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Vascular Disease

Your vascular disease support group and discussion community

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A vascular disease support and discussion community, including aneurysm, Buerge's disease, DVT, lymphedema, peripheral arterial disease, and more.


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Vascular Disease

A new collaboration, "Patient Perspectives," to amplify patients' voices

JohnNovack's journal

JohnNovack

a-new-collaboration-patient-perspectives-to-amplify-patients-voices

200198

From: John Novack, Inspire Dear members, We're excited to let you know that we just began a partnership, "Patient Perspectives," with the industry magazine Life Science Leader. A goal of the collaboration is help life science executives understand better the journeys of patients and caregivers facing significant illnesses. We invite you to read and share the new guest column, "Making ... Read More

Vascular Disease

New column: "Grieving the Loss of Your Physician"

JohnNovack's journal

JohnNovack

new-column-grieving-the-loss-of-your-physician

200198

From: John Novack, Inspire Dear members, I'm writing to share with you the latest in a series of “Experts by Experience” columns, as part of a collaboration between Inspire and Mayo Clinic. We invite you to read and share "Grieving the Loss of Your Physician," by Kari Ulrich. Ms. Ulrich, who lives with multiple disorders, including fibromuscular dysplasia (FMD) and Ehlers-Danlos Syndrome ... Read More

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Vascular Disease

How do you make medical decisions?

Brian's journal

Brian

how-do-you-make-medical-decisions

200198

Dear members, As patients and caregivers, we have more sources of medical information available to us than ever before to help us make the best decisions possible for our health. Advice from our doctors is sometimes not the same as the information we learn from the experiences of our peers, and there are often other sources of information available as well. Some of our decisions feel ... Read More

Vascular Disease

What’s the story of your rare disease diagnosis?

Brian's journal

Brian

whats-the-story-of-your-rare-disease-diagnosis-1

200198

Dear members, Today, more than 200,000 Inspire members have a rare condition. You have made Inspire a place to share your experiences with others who understand what you’re going through and help others at the same time. Many of you have described how long it took for you to receive an accurate diagnosis for your rare condition, while some of you found your diagnosis quickly. If you’d ... Read More

Vascular Disease

Cvi...swollen ankles/feet. calf cramp and itchy skin!

In: Chronic venous insufficiency (CVI)

Hannah-lou87

cvi-swollen-ankles-feet-calf-cramp-and-itchy-skin

200198

I’ve recently been diagnosed with cvi, I saw a surgeon the other day to be told there is nothing that can be done. As a 30 year old this has completely devastated me and some days I can barely walk, I’ve got compression stockings but no pain relief etc is there certain medication I can ask my doctor to put me on? If anyone can help me I would appriciate it. Hannah ... Read More

Vascular Disease

YOU made an Inspire glossary!

Radha_Inspire's journal

Radha_Inspire

you-made-an-inspire-glossary

200198

Greetings! I’d like to introduce a new resource for all of us in the Inspire community - a glossary. We believe this will be a helpful resource that will improve your experience on Inspire. Thanks to the many, many of you who suggested this feature and helped make it a priority. Inspire’s glossary includes common terms and acronyms that reflect the shorthand that patients, caregivers ... Read More

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Vascular Disease

Gene testing, precision medicine, and shared information

Brian's journal

Brian

gene-testing-precision-medicine-and-shared-information

200198

Dear members, How should we be thinking about our genetic information when it comes to disease? It’s a question many of us are asking here on Inspire, sometimes very intensely, depending on the nature of the disease. The information we get from our genome can have a direct impact on so much, including how, or if, we can be treated for certain types of disease -- that is the nature ... Read More

Vascular Disease

Leukocytoclastic Vasculitis Help/Info

In: General discussion

AMCJPC

leukocytoclastic-vasculitis-help-info

200198

I’ve been in excruciating pain because of a horrible flare up. Besides pain meds, I get acupuncture and Mayan Massage for the pain. It really helps but it’s expensive. The Leukocytoclastic Vasculitis attacked my intestines twisting them to the point I was crying and even screaming sometimes because of the pain. I’ve ruptured more hemorrhoids this week. It’s depressing me. I’ve had ... Read More

Vascular Disease

Chronic venous insufficiency > what to do?

In: Chronic venous insufficiency (CVI)

UncleJohnny

chronic-venous-insufficiency-what-to-do

200198

I was recently diagnosed with chronic venous insufficiency with leg , ankle, and foot swelling accompanied by pitting edema. Ortho doc put me on compression stockings and Naproxen 375 mg 2X day. Medication does reduce swelling, but wreaks havoc on my stomach and GI tract. Has anyone had success with alternative medicine treatment; my research has suggested using grape seed extract ... Read More

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