Search results for Colchicine

Starting my daughter on colchicine for periodic fever syndrome

Charbs
  • By Charbs · Posted March 1, 2011
  • Journal entry · 6 replies
  • My name is Karen and I have a 7 year old daughter who was diagnosed with a periodic fever syndrome almost 2 years ago. She has gone through this since she was 8 months old. She is closest to the Hyper ...

Colchicine (Colcrys)

michele75043
  • By michele75043 · Posted December 15, 2011
  • Discussion in Ovarian Cancer National Alliance · 22 replies
  • I stumbled onto this. Looks very interesting. It's anti-angio and a spindle poison. Gout Drug Colchicine Proves a Cancer ICT2588 was so successful in destroying breast, prostrate and bowel cancers in ...

2 days without colchicine...

chantelr
  • By chantelr · Posted January 2, 2014
  • Journal entry · 4 replies
  • So December 30th I took the last of my colchicine. I didn't realize I was out. I called it in asap and of course we forgot about it but thought it was okay, the pharmacy etc. should be open at least a ...

Pericarditis: prednisone or colchicine, which is better?

CareALot
  • By CareALot · Posted May 13, 2010
  • Discussion in WomenHeart · 10 replies
  • Hello, Writing again on behalf of my Mom. So she's been diagnosed with pericarditis (though I am still not sure how they came to that conclusion!). After trying ibuprofen and then indomethacin (the latter ...

Anyone on Colchicine?

Suri_s
  • By Suri_s · Posted June 3, 2013
  • Discussion in Scleroderma Foundation · 7 replies
  • Hi I 've had scleroderma since 2009 but was only diagnosed last year. I'm still not sure what kind of scleroderma I have but the Dr says it is possible it is deep Morphea involving muscular fascia and ...

colchicine, Colcrys

hemetcalifornia
  • By hemetcalifornia · Posted November 7, 2013
  • Discussion in Pulmonary Fibrosis Foundation Patients · 5 replies
  • Has anybody had their Pulmonary Dr prescribe Colchicine, Colcrys? Listed under "other uses" Colchicine may be used in 2 ways. Most people take small amounts of it regularly for a long time (months or ...

Loving my new friend Colchicine

montanalife
  • By montanalife · Posted December 27, 2011
  • Discussion in TalkPsoriasis · 2 replies
  • My cardiologist put me on Colchicine for the Pericarditis I get with the psoriatic disease flare ups, and it's actually giving me some great relief. Can't believe it...this is the first thing that has ...

Colchicine?

nanner
  • By nanner · Posted January 19, 2008
  • Discussion in Stop Sarcoidosis · 1 reply
  • I saw my pulmonologist yesterday, and he is changing the medication regimen. Since I'm weaning off the oral prednisone (currently at 10 mg daily, down to 5 next week until it's gone), he wants me to do ...

(Colchicine) medication for psoriatic arthritis

npf-1574 (Inactive)
  • By npf-1574 (Inactive) · Posted February 26, 2009
  • Discussion in TalkPsoriasis · 2 replies
  • ** Originally posted by Tammy71 ** I have severe psoriatic arthrits . I haven't posted anything or even been to this website in about 5 years. Not, because I'm doing good and don't need to come here ...

Kids with FMF

Mary2
  • By Mary2 · Posted February 11, 2008
  • Journal entry · 13 replies
  • Hi everyone, I am a 29 year old mother with a 4 year old son with FMF (Familial Mediterranean Fever) . My husband and I both don’t suffer from FMF, but wish every single day that I had the disease instead ...

Does anyone know anything about Colchicine?

Blkjewelz8960
  • By Blkjewelz8960 · Posted May 21, 2009
  • Journal entry · 32 replies
  • My pulmonologist and I are looking at alternatives to prednisone. He stated he could put me on 0.6 mg of Colchine daily. Just wondering if anyone else has taken this med and if it was effective. Davina ...

Colchicine versus prednisone as treatment of usual interstitial pneumonia.

strong
  • By strong · Posted August 26, 2013
  • Journal entry · 0 replies
  • Colchicine versus prednisone as treatment of usual interstitial pneumonia. Douglas WW, Ryu JH, Bjoraker JA, Schroeder DR, Myers JL, Tazelaar HD, Swensen SJ, Scanlon PD, Peters SG, DeRemee RA. SourceDivision ...

