saphire1981's journal

Battling exhaustion

saphire1981
  • By saphire1981 · Posted February 27, 2014
  • 25 replies
  • Hey everyone. My little boy Jake will be 4 in March and is to start school in Septemeber. He goes to mainstream nursery - and is always really exhausted at the end of the day. He is a high-functioning ...

Jake's Progress!!

saphire1981
  • By saphire1981 · Posted September 14, 2012
  • 1 reply
  • Well, life it going along slow and steady. Jake is making slow progress with his physiotherapy and we are now concentrating on his standing more and more. He is being referred for Botox - hopefully the ...

Lesson 4 of ABM with something amazing.

saphire1981
  • By saphire1981 · Posted May 16, 2012
  • 6 replies
  • Well, we are in London having our second set of Anat Baniel Lessons with Movement And Wellbeing and this is his 4th lesson of the week. And I must say we are starting to see some very unexpected results ...

Fundraising for Spider therapy

saphire1981
  • By saphire1981 · Posted May 3, 2012
  • 2 replies
  • Hello everyone, I have decided to try and do some fundraising to raise money to help pay for Jakes spider therapy. This therapy is only available in London and costs £1500 and is a three week intensive ...

Physiotherapy Sessions here we come!

saphire1981
  • By saphire1981 · Posted May 2, 2012
  • 3 replies
  • Well, Jake has already been for three 60 minute sessions of Anat Baniel Therapy back in May of 2011. I'm not sure if there was any improvement in his mobility but I think it's still worth giving a go ...

I'm just so proud.

saphire1981
  • By saphire1981 · Posted February 13, 2012
  • 4 replies
  • Well, Jake is coming along nicely with his foot steps. He is able to take 20+ steps with my help (holding him up under his arms) - he gets the movement right and takes one step at a time in the right ...

Some sad news.

saphire1981
  • By saphire1981 · Posted February 9, 2012
  • 22 replies
  • As some of you may know, I was pregnant with my second child. I went for my 12 week scan on Monday and I didn't have good news. It seems that I have a blyted ovum - basically the egg was fertilized and ...

AMAZING!!

saphire1981
  • By saphire1981 · Posted January 10, 2012
  • 6 replies
  • I think Jake is really doing us proud. I'm so happy I might cry! The other day in town, me Jake and my dad wander into a charity shop to look around. Now, this charity shop just happens to be a book store ...

Putting Jake to bed...

saphire1981
  • By saphire1981 · Posted January 10, 2012
  • 0 replies
  • Well, Jake has moved up in the world! His cot-bed has now become a bed-bed!! lol He's been in his little bed now for 4 nights so far and hasn't fallen out... yet. The thing is, he doesn't really seem ...

Jakes first Home Teaching session

saphire1981
  • By saphire1981 · Posted January 10, 2012
  • 0 replies
  • Jake had his first home teaching session on Monday this week and it went really well. Unfortunately because I work full time I'm not able to go to his home teaching sessions, but my mother-in-law was ...

Great News!

saphire1981
  • By saphire1981 · Posted January 3, 2012
  • 11 replies
  • Well, Happy New Year to everyone ~~ I have some exciting news! I'm pregnant! I am excited about this, but... the worry has already started. I am praying that this baby doesn't come early and I manage ...

Just a bit of a chat really... Xmas 2011

saphire1981
  • By saphire1981 · Posted December 25, 2011
  • 0 replies
  • Well, it's Christmas night 2011 and I just wanted to type a few things about how the day has gone. Jake has had a wonderful day today, and has made such amazing progress when you look back and think about ...

Our first paediatrician appointment,

saphire1981
  • By saphire1981 · Posted December 24, 2011
  • 6 replies
  • Well, Jake is fast approaching two years old, and won't be under the care of the Neonatal Consultant any more. He will be under the care of the community paediatrician who we met for the first time the ...

Using flash cards...

saphire1981
  • By saphire1981 · Posted December 19, 2011
  • 6 replies
  • I've been using flash cards with Jake now to try and help him learn what objects are called, and today all the fuits of my efforts came to pass! He correctly identified 4 flash cards - and got them right ...

He said a whole sentance!

saphire1981
  • By saphire1981 · Posted December 1, 2011
  • 10 replies
  • Well, I've always hoped that dispite Jake's physical limitations with his cerebral palsy, that he wouldn't have any metal issues. Even though his neonatal consultant said I should expect Jake to have ...

Jake sat up in the bath!

saphire1981
  • By saphire1981 · Posted October 7, 2011
  • 0 replies
  • Friday 7th October 2011. My little sausage! I use a reclining seat for Jake in the bath because he can't sit up very well yet - and the bath is really slippy... but today!!! He pulled himself up using ...

Where to start.

saphire1981
  • By saphire1981 · Posted September 29, 2011
  • 0 replies
  • Well, Jake is now 1 and a half years old and was born at 31 weeks and 1 day. Because he was born early he had a grade 1 bleed on his brain and developed cysts leading to his current diagnosis of PVL and ...

Things you can do