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Anyone from Ireland?

Kinia712
  • By Kinia712 · Posted January 5, 2014
  • Discussion in Getting a diagnosis · 0 replies
  • Hi , is there Anyone from Ireland? This is very rare disease bot there must be somone who lives in that country, I wish to talk with him or her. I dont no how to get diagnoze and treatment ... I am from ...

where can I to get Distaminein Ireland

Kinia712
  • By Kinia712 · Posted January 4, 2014
  • Discussion in Treatment options · 0 replies
  • Hi, I am looking for distamine from few weeks in Ireland and there is no pharmacy who can get this for me, please help me... I am feeling not well at the moment couse no tablets in there. Kinga ...

hate the Wd

Tomcat20174
  • By Tomcat20174 · Posted January 2, 2014
  • Discussion in Depression · 19 replies
  • Wilson's disease is the most dreadful disease, which can be built. Lose everything. Your job, your family, your friends and your freedom ...

Someone please help me?

mb7646
  • By mb7646 · Posted January 2, 2014
  • Discussion in Finding a doctor · 2 replies
  • I've still not got a diagnosis, looking through past test results, my ceruloplasmin has been even lower than what i realised before; My other results; 2013: (recovering drastically, highly limiting foods ...

urine test want to get it right!

marialena
  • By marialena · Posted December 30, 2013
  • Discussion in Getting a diagnosis · 4 replies
  • i picked up the container for my son this am. boy is it large! any tips on how to get it right? thanks ...

WILSON'S DISEASE

caluso
  • By caluso · Posted December 28, 2013
  • Discussion in Getting a diagnosis · 10 replies
  • My son is being tested for Wilson's disease with odd results. His cureloplasmin levels came in at 18 but a 24 hour urine collection came back well below normal at 8. He has been displaying primarily psychological ...

Issue of Trientine (Syprine) in Canada

Kalila
  • By Kalila · Posted December 25, 2013
  • Discussion in Treatment options · 3 replies
  • Hi everyone, Whoever is on Trientine and is in Canada need to know that starting January 2014, Trientine will no longer be free for those who get it for free. I used to get mine for free and when I went ...

high iron content in blood work be confused with copper

rszpara
  • By rszpara · Posted December 23, 2013
  • Discussion in Personal stories · 5 replies
  • I just found 2 sets of blood tests I had in the 90s. They both showed a very high amount of iron in the blood. I was just wondering if the labs could have confused iron with copper since at that time ...

A New Year Approaches...

Linducks
  • By Linducks · Posted December 18, 2013
  • Journal · 0 replies
  • We are all probably just finishing the seasonal holiday celebrations, or just beginning them... I wish everyone a joyous season... may each of your holiday celebrations shine brightly for you. Between ...

A New Year Approaches...

Linducks
  • By Linducks · Posted December 18, 2013
  • Journal · 0 replies
  • We are all probably just finishing the seasonal holiday celebrations, or just beginning them... I wish everyone a joyous season... may each of your holiday celebrations shine brightly for you. Between ...

Zinc supplementation and urine copper

mangaa
  • By mangaa · Posted December 17, 2013
  • Discussion in Getting a diagnosis · 41 replies
  • Hi, Do you know if supplementing zinc gluconate for 6 weeks (50mg/day) might have lowered urine copper levels? My father's result is 74,3ug/24h His ceruloplasmine is 14,17mg/dl, serum copper 100ug/dl ...

no anger not normal help needed

Jay781
  • By Jay781 · Posted December 16, 2013
  • Discussion in Getting a diagnosis · 14 replies
  • male i have been depressed past year and i think to much I used to get angry very quickly now recently i dont know why but i dont get angry even at serious stuff im worried iv become emotionless and i ...

Syprine in Canada

mgraper1
  • By mgraper1 · Posted December 12, 2013
  • Discussion in Treatment options · 0 replies
  • https://www.facebook.com/wilsondiseaseas sociation/posts/600017323368674 ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · Posted December 6, 2013
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Advice for WD

Sumatie29
  • By Sumatie29 · Posted December 5, 2013
  • Discussion in Treatment options · 5 replies
  • My son is 10 years old but his stomach is burning him about 2 weeks now the poor kids is angry and just wants to be alone how he feels unfortable. I need help why is this happing to my son ...

cuprimine

jvander
  • By jvander · Posted December 1, 2013
  • Discussion in Treatment options · 11 replies
  • I have been diagnosed with WD in 1985 since that time i have been taking cuprimine till 3 years ago. The price went from one hundred to 400 hundred. I started taking zinc my doctor says my copper levels ...

curcumin and WD

batmann
  • By batmann · Posted November 30, 2013
  • Discussion in Treatment options · 6 replies
  • Hi, I read that curcumin helps by Wilson Disease and it works as a copper chelating agent. In other reports they say that all speices are cooper rich and mist be avoided by WD. Any one has information ...

Are these KF rings?

KF_rings
  • By KF_rings · Posted November 29, 2013
  • Discussion in Getting a diagnosis · 3 replies
  • I just got over a horrible migraine that lasted almost two weeks, and I have a follow-up with a neurologist in a couple weeks. I have a history of migraines, but have never had one that lasted more than ...

nausea from zinc

Succubus
  • By Succubus · Posted November 27, 2013
  • Discussion in Treatment options · 23 replies
  • I AM EXPERIENCING NAUSEA FROM ATKING THE ZINC WITHOUT FOOD AND NOW WITH FODD. WHAT SHOULD I DO? I NEED HELP BECAUSE I AM NOT FUNCTIONAL AT WORK I FEEL AWFUL ...

Thank You, From Inspire

Walter
  • By Walter · Posted November 26, 2013
  • Journal · 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

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