New posts

Happy Easter xx 💜

  • By sharon19 · Posted 2:41 am
  • Journal · 0 replies
  • HaPpY EaStEr EvErYoNe XoXo ...

QSART test result

  • By BehcetsGirl · Posted yesterday at 3:10 pm
  • Journal · 0 replies
  • I went to the Cleveland Clinic recently and they did a QSART test (aka Sweat Test). The doctor just sent me the results. She said "it was decreased in the arm but normal in the leg." She also said that ...

I'm new to the group

  • By jdfrd1957 · Posted April 16, 2014
  • Discussion in Buerger's disease · 0 replies
  • I'm new to the group, thank you for adding me. A little about me: I'm 56yr. old, and just diagnosed with Buerger's on Friday April 4th,2014. I stopped smoking the very next day. I also have Abdominal ...

Vietnam Veterans

  • By bamafan1 · Posted April 14, 2014
  • Discussion in Aneurysm · 0 replies
  • My husband was found to have a thoracic arch aneurysm size 4.9 in the fall of 2012 when he had a CT for bladder cancer. He has had his bladder removed, and is doing relatively well, although due to the ...

Can physiotherapy help build collateral Arteries ?

  • By sharon19 · Posted April 14, 2014
  • Journal · 3 replies
  • Hi everyone . Hope u all have a Happy Easter 💜 xx Hope everyone is ok . Just a question , a doctor that didn't understand what was wrong with me made a appointment with physiotherapy . He gave me these ...


  • By Fahnette · Posted April 10, 2014
  • Discussion in Deep vein thrombosis (DVT) · 0 replies
  • I've got this thing that happens, and the Jedi Master (my hematologist) was quite bemused. It started after my DVT so I'm quite sure it's all related. Step 1. I am on my feet for a long period of time/stressed ...

Here we go

  • By Fahnette · Posted April 10, 2014
  • Journal · 12 replies
  • May 3rd, 2010. I went down in front of my students. The coldness, clamminess, inability to breathe--all of that was nothing compared to the pain. It felt like I'd been shot in the sternum. Turns out that ...

When does the pain and SOB get better?

  • By Pack2rule · Posted April 7, 2014
  • Discussion in Deep vein thrombosis (DVT) · 2 replies
  • PE both lungs found Wednesday last week. 5days in and I can't help but wonder when the chest/lung pain and SOB gets better? At 41 years old this just sucks ...

When will the swelling and pain go away?

  • By lindaswarren · Posted April 1, 2014
  • Discussion in Deep vein thrombosis (DVT) · 2 replies
  • I an a 62 year old active woman who just retired on January 24th 2013. I had rotator cuff surgery on February 26, 2014. On March 2 2014 I had a large DVT in the femoral vein of the left leg. The pain ...

I had a pulmonary Embolism

  • By mahharet · Posted March 27, 2014
  • Discussion in Deep vein thrombosis (DVT) · 14 replies
  • My name is Marta I am 48 years old. I had a pulmonary embolism June 25th of 2013. I was with my daughter and a friend at the library.. the days before I felt tired and like I had been having an asthma ...

C'mon, ya know?

  • By KALONAKINI · Posted March 25, 2014
  • Journal · 23 replies
  • I actually did some yard work a couple of days ago and have been worthless ever since. It's the bending over, you know? It just destroys my legs. And my hands? Holy cow, my poor hands look like they've ...

I have a Strange Family..

  • By Flare999 · Posted March 23, 2014
  • Journal · 10 replies
  • Does anybody else have unsupportive and downright nasty family members? This is what my SIL texted me this morning when I asked her for petrol money to take her shopping: 'Why the f do I have to pay ur ...


  • By George21 · Posted March 22, 2014
  • Discussion in Peripheral arterial disease (PAD) · 2 replies
  • Diagnosed with PAD 2 years ago both legs angio had been done twice both legs 5 months ago had a cut to the left foot gym injury got infected and did not heal needed amputation to the left pinky . While ...


  • By cheree · Posted March 22, 2014
  • Journal · 8 replies
  • One week until surgery and this morning I wake with a cold go figure ,every time it gets closer on September to my date I end up getting an infection .now I come down with this cold sure hope it goes ...

ct scan

  • By mydwag · Posted March 20, 2014
  • Discussion in Fibromuscular dysplasia (FMD) · 2 replies
  • I have had 4 ct scans of the abdomen all have been reported normal. However after having an angiogram I was diagnosed with FMD and had to have surgery. Are ct scan not a good tool for FDM. Also, I was ...

Still Unsure 😥

  • By sharon19 · Posted March 20, 2014
  • Journal · 2 replies
  • Grrr Doctors. Has left the choice up to me when to do the operation . I have no follow up appointments , just told me to make an appointment if I want the opp , or to talk about any concerns . Said there ...

guys and compression

  • By lee85 · Posted March 19, 2014
  • Discussion in Chronic venous insufficiency (CVI) · 1 reply
  • I am a a male in my late 20s. I've been dealing with leg pain for 3 years and using compression stockings to help with the pain. A few months ago I had an ultrasound done and confirmed that I have venous ...

Our second annual report with Stanford Medical School

  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Swollen fingers and toes with no diagnosis

  • By Krissalee85 · Posted March 18, 2014
  • Discussion in Raynaud's disease · 8 replies
  • Hello, I am searching for answers as to why my right fingers and toes swell up and burn. I was tested for Raynaud's and was told that I didn't quite fit the diagnosis. It is only on my right side and ...

Hitting a milestone -- 5,000 photos posted already

  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

Things you can do

Discussion topics

Community leaders