lynba's discussions

First scan results on MK3475 trial

lynba
  • By lynba · Posted April 15, 2014
  • In Lung Cancer Survivors · 4 replies
  • Jus got scan results yesterday. Had scan 9 weeks in after 3 cyc;es. Main tumour has shrunk slightly. I node has 'grown' 1 node is stable. Overall there is a 4% progression. This apparently isn't bad ...

Lucky to becaught early!

lynba
  • By lynba · Posted February 20, 2014
  • In Melanoma · 3 replies
  • Hi everyone, In 2006 I went to Gp with a mole on the back of my leg that I thought looks suspicious. She looked at it under the magnifying glass and said it looked ok. It was only by chance that I menioned ...

MK 3475 trial

lynba
  • By lynba · Posted February 12, 2014
  • In Lung Cancer Survivors · 22 replies
  • Just wondering....is anyone on this trial and noticed an improvement in your cough? if so how soon did you notice it? Thanks in advance ...

Nivolunab trail

lynba
  • By lynba · Posted October 30, 2013
  • In Lung Cancer Survivors · 26 replies
  • Anyone on this trial or know anything about it? thanks in anticipation Lyn ...

Stable...how long has anyone remained so with no treatment?

lynba
  • By lynba · Posted September 13, 2013
  • In Lung Cancer Survivors · 11 replies
  • Just finished 4 cycles of cisplatin/pemetrexed, slight shrinkage after 2 cycles and no further shrinkage after the 4. I was diagnosed March 2011 and had been on Iressa for 2 years previous but it stopped ...

Cisplatin/Pemetrexed and everything that go's with it!

lynba
  • By lynba · Posted June 9, 2013
  • In Lung Cancer Survivors · 27 replies
  • I have just started Cisplatin/pemetrexed IV chemo following 2 years on Iressa then progression. This is now day 5 and I am finding it very hard, much harder than I thought. I don't know what I thought ...

What can you do when they say too poorly for anymore treatment?

lynba
  • By lynba · Posted April 25, 2013
  • In Lung Cancer Survivors · 30 replies
  • My friend who is only 32 has just been told she can not have anymore treatment as she is now too poorly. She is Stage 4 nsclc with the ALK mutation (we are in the UK) She has had IV chemo (Carbo/Alimta ...

In need of up to date info on lung cancer amonst non smokers

lynba
  • By lynba · Posted October 3, 2012
  • In Lung Cancer Survivors · 15 replies
  • Having a bit of a battle with Cancer Research UK at the mo as I am informed by a reliable source that they don't 'actively' support Lung Cancer. Any stories they give to the press never mentions lung ...

Iressa - the facts

lynba
  • By lynba · Posted July 19, 2012
  • In Lung Cancer Survivors · 7 replies
  • I am posting this information as 'Iressa' has come up a couple of times recently in threads and there seems to be confusion about it. Iressa in no longer available in the USA as the FDA withdrew its approval ...

Linda Wilson (Lindawi) sad news

lynba
  • By lynba · Posted March 9, 2012
  • In Lung Cancer Survivors · 13 replies
  • It is with regret that I tell you my dear Linda passed away at 8am on Monday morning. Linda was was of the first people I met on here who befriended me and supported me when I was first diagnosed with ...

Fund raising for Lung Cancer research

lynba
  • By lynba · Posted February 24, 2012
  • In Lung Cancer Survivors · 0 replies
  • To all the UK members out there. I have stage IV nsclc. This year I have organised and am taking part in several charity fund raising events with all proceeds going to The Roy Castle Lung Cancer Foundation ...

Fund raising and awareness for Lung Cancer

lynba
  • By lynba · Posted February 22, 2012
  • In Lung Cancer Survivors · 5 replies
  • Hi everyone, I have stage IV nsclc, I'm now 11 months post diagnosis and take Iressa as a first line chemo, currently doing very well. I am working hard to raise awareness and raise funds for lung cancer ...

Happy Christmas Everyone

lynba
  • By lynba · Posted December 22, 2011
  • In Lung Cancer Survivors · 0 replies
  • Happy Christmas from me and my family xxx http://sendables.jibjab.com/view/ssXJF9t YZ7g04wKc?cmpid=jj_fb_self_holidays ...

Pain in chest/ribs.. can anyone help?

lynba
  • By lynba · Posted October 10, 2011
  • In Lung Cancer Survivors · 19 replies
  • I have NSCLC inoperable stage IV (or 3b?? with the new staging). I had a right thoracotomy in March for a diagnosis but they were unable to remove the tumour which was 11cms and had spread to pleural ...

Worth a read

lynba
  • By lynba · Posted September 7, 2011
  • In Lung Cancer Survivors · 3 replies
  • Came across this today http://www.cancerfightingstrategies.com/ oxygenation.html thought it was worth a read ...

Chemo and menopause!

lynba
  • By lynba · Posted August 5, 2011
  • In Lung Cancer Survivors · 11 replies
  • I find myself going into the menopause courtesy of chemo lol. I have been told there is nothing I can take for it as anything available will interfere with the chemo (In my case Iressa). Have any other ...

Pain following thoracotomy

lynba
  • By lynba · Posted July 23, 2011
  • In Lung Cancer Survivors · 2 replies
  • When does tyhe pain go away following thoracotomy? I had one end of march 2011, it was 'open and close' though as they coudn't get the tumor out. I have been on MST, diclofenac and paracetamol ever since ...

Exercise!

lynba
  • By lynba · Posted June 14, 2011
  • In Lung Cancer Survivors · 12 replies
  • Does anyone know if it ok to go to the gym and exercise when you have NCSLC stage IV? I am taking iressa (which is working!) I also had a thoracotomy 10 weeks ago that couldn't remove tumour and now find ...

Things you can do