Birt-Hogg-Dube (BHD)

Questions and issues specific to Birt-Hogg-Dube (BHD), another genetic kidney cancer syndrome.


Ground Breaking Clinical Research

  • By VHLFA_Director · Posted March 21, 2014
  • 0 replies
  • The Cancer in Our Genes International Patient (CGIP) Databank is now launched!!! Register now at and participate in this important clinical research study for VHL, HLRCC, BHD and ...

BHD Facebook Group

  • By mom2three · New reply May 9, 2013
  • 2 replies
  • Mainly a discussion place for patients, but anyoned interested may request to join and it is a closed group (only members can see posts) 7912181 ...

Interview with Cathy Sherman, 2009

  • By joyceg98 · Posted February 17, 2013
  • 0 replies
  • I have been converting the archive of Powerful Patient interviews from the old website format to the new. Tonight I converted a wonderful interview with Cathy Sherman, founder of the BHD Foundation, from ...

BHD? The symptoms say so

  • By lenartd · New reply February 15, 2013
  • 10 replies
  • I am not sure that I have BHD, but the symptoms match so well. I cannot walk more than a block without being short of breath. I have the white bumps on my face which appeared in my 30's, and I have had ...

What is BHD Syndrome?

  • By Christine29 · New reply February 15, 2013
  • 6 replies
  • Hi, I've seen a lot of posts lately about BHD. Is it and/or how is it related to VHL? I'm assuming it's some how related since it was an option for the topic line, but I've never heard of it. Thanks ...

Fifth BHD Symposium and Second HLRCC Symposium

  • By GrahamL · New reply February 9, 2013
  • 1 reply
  • events/conferences-and-events/the-fifth- bhd-symposium-2013/ The Fifth BHD Symposium and Second HLRCC Symposium 2013 We are delighted to announce that the Fifth ...

BHD Interview today (or replay on demand)

  • By joyceg98 · New reply January 11, 2013
  • 1 reply
  • Jean S., a person with BHD, will be interviewed today on the Powerful Patient. Listen live at 3 Eastern US time, or catch it later at ...

BHD Skin

  • By jean9b7 · New reply September 7, 2012
  • 3 replies
  • Those with BHD may have fibrofolliculomas. I have some, although not a whole lot. However, I also have rosacea. It wasn't bad until recently, when I seem to have entered the adult acne stage. Put the ...

Lung discomfort

  • By jean9b7 · Posted July 18, 2012
  • 0 replies
  • After numerous pneumothoraces both of my lungs had pleuradesis. That is in 1980. I was lucky; no one knew what caused the collapses, but they came up with the right solution. Whenever I fly, like going ...

The 4th BHD Symposium March 28th-30th 2012

  • By GrahamL · Posted November 17, 2011
  • 0 replies
  • I got this information from John Solly of the Myrovlytis Trust. The 4th BHD Symposium will be held in Cincinnati, USA, March 28th-30th 2012. It will include the best aspects from the previous meetings ...

Things you can do

Support the VHL Alliance

Help the VHL Alliance reach its goals and support people like yourself by making a donation today.

Donate to the VHL Alliance

Discussion topics

From the VHL Alliance

Community leaders