Microtubule disruptor vs stablizer

michele75043
  • By michele75043 · Posted December 22, 2011
  • Discussion in Ovarian Cancer National Alliance · 45 replies
  • Greg may be able to enlighten us here. microtubule disruptors are an interesting category of chemotherapy. It seems that anti-angio is usu associated with anti-miotics and estrogen also has a role. But ...

FMF???

craaazycajun
  • By craaazycajun · Posted November 9, 2012
  • Discussion in The Children's Inn at NIH · 5 replies
  • My 4 year old daughter has been suffering from fevers for two years. Today we got her genetic tests back and it shows that she has I591T variant in the MEFV Gene. They told me she has FMF and is to start ...

Heterozygus FMF?

GBasile
  • By GBasile · Posted November 12, 2011
  • Discussion in The Children's Inn at NIH · 4 replies
  • Hi all, I am glad to have stumbled on to this site. We have a four year old boy who has been sick on and off his whole life. He began having severe respiratory problems as a baby and stomach pain. He ...

Familial Mediterranean Fever

blessed375
  • By blessed375 · Posted October 17, 2008
  • Discussion in Genetic Alliance · 6 replies
  • Hi. My name is Jennifer. Though experiencing symptoms for 12 years, in 2006 at the age of 31, I received my FMF diagnosis at Mayo Clinic. I was diagnosed for years with every thing under the sun, but ...

FMF! 19month old HELP! IM LOST???

Nessd23
  • By Nessd23 · Posted October 10, 2010
  • Discussion in The Children's Inn at NIH · 1 reply
  • About a month ago my husband and I decided to take our 19 month boy to a specialist. We felt like he was always getting sick and he would get fevers as high as 104. Every time we took him to our regular ...

Colchicine (Colcrys) helps that feeling of healing from within

Jill555
  • By Jill555 · Posted March 13, 2013
  • Discussion in TalkPsoriasis · 0 replies
  • I have been taking Colchicine (brand name Colcrys) for about 9 months now. I have had psoriasis for about 40 years and 20 years of ppp on the soles of my feet and sometimes hands. I have tried it all ...

CrAzYY IPF ??

pontiff51
  • By pontiff51 · Posted September 10, 2013
  • Discussion in Pulmonary Fibrosis Foundation Patients · 9 replies
  • Yesterday I took a PFT and today I got the results???? My breathing intake is 116% of average. Yeah 116% of average Normal Person! The volume available to use in my lungs is 87-90%(lung capacity)....These ...

I have found a drug that so far has cured my son of PFAPA! Please Read!!

mdjb_bryant
  • By mdjb_bryant · Posted November 20, 2009
  • Discussion in Genetic Alliance · 7 replies
  • My son was diagnosed with PFAPA almost 4 years ago. He has been on predisone a bandaid for it the whole time. After test after test they finally sent my son to a rhumatologist. Before his first visit ...

FMF questions

FrancisK
  • By FrancisK · Posted May 13, 2010
  • Discussion in Genetic Alliance · 8 replies
  • Hi all, I had some questions for those of you suffering with FMF. I have been suffering for a year now with a horrible burning rash, joint pain, headaches, horrible fevers/chills, extreme fatigue and ...

Info greatly appreciated...sound familiar?

Brighteyes23
  • By Brighteyes23 · Posted October 4, 2011
  • Discussion in Autoimmune Diseases · 20 replies
  • Hey guys, I wasn't sure which topic best to put this under. I have recently been diagnosed as having an autoimmune disease, but we are yet to find out which. Here is a brief overview of symptoms, labs ...

Getting better!

Jordensmom
  • By Jordensmom · Posted August 20, 2008
  • Journal entry · 2 replies
  • Well what a painful journey. But I guess with pain and frustration comes wisdom and discovery. Jorden has been taking Colchicine for 8 months. the first 6 months we did not see much of a change, but there ...

progress is progress...

Jordensmom
  • By Jordensmom · Posted February 3, 2009
  • Journal entry · 2 replies
  • Jorden just had a check up with his pediatrician, then a few days later a follow up with the rheumatologists at UCSF, and in a few days we head back to the NIH. In 6 months, since the new dosage of colchicine ...

Throat issues and FMF

Kaylea-Leanne (Inactive)
  • By Kaylea-Leanne (Inactive) · Posted March 14, 2009
  • Discussion in The Children's Inn at NIH · 2 replies
  • My son was diagnosed in 2007 with FMF. He has since been on colchicine liquid since he wouldn't swallow the tablets. He is now 6 years old. Has not really had any fevers since other than some strep throats/ear ...

