Personal stories

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opinion help

  • By laurashaki · New reply April 14, 2014
  • 5 replies
  • hello my name is grettel and 31 years old. I was diagnostic with WD in 1998 since them i have been under treatment. also i have been received botox injection for about 6 years to relax my muscles spams ...


  • By Tomcat20174 · Posted April 10, 2014
  • 0 replies
  • Hello! I am looking for a healed long ago silent symptomatic individuals. My question is how long was dumb? Tell me about your experience ...

Woody's War on Wilsons - just thought how nice of these kids to help out!!

  • By cheesecake · Posted April 7, 2014
  • 0 replies
  • Fvideo-landing-page%3FautoStart%3Dtrue%2 6topVideoCatNo%3Ddefault%26clipId%3D1002 4213&h=mAQH_JLhN ...


  • By buddynusa · New reply March 23, 2014
  • 7 replies
  • Hi , I went and picked up my Syprine Trientine yesterday . I received 4 bottles 100 capsules 250 mg each,good for 80 days for me. I paid my co pay of $90.00. The lady look at me and said do you know how ...

Are dental issues common

  • By mrsreef · New reply March 19, 2014
  • 6 replies
  • Are issues such as more cavities or bleeding gums common while overloaded with copper? Is there more susceptibility to infections? Just curious, seems like my husband's beautiful smile is in need of some ...

Dogs with Wilson's Disease

  • By nancyelsie · New reply March 10, 2014
  • 7 replies
  • It appears that this website has changed so I'm not sure how to find those with dogs (my 7-year-old Laborador) dealing with the disease. I had heard from a few people but don't know where to find that ...

Wilsons Disease

  • By veronicaashburner · New reply March 7, 2014
  • 7 replies
  • Hi I was diagnosed with wilsons last year and find that if I eat certain food I go brown on the top of my eyes and get bags and dark rings under my eyes is there anyone that experiences the same ...

Migraines - do they get better?

  • By WDmom99 · New reply February 24, 2014
  • 22 replies
  • Hi, I'm new here. My daughter, 26 years old, has been under treatment for WD for about two years with Suprine, and her migraine headaches have been getting increasingly more frequent and intense. I am ...


  • By axeloti · New reply February 23, 2014
  • 3 replies
  • Hi everyone. I have wilsons disease found out when I was 25 now 32, I had a one off seizure when I was 30 just had another this week. I am on penicillamine. Anyone else had them ...

skull or joint pain

  • By kravi · New reply January 15, 2014
  • 3 replies
  • Can some one suggest whether Wilson Disease can lead to skull pain or knee pain? My son is on Gluzin. Sometimes he complains of having skull pain or knee pain? Pl share yr experiences ...

wilson's /liver failure diet help

  • By skycamaro1 · New reply January 12, 2014
  • 3 replies
  • hi i have searched the internet and have papers doctors gave me that contradict each other i really need list off can't and can haves for the mix of to diets and any other diet advice can get i was told ...

high iron content in blood work be confused with copper

  • By rszpara · New reply December 25, 2013
  • 5 replies
  • I just found 2 sets of blood tests I had in the 90s. They both showed a very high amount of iron in the blood. I was just wondering if the labs could have confused iron with copper since at that time ...

Wilson's Patients in Australia

  • By Glithen · New reply December 19, 2013
  • 29 replies
  • Hi I noticed at least two or three other people from Down Under who are on this group. Wilsons is so rare, and often a local support group of people who are going through the same thing really helps ...

Stressed Out

  • By Kalila · New reply November 28, 2013
  • 20 replies
  • Hi, I am a Wilson's Disease patient for about 3 years now and hen I was newly diagnosed, I was depressed for the first 6 months. I used to get second place and third place overall in my grade. For the ...

Frontal lobe damage

  • By drdokv · New reply November 26, 2013
  • 26 replies
  • Hello, I read a lot about liver transplant- very unfortunate , life threatening and drastically altering event. I read about tremor resting and intention which I have! And seizures which I have! We are ...

Update On Son Condition

  • By mugaza01 · New reply November 26, 2013
  • 12 replies
  • Sometime in Nov 2012 I posted a message that concern my 13y.o. son who was diagnosed with WD. At the peak of his struggle with the diesease he was unable to speak, drooling heavily, having a severe bout ...

Maintenance through Zinc

  • By kravi · New reply November 12, 2013
  • 2 replies
  • My son was diagnosed almost 5 years back. For first three years he was on Trientine and for last two years he is taking Gluzin (Zinc Gluconate). Initially he was taking 3 cap of Gluzin 50. For last 15 ...

WD patients in Canada

  • By majus · New reply November 1, 2013
  • 26 replies
  • I noticed great respond to WD patients in Australia and thought it would be great idea to stay conected same way in Canada. I am from Edmonton, Alberta and my daughter was diagnosed 8 years ago. My email ...

Pseudotumor Cerebri

  • By Jazzym91 · New reply October 8, 2013
  • 7 replies
  • Basically, I'm post-transplant three years out on Cyclosporine and prednisone. I was wondering if anyone with a similar background has ever been diagnosed with pseudotumor cerebri? Its when there's too ...

Does anyone ever feel like no understands how you feel with WD?

  • By jennyrey266 · New reply October 7, 2013
  • 15 replies
  • I don't know how to explain it, but it sucks I feel like my friends and family think it's not a big deal and that what I have is nothing ...

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