Treatment options

Questions and answers to the various pharmaceutical options. Medical treatments that worked for others.

Discussions

I am confused and in big dilemma 2 doctors give contradicted views

aaaa123
  • By aaaa123 · New reply August 17, 2012
  • 5 replies
  • Dear friends , Currently I'm on galzin.1(one) 50mg/day for about 11 months. My results for 24 hours urine Copper for the last 8 months ( from January 2012 till August 2012) always under 37 mg/day . I ...

Wilson disease

sivaramakirushnan
  • By sivaramakirushnan · New reply July 29, 2012
  • 3 replies
  • My sisters daughter aged 22 has been diagonised with Wilson disease recently and doctors have advised trientine. She has the ailment for more than 4 years and after many tests , they have started the ...

Skin Discoloring

RICHA
  • By RICHA · New reply July 19, 2012
  • 1 reply
  • I have read about skin discoloring in wd patients but I rarely heard about it from any patient. I have dark patches on my body(mainly on my hands and legs). Isn't there any treatment for them. I consulted ...

Fatty Liver?

rdrummond
  • By rdrummond · New reply July 15, 2012
  • 25 replies
  • Hi Everyone, I just had a liver ultrasound, which found that my liver was a little "fatty". My dr says this is a concern, but nothing to worry about. Has anyone else had this issue? Also, I am currently ...

Parenting a dog with Wilson's

MagicPhoenix
  • By MagicPhoenix · New reply July 15, 2012
  • 5 replies
  • Hi, I am sorry I did not see the previous post regarding the high price of the medication to treat a dog with Wilson's disease (copper toxicity). The two medications available at the regular pharmacies ...

dystonia

TimAllan
  • By TimAllan · Posted July 10, 2012
  • 0 replies
  • I have been having increasing muscle spasms in my feet, legs & hands since I began treatment 2 months ago. What are the options for treatment of this problem? The spasms are keeping me awake at night ...

low urinary copper

suman
  • By suman · New reply June 13, 2012
  • 9 replies
  • My daughter is on treatment for WD since jan 10. She had been taking 500 mg x 2 / day d-pen and her urinary copper level were around 600 micro gram / 24 hours. Her liver enzimes and blood counts also ...

insomnia

Nomorewilson
  • By Nomorewilson · New reply June 6, 2012
  • 2 replies
  • Is insomnia a symptom of Wilson's Disease and if so, what is the best medicine? My son has tried many sleep meds (Ambien, Restoril, Klonipin, Rozerem, Lunesta) to no avail. Are we going at this the wrong ...

dystonia treatments

madforthemouse
  • By madforthemouse · New reply May 7, 2012
  • 8 replies
  • We have one rehab dr really pushing a phenol block - has anyone had one? It is for the muscles that turn his feet in and drop his foot. (really bad dystonia) I'm hesitant because we have 2 neurologists ...

wilson's and hand surgery

paulmckim
  • By paulmckim · New reply April 24, 2012
  • 3 replies
  • I am looking for anyone with wilson's disease that has had hand surgery to fix their spasticity or Contracture in their fingers / hand. 1. I want to know if it worked? 2. if after time the flexure comes ...

Snacking with Zinc?

ASK_wd
  • By ASK_wd · New reply April 20, 2012
  • 4 replies
  • Does anyone snack? If you're taking zinc, are you snacking too? When and how with the zinc taken 2 hours after a meal or one hour before a meal? When can you snack? Interested to know as I"m always hungry ...

Availability of trientine in India

suman
  • By suman · New reply April 14, 2012
  • 4 replies
  • My daughter is on D-pen since last 2 years and we noticed that her behavioural problem is not improving. In fact she has been put on many psychatric dose such as lithium for controlling her bahaviour ...

partners of wilsons disease paients

nicsmith
  • By nicsmith · New reply April 10, 2012
  • 5 replies
  • this is for all the other halves, we found out about my boyfriend having wilsons disease 6 months ago, and have been slowly improving but some things just seem to get worse, he keeps on looking up things ...

Low Copper Diet?

ASK_wd
  • By ASK_wd · New reply April 1, 2012
  • 2 replies
  • Over the years the list of foods not allowed under low copper diet gets longer. Does anyone have issues sticking to the low copper diet? New foods not tested for copper yet? Issues with store bought prepared ...

WD diet

JasonF
  • By JasonF · New reply March 31, 2012
  • 7 replies
  • What has everyone heard about that low-copper diet? When I was growing up in the midwest my doctors told me it was extremely important, but I move out west and one of the first things my doctor does is ...

Radionics as alternative treatment

Atorres
  • By Atorres · New reply February 10, 2012
  • 2 replies
  • Hi all. I have been away from the web for a while. Even though every time I can I read the interesting topics published here. At the moment I have the next question, does anyone has experience with Radionics ...

24 hour Urine: Copper Concentration on Galzin

NLanga
  • By NLanga · New reply February 2, 2012
  • 2 replies
  • My husband was diagnosed with WD in Oct 2010 and I haven't been too active on this site lately. Quick question though, for any of you out there on Galzin only, can you please tell me what your copper ...

Healing Liver?

nchokiemom
  • By nchokiemom · New reply January 28, 2012
  • 10 replies
  • My 23 year old son Alex had emergency surgery over the holidays to remove his gallbladder due to stones. I understand that this is pretty common for Wilson's Disease and it doesn't worry me. However ...

Twinlab Amino Fuel 1000 tabs

buddynusa
  • By buddynusa · New reply January 27, 2012
  • 5 replies
  • hi, in a journal titeled Some treatment protocols I would just like to say before taking anything like this 3 or 4 Twinlab Amino Fuel 1000 tabs . talk to your doctor before taking. as far amino fuel 1000 ...

spleenectomy

Nikkii
  • By Nikkii · New reply January 14, 2012
  • 6 replies
  • i recently was in hospital with a kidney infection and in scans the noticed thet my sleene was 23 cm when it should only be as big as a fist miy platlettes which are always low droped to 14 but on getting ...

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