Colchicine and psoriasis

npf-1273 (Inactive)
  • By npf-1273 (Inactive) · Posted June 29, 2010
  • Discussion in TalkPsoriasis · 1 reply
  • ** Originally posted by npf_reader ** I have been taking colchicine to prevent gout attacks - prescribed from my internal medicine physician. Surprisingly, My psoriasis has significantly reduced. When ...

Colchicine and psoriasis

npf-1273 (Inactive)
  • By npf-1273 (Inactive) · Posted June 29, 2010
  • Discussion in TalkPsoriasis · 0 replies
  • ** Originally posted by npf_reader ** have been taking colchicine to preventing gout attacks - prescribed from my internal medicine physician. Surprisingly, My psoriasis has significantly reduced. When ...

familial mediterranean fever and colcrys

DianaGee
  • By DianaGee · Posted October 12, 2011
  • Discussion in Genetic Alliance · 3 replies
  • My sister and I both have FMF and have been switched from colchicine to colcrys. We both suspect the colcrys does not work like colchicine. Has anyone had the same experience? We would like to get back ...

Familial Meditteranean Fever

Beth3
  • By Beth3 · Posted January 12, 2011
  • Discussion in Genetic Alliance · 6 replies
  • Is there anyone who has fmf and has had any luck using antibiotics instead of colchicine therapy? My son was diagnosed with this but because he is responding to the antibiotic now they are not so sure ...

palmoplantar psoriasis

npf-3301 (Inactive)
  • By npf-3301 (Inactive) · Posted January 8, 2004
  • Discussion in TalkPsoriasis · 5 replies
  • ** Originally posted by mandyjr ** Hello everyone, I am new to this site. After looking thru the other messages, I can tell you all are great. I have been diagnosed with palmoplantar psoriasis. I have ...

Looking for answers

dine03
  • By dine03 · Posted December 7, 2012
  • Discussion in Genetic Alliance · 2 replies
  • I am brand new to this site and am hoping for some input from someone. Does anyone have experience with adult-onset FMF? My husband was diagnosed (by symptoms only) and started on colchicine last year ...

Help I need advice to get a diagnosis

AJ88
  • By AJ88 · Posted May 20, 2013
  • Discussion in Genetic Alliance · 5 replies
  • Hi, I need your help to diagnose what is wrong with me. I started getting recurrent pleurisy last year (August 2012) and in January 2013 on my last bout I was admitted to hospital for multiple tests ...

another visit

Jordensmom
  • By Jordensmom · Posted January 27, 2010
  • Journal entry · 2 replies
  • I have found some quiet time here at the NIH early this morning and thought I would catch up on this journal. We have gone almost 1 year without seeing the inside of an emergency room! the colchicine ...

Imuran and physicians

nanner
  • By nanner · Posted July 5, 2008
  • Discussion in Stop Sarcoidosis · 3 replies
  • I am ready to look for a new rheumatologist, even though this one was recommended by my pulmonologist, and perhaps my pulmo, too. Why? Well... I was put on Imuran May 5 by the rheumy. I was still on Plaquenil ...

Is anyone currently on Domperidone? and how effective is it?

Wolfrik19
  • By Wolfrik19 · Posted July 1, 2010
  • Discussion in AGMD GI Motility Disorders · 28 replies
  • My doctor prescribed domperidone yesterday for my colonic motility, just curious to know how good this drug is, how efective..ive heard postive things about it, but also negative. i have tried everything..amitiza ...

Colchicine

littlestar (Inactive)
  • By littlestar (Inactive) · Posted July 25, 2010
  • Discussion in Autoimmune Diseases · 0 replies
  • Hi yall! I' m 30 yrs old and diagnosed with Behcet's disease. After NSAIDs my Rheumy recently put me on oral Colchicine hoping to control the symptoms. I' d like to know if anyone else here has ever been ...

Familial Mediterranean Fever - Problem w/ colchicine

NancyS
  • By NancyS · Posted September 27, 2010
  • Discussion in Genetic Alliance · 0 replies
  • Orphan status of FMF will be causing financial issues for those diagnosed with FMF because of the closure of production of colchicine to all but ONE company. The price increase for those of us w/ FMF ...

