndrome, I followed with an ultrasoung and the firt ultrasound they said the baby looked fine ...

Happy Mothers Day to all the special needs Moms (and dads) out there!

writer1
  • By writer1 · Posted May 2, 2011
  • Journal entry · 7 replies
  • Spotted this on a yahoo website and enjoyed it so much I thought I'd share it! Top Reasons Moms of Kids With Special Needs ROCK 1. Because doctors have told us the worst, and we've refused to believe ...

Short Long Bones

Alyssa1992
  • By Alyssa1992 · Posted August 2, 2012
  • Discussion in Preemie · 10 replies
  • Yesterday I had my first appointment with a specialist. I am 19 years old and 18 weeks 5 days pregnant with a baby boy. They said his long bones (upper and lower arm and leg), spine, and lower jaw were ...

all kinds of problems with prego #2

angelgrayson
  • By angelgrayson · Posted June 3, 2011
  • Discussion in Living After Infertility Resolution · 7 replies
  • 3 years ago I had ruptured membranes at 25wks and delivered my baby boy. We spent 10 weeks in the hospital before he died from complications. Since that, I had tried to get pregnant again, and finally ...

Fragile X syndrome

EmilySO
  • By EmilySO · Posted September 20, 2012
  • Discussion in Ehlers-Danlos National Foundation · 4 replies
  • Just came across this completely by accident, and I thought it was really interesting how the physical manifestations of this syndrome are some of the same with EDS! http://www.ncbi.nlm.nih.gov/pubmedhealth ...

Why can't I treat just one aspect of my child's condition?

healthinmotion
  • By healthinmotion · Posted July 5, 2012
  • Journal entry · 20 replies
  • Whether a child has Down syndrome, cerebral palsy, acquired brain injury or stroke, every child is unique and has his own individual strengths and needs. While his symptoms may be similar to those generally ...

positive downs sysdrome test results

jessica27 (Inactive)
  • By jessica27 (Inactive) · Posted July 6, 2009
  • Discussion in Preemie · 8 replies
  • ok i was 16 weeks when i had the test done and just got work back at 23 weeks (becuase i am military we moved) that my baby tested positive for downs how accurate is this test because i have been reading ...

Group Involvement

GiuliaMaria
  • By GiuliaMaria · Posted September 23, 2008
  • Discussion in Health News · 3 replies
  • Our local Down syndrome group is trying to put together a number of educational meetings for our members. We have attempted this many times in the past and have had very minimal interest. We are planning ...

Concerned Grandma

smithtm
  • By smithtm · Posted May 6, 2009
  • Discussion in Pregnancy & Parenting · 8 replies
  • My daughter is 22 weeks pregnant with her first child. She has had four ultrasounds and at the last appointment they explained that there is a possibility that the baby could be at risk for Down Syndrome ...

preemie/ds

LaForest
  • By LaForest · Posted November 15, 2010
  • Discussion in Down Syndrome Exchange · 2 replies
  • I am very concerned my grand daughter was diagnosed with down syndrome.she was born 5 wks early.she is 1and 1/2 months old now.she is very small.when will some signs show up?that is the only child my ...

Secondary Pulmonary Hypertension

kmoseley01
  • By kmoseley01 · Posted November 10, 2012
  • Discussion in Preemie · 2 replies
  • Hello everyone...I need help. My daughter is 7 months old...born at 28 weeks. She has only been home for two weeks...spent first 6 months in NICU and PICU. She was born, unknown to us, with down syndrome ...

Heart Defect/Down Syndrome

Kosisochukwu
  • By Kosisochukwu · Posted January 18, 2013
  • Discussion in My Child Without Limits and Brave Kids · 6 replies
  • My child is one year old and diagnosed to have AVHD and need surgery for its correction. The health facility in Nigeria has not the required equipment and manpower to carry out the surgery. We need urgent ...

When local resources just are not available

DebbieF
  • By DebbieF · Posted June 28, 2009
  • Discussion in My Child Without Limits and Brave Kids · 3 replies
  • I could really use some opinions, advice for my son. I have a 7 year old with Down syndrome who has a lot of behavior issues. His communication skills are very limited. I work with him as much as I can ...

update on possible down syndrome child

Jessi101088
  • By Jessi101088 · Posted February 10, 2009
  • Discussion in Preemie · 5 replies
  • I had posted on here about 2 weeks ago about the call from the dr about my blood test. well i did the ultrasound and it looked normal and that took my chances from 1 in 12 to 1 in 32. which is very good ...

Preemie with Down syndrome

LoganandCameronsMom
  • By LoganandCameronsMom · Posted July 23, 2010
  • Discussion in Down Syndrome Exchange · 1 reply
  • My name is Candace and I have a little boy named Cameron who was born at 27 weeks and has down syndrome. He is still in the NICU. Does anyone else out there have a similar experience? Any one else have ...

Curcumin as an mTOR inhibitor?

asherraifsmom
  • By asherraifsmom · Posted February 3, 2013
  • Discussion in Tuberous Sclerosis Alliance · 5 replies
  • I thought I had posted about this in the past on here but i can't seem to find it. I knew in general that turmeric tended to have antitumor properties, and was used in the natural treatment of cancer ...

More results

Groups

More ...