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Does this sound like Wilson's Disease?

Odessa_Ravage
  • By Odessa_Ravage · Posted January 8, 2014
  • Discussion in Getting a diagnosis · 4 replies
  • Ive been trying to do research to all the random symptoms Ive experienced over the yrs, my health has slowly been getting worse. I think I may have Wilson's. I have chronic migraines, I'm always tired ...

Answers Please

Odessa_Ravage
  • By Odessa_Ravage · Posted January 8, 2014
  • Journal · 0 replies
  • Ive been trying to do as much research possible on any new symptoms I have and what might be causing them, so far all my head injury info has come to an end.....I had 3 episodes of syncope(fainting) back ...

my Gillis

mygillis
  • By mygillis · Posted January 8, 2014
  • Journal · 10 replies
  • My son Gil lost his long battle with Wilson's Disease on January 6th , 2014. The Lord took him in into see arms peacefully and took away all his pain and suffering. I will miss him every day of my remainng ...

wilson's /liver failure diet help

skycamaro1
  • By skycamaro1 · Posted January 8, 2014
  • Discussion in Personal stories · 3 replies
  • hi i have searched the internet and have papers doctors gave me that contradict each other i really need list off can't and can haves for the mix of to diets and any other diet advice can get i was told ...

Mineral water

marialena

anything i can do while i wait?

marialena
  • By marialena · Posted January 6, 2014
  • Discussion in Getting a diagnosis · 4 replies
  • we completed the 24 hour urine test. just handed it in this morning. what to do in the interum? i want to give him a multivitamin but who makes them without copper ...

Anyone from Ireland?

Kinia712
  • By Kinia712 · Posted January 5, 2014
  • Discussion in Getting a diagnosis · 0 replies
  • Hi , is there Anyone from Ireland? This is very rare disease bot there must be somone who lives in that country, I wish to talk with him or her. I dont no how to get diagnoze and treatment ... I am from ...

where can I to get Distaminein Ireland

Kinia712
  • By Kinia712 · Posted January 4, 2014
  • Discussion in Treatment options · 0 replies
  • Hi, I am looking for distamine from few weeks in Ireland and there is no pharmacy who can get this for me, please help me... I am feeling not well at the moment couse no tablets in there. Kinga ...

hate the Wd

Tomcat20174
  • By Tomcat20174 · Posted January 2, 2014
  • Discussion in Depression · 19 replies
  • Wilson's disease is the most dreadful disease, which can be built. Lose everything. Your job, your family, your friends and your freedom ...

Someone please help me?

mb7646
  • By mb7646 · Posted January 2, 2014
  • Discussion in Finding a doctor · 2 replies
  • I've still not got a diagnosis, looking through past test results, my ceruloplasmin has been even lower than what i realised before; My other results; 2013: (recovering drastically, highly limiting foods ...

urine test want to get it right!

marialena
  • By marialena · Posted December 30, 2013
  • Discussion in Getting a diagnosis · 4 replies
  • i picked up the container for my son this am. boy is it large! any tips on how to get it right? thanks ...

WILSON'S DISEASE

caluso
  • By caluso · Posted December 28, 2013
  • Discussion in Getting a diagnosis · 10 replies
  • My son is being tested for Wilson's disease with odd results. His cureloplasmin levels came in at 18 but a 24 hour urine collection came back well below normal at 8. He has been displaying primarily psychological ...

Issue of Trientine (Syprine) in Canada

Kalila
  • By Kalila · Posted December 25, 2013
  • Discussion in Treatment options · 3 replies
  • Hi everyone, Whoever is on Trientine and is in Canada need to know that starting January 2014, Trientine will no longer be free for those who get it for free. I used to get mine for free and when I went ...

high iron content in blood work be confused with copper

rszpara
  • By rszpara · Posted December 23, 2013
  • Discussion in Personal stories · 5 replies
  • I just found 2 sets of blood tests I had in the 90s. They both showed a very high amount of iron in the blood. I was just wondering if the labs could have confused iron with copper since at that time ...

A New Year Approaches...

Linducks
  • By Linducks · Posted December 18, 2013
  • Journal · 0 replies
  • We are all probably just finishing the seasonal holiday celebrations, or just beginning them... I wish everyone a joyous season... may each of your holiday celebrations shine brightly for you. Between ...

A New Year Approaches...

Linducks
  • By Linducks · Posted December 18, 2013
  • Journal · 0 replies
  • We are all probably just finishing the seasonal holiday celebrations, or just beginning them... I wish everyone a joyous season... may each of your holiday celebrations shine brightly for you. Between ...

Zinc supplementation and urine copper

mangaa
  • By mangaa · Posted December 17, 2013
  • Discussion in Getting a diagnosis · 41 replies
  • Hi, Do you know if supplementing zinc gluconate for 6 weeks (50mg/day) might have lowered urine copper levels? My father's result is 74,3ug/24h His ceruloplasmine is 14,17mg/dl, serum copper 100ug/dl ...

no anger not normal help needed

Jay781
  • By Jay781 · Posted December 16, 2013
  • Discussion in Getting a diagnosis · 14 replies
  • male i have been depressed past year and i think to much I used to get angry very quickly now recently i dont know why but i dont get angry even at serious stuff im worried iv become emotionless and i ...

Syprine in Canada

mgraper1
  • By mgraper1 · Posted December 12, 2013
  • Discussion in Treatment options · 0 replies
  • https://www.facebook.com/wilsondiseaseas sociation/posts/600017323368674 ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · Posted December 6, 2013
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

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