Colchicine for Pustular P?

katege
  • By katege · Posted February 17, 2003
  • Discussion in TalkPsoriasis · 0 replies
  • ** Originally posted by Kathyg ** Has anyone been prescribed Colchicine for Pustular P? I read that this medication can help. It is an old, effective gout medication. I searched the site and the forums ...

Giving Back: Prescriptions that helped me.

npf-4612 (Inactive)
  • By npf-4612 (Inactive) · Posted June 20, 2005
  • Discussion in TalkPsoriasis · 4 replies
  • ** Originally posted by jojer1 ** I want to let everyone know what helped me. Dermatologist did not work. Took quite a while to get to a specialist, a Rheumatologist. Here is what he gave me, all at once ...

Anyone have TRAPS and FMF

makennas_mom
  • By makennas_mom · Posted March 29, 2011
  • Discussion in The Children's Inn at NIH · 1 reply
  • My 6 year old daughter has been sick most of her life and has been tested for everything under the moon, except Periodic Fevers, until recently. She has mutations for both TRAPS and FMF. She is currently ...

Anyone Try colchicine?

PhishPhan
  • By PhishPhan · Posted November 17, 2011
  • Discussion in Stop Sarcoidosis · 0 replies
  • Trying to gather information on colchicine use for sarcoid. Looking at internet data and plan to discuss with Dr. I am on 10mg pred, omprazole and a bisphosphinate. Any experience? Thanks, Happy Holidays ...

FMF and HIDS

GBasile
  • By GBasile · Posted January 13, 2012
  • Discussion in The Children's Inn at NIH · 5 replies
  • Hi everyone, We just got genetic test back and our son has the mutations for FMF and HIDS. Does anyone here have more than one fever syndrome? Colchicine seems to have many side effects. Does anyone take ...

FMF- Colchicine (Colcrys) Should we start it?

IvonneC
  • By IvonneC · Posted July 16, 2012
  • Discussion in Genetic Alliance · 2 replies
  • Hi! My 9 year old daughter has been showing symptoms of FMF - Periodic Fevers for over 1 1/2 years now. Her flare ups are milder than I have read but significant enough that we discovered a pattern of ...

Allopurinol in Renal Failure

rf2003
  • By rf2003 · Posted November 12, 2012
  • Discussion in Nephrotic Syndrome and FSGS · 3 replies
  • As you may know Gout is very common in people with chronic kidney disease. I have gout flares every so often - I was on Colchicine , on Uloric and nothing seems to help .My Doctor did not opt Allopurinol ...

recommendations

kpotts
  • By kpotts · Posted July 20, 2013
  • Discussion in AGMD GI Motility Disorders · 9 replies
  • Hi, I am new to this forum and was wondering if I could get a physician recommendation. I live in St. Louis MO. I have been diagnosed with colonic inertia and delayed gastric emptying. I recently had ...

pericarditis

wlph
  • By wlph · Posted February 21, 2014
  • Discussion in WomenHeart · 1 reply
  • Has anyone else experienced recurrent pericarditis? My coronary by-pass surgery was in June, and my first episode with pericarditis was in August. I've had 4 severe episodes and several minor ones. I've ...

7 year old daughters 'medical mystery'

fairymum
  • By fairymum · Posted May 21, 2007
  • Journal entry · 27 replies
  • I really don't even know where to start. I am new to this site and am desparately searching for answers - maybe someone out there will read this and have information to benefit us. I will start from the ...

Familial Mediterranean Fever Disease

kristin26
  • By kristin26 · Posted June 22, 2008
  • Discussion in Genetic Alliance · 51 replies
  • Is there any one that has this Disease? I Just found out i have it on june 17th and its very rare! I feel so alone. I hope i can find someone who has the same Disease so i understand what im going through ...

Help, my daughter has Periodic Fever Syndrome

AnnaLeeR
  • By AnnaLeeR · Posted September 14, 2009
  • Discussion in Genetic Alliance · 52 replies
  • I need help!!! My daughter, two months ago was diagnost with Periodic Fever Syndrome, however they are still trying to determine which form. They believe it could be any of the 7 hereditary forms, or ...

Trying to find out how this disorder may change

Kare
  • By Kare · Posted September 9, 2006
  • Discussion in The Children's Inn at NIH · 35 replies
  • Hello everyone, I just recently found this site and I can't believe that others have the same stories as our family. My child has just recently been diagnosed with Traps. He is three, soon to be four ...

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