Port

My daughter will be getting her port in Thursday. Had a long 4 hr. day at the cancer center yesterday. I think my biggest fight will be getting her to have good nutrition and drink all the fluids she will need after her chemo treatments. she always says I'm not hungry. She has bowel issues so that is her excuse of not eating. I don't want to harp on her. But I'm also not going to let her give into this and whiter away. I know a good attitude will make a difference. So I hope I can help keep her spirits up. It doesn't help that her husband had to be out of town this week, but I'm filling in best I can. This is also my first quit day of not smoking I'm on chantix. I'm quitting for her & my family so far it's going great!!

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Medaide,

Try to give your daughter many options for food and drink. Tastes change during chemo and even water can taste bad. Try different bottled waters and even try different temperatures. The individual drink mixes for bottled water are a good way to have different flavors and still get hydtrated. The same goes for food. She may also have days when she doesn't want to eat and days when she can't stop eating. Good nutrition is a plus while going through chemo, but eating anything is good. If she tends to want more unhealthy foods, let her eat them, as long as she is eating. When I was in treatment, I had days (weeks even) when I couldn't eat much then days when I couldn't stop eating.

Is your daughter on Inspire or any other online support groups?

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The "bowel issues" really are a problem for many of us, and the lack of appetite can be horrible. Does her infusion center have a dietician or nutritionist she can consult with?

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Thanks, she went to Wal-Mart and got some of the flavored mixes to add to bottled water. she sent them to her husband in Afghanistan last yr. while he was deployed. She also bought a juice machine because her sister in Co uses one and she was there last week for a visit. Her sister has a lot of stomach issues so she juices and when she tried them she liked it. I think she might try to see a dietician next week. Next time I talk to her I'm going to give her this web site.

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Attitude is key, that is for sure. No matter how hard it is, you have to try and be positive. And yes, drinking alot of fluids the day before and day of chemo is crucial. I wish your daughter the best of luck. She is lucky to have a good support system like you.

Jane

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You are definitely doing the right things. If your daughter is like most of us, she will want bland foods. The platinum-based chemos give us a metal mouth taste sensation. So acidic foods and salty foods taste particularly bad. I drank allot of mint tea to keep my fluids up. Baked potatos, baked sweet potatos, both with a nice amount of butter, always seemed to taste good. So did small amounts of mildly flavored chicken and fish, served with rice ( if your daughter's bowels can take rice). The juicing idea is great. So are making your own smoothies in the blender. One of the ladies on this site suggested throwing some fresh kale into a fruit smoothie. I tried it, pulverizing the kale with a little liquid before I put in the frozen fruit and Greek yogurt. You could not tell there was any kale in there!

Your daughter is so lucky to have you. You are on the right track. If you accompany her to her next appointment, you can bring up the topic to the doctor or nurse practioner and ask for some guidelines. Encourage your daughter to eat small meals spaced closely, even when she isn't very hungry. Keeping weight in the normal range is an important way to keep her body strong enough to process the chemo. Keeping up fluids is vital to clear the chemo without damaging her kidneys. There are good medical reasons behind all of these recommendations.

Best luck to you!

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I had a hard time even drinking water but was able to eat a popsickle. Iwas OK with creamy foods like pudding, custard, soups and yougurts but only could get small amounts of food in me. Although I was down to 89 lbs, the good news is now I'm as heavy as I've ever been. Just remember chemo doesn't last forever and try not to get too upset if your daughter loses weight.

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I remember not being hungry and it would drive my parents insane! I would always try to pick at what they gave me just to make them happy but I knew it was for me in the end.
I had many different cravings when going thru chemo. I went thru a lemon phase where all I wanted to drink was lemonade and I had to eat anything that had lemon in it! Then I went thru the apple phase.
On my off days I was hungry and I would eat so that kind of made up for the days I wasn't eating.

I was diagnosed at 25 so I know how it feels to fight this horrible disease at a young age. If your daughter every needs anyone to talk to please contact me.

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I don't have anything to add to the nutritional part as the ladies that commented already have pretty much said it all. I can say that my mother was the one that took care of me during chemo and there were times when I was very emotional, crying, angry, ready to give up and my mother got the brunt of most of my emotional outburst. She never said a word to me about the way I was acting even when I hurt her feelings. My advice is she will probably be an emotional roller coaster but please don't let it get your spirits down she needs you even if she's angry. I couldn't have gotten thru it with out my mother. She is lucky to have a mom so dedicated to her.

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the above remarks on nutrition are all great don't worry to much becuase your daughtr wil eat what she needs hopefully she will loose some weight she will get tried but in the end she will come out stronger then ever because she will feel so much better in the end. Momma if you can make it not smoking that is great but don't be to hard on yourself if you can't wacthing a loved one go through this has to be almost harder then going through it yourself you just don't know what to do and sometimes you will try to hard and feel defeated don't give up it will be OK but it does take a time. When I was told that I would be going through almost a yr of chemo 8 weeks before surgery cheom and radiation then 8 months after surgery I thought they are crazy I can do this in no time well I was mistaken and it took even longer due to a couple of low numbers ect. But when you are done you wonder what am I to do today because for a year, year and a half every week was Dr Appointment so be prepared for that to. Good Luck and keep us informed

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Well that is awesome you are quitting smoking..not only for your daughter but mainly for your own health..I used to be a smoker many years ago so I know how you feel. I quit cold turkey myself and it was hard so good luck and if you slip that is ok. I always said to myself, why put yourself through hell for 3 days and then light up! Apparantly it is out of your system in 3 days and after that it is all in your head..just habit so that helped me not to light up. And when or if you get a craving drink a big glass of water( I drank alot of water..lol) so Good luck and just know you can do it. Yes, I agree with everyone else. Your daughter is so very lucky to have you and like the others have said, don't take to heart any unkind words or gestures. She really won't mean them. I was hard on my husband a few times and apologized shortly after spitting out that unkindness because he has been so wonderful and patient through all of this I really didn't mean it, I was just so frustrated with everything and an emotional wreck. She needs to try and stay positive but she may get broken down. Chemo got to me a few times and my husband just held me and let me cry. That was all I needed to have a really good cry instead of holding it in. I felt so much better afterwards. Your daughter will come out of this like a trooper! Oh and it okay for you to have a cry with her. I know being a mother it is hard to see your child in pain. One day at a time. One day at a time. Just keep reminding yourself and her as I do every day. Take care, in my thoughts and prayers.
Tara

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Yes -- EXCELLENT -- you are to be commended in the highest way for your commitment to stop smoking. It is going to be tough, but you owe it to your family and to yourself. Make it work -- you can do it.

There is a steroid medicine that boosts your appetite. My onc gave it to me and I ended up eating everything that was not nailed down. It worked too good and I am still trying to get the 10 pounds I gained off. At my age (67) that's not too easy. Check with her doc and see -- its a white liquid that you have to gag down in the morning, but by lunchtime you are ready to eat. Probably not for long term, but it sounds like a little boost would not hurt at this point.

Good luck all the way around -- dave

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