Active journals

WD specialist in North India

  • By riaa · New reply July 17, 2011
  • 2 replies
  • Hello everyone, Does anybody know a wd specialist (neurologist)doctor in North India, may be around Delhi, as we r not satisfied with our doctor. Pl let me know. Thanks ...

New feature -- Browse posts you've recommended

  • By Walter · New reply June 26, 2011
  • 38 replies
  • Hello everyone, We added a new feature today that we hope you find helpful. You can now browse the complete list of posts that you have recommended, here: Browse posts you've recommended What's a recommendation ...


  • By Solb · New reply June 17, 2011
  • 6 replies
  • I am sure you heard all this before, I am waiting for the results of my biopsy, cerulopasmin is slightly low according tto the doc and and slightly positive on the ANA. ALT 127 AST 79. Not sure why he ...

New person alert

  • By sharmae1 · Posted June 15, 2011
  • 0 replies
  • Hello everyone, I am new to inspire. I currently don't have any health issues but I do have a cousin who is suffering from Wilson Disease. I'm not quite sure what his current status is right at the time ...

need your suggestions

  • By riaa · New reply June 7, 2011
  • 4 replies
  • Hi everyone, I am Riaa and I am joining this group for my younger sister living in India, who has been diagnosed with wd 7 months back. She has tremors, speech problems and is not able to walk. She is ...


  • By Schwebke · Posted June 2, 2011
  • 0 replies
  • To Canadians: Valeio Pharma has notified me that Cuprimine is on back order so be sure to order a little extra from your pharmacy so that your treatment will be uninterrupted. I don't really know what ...

Join Us!

  • By mgraper1 · New reply May 27, 2011
  • 1 reply
  • Wilson Disease Assocation at ociation Click on this link and cast your vote on the newly designed WD Awareness Ribbon ...

The Inspire Q&A: Inspire talks with Bonnie Diraimondo

  • By John2 · New reply May 25, 2011
  • 16 replies
  • Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...

The Inspire Q&A: Inspire talks with “RA Warrior” Kelly Young

  • By John2 · New reply May 10, 2011
  • 7 replies
  • Dear Inspire Community Members, We at Inspire are pleased to bring you the second in a series of Q&A interviews with people who are making contributions to help patients worldwide. We are posting these ...

Salut,tout le Monde.

  • By asma90 · New reply April 25, 2011
  • 8 replies
  • I am in FRANCE,yesterday I went to the doctor ,he was so worry and he didnt know what he has to do!!I was just like something very strange he told me that my situation is very hard and that really destroy ...

Fluid in my lung

  • By ThirteenCrows · New reply April 3, 2011
  • 1 reply
  • I having shortness of breath for a month, when it finally worried me enough to get checked out. After an evaluation and then a chest X-Ray it was determined that 80% of my right lung was filled with fluid ...

New feature - Change the background color

  • By Walter · New reply March 24, 2011
  • 36 replies
  • Hello everyone, Hope this finds you well. I'm writing to let you know about a new feature in Inspire -- an option to change the background color of our pages from white to another color of your choosing ...


  • By SusanCriddlePrice · New reply March 16, 2011
  • 44 replies
  • Post by Susan Criddle Price R.N., I.N.P. of Placerville, CA who is speaking out in regards to the much unknown (by healthcare social workers, Alta CRC caseworkers and by families of the free federal government ...

New feature - Preference for reply sorting

  • By Walter · New reply March 13, 2011
  • 82 replies
  • Hello everyone, We heard from a number of you that you like to read replies to discussions and journal entries from newest to oldest, rather than oldest to newest, which is currently the default. Those ...


  • By natalieschabowicz · New reply February 13, 2011
  • 1 reply
  • Hi my name is Natalie Schabowicz & I was diagnosed with Wilson's disease May of 2010. Pretty much I was getting symptoms like swelling, bruising, constantly sleeping and much more. One morning I got ready ...

Hello Everyone! I'm new to the Group, but not to Wilson's Disease!

  • By KathyBZ · New reply February 9, 2011
  • 6 replies
  • To introduce myself - I was diagnosed with WD when I was 17 years when I went to my eye doctor to get new contact lenses and he saw the kaiser fleisher rings in my eyes. He recognized what he was seeing ...

Share your diagnosis story for Rare Disease Day

  • By Brian · New reply January 26, 2011
  • 23 replies
  • Hello everyone, In recognition of Rare Disease Day 2011 on February 28, we are looking for Inspire members who have been diagnosed with a rare disease, or who are helping to care for a loved one with ...

About a book I read recently

  • By John2 · New reply January 23, 2011
  • 120 replies
  • Hi Inspire members, I'm John Novack, the new Communications Director at Inspire, and this is my first Journal entry. I like to read about history, and have been thinking about a book I recently finished ...

Need a Maryland Doctor

  • By troubled · New reply January 18, 2011
  • 2 replies
  • I'm new to the group and like most have a problem with my current physician really listening. I am on synthroid (10) months. I have 95 % of the hypothyroidism/wilson symptoms, but my Dr. won't discuss ...

Looking for ways to get WD noticed?

  • By mgraper1 · Posted January 18, 2011
  • 0 replies
  • Rare and Neglected Diseases Congressional Caucus. ...

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