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Vascular Disease

Your vascular disease support group and discussion community

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Vascular Disease

Gene testing, precision medicine, and shared information

Brian's journal

Brian

gene-testing-precision-medicine-and-shared-information

200198

Dear members, How should we be thinking about our genetic information when it comes to disease? It’s a question many of us are asking here on Inspire, sometimes very intensely, depending on the nature of the disease. The information we get from our genome can have a direct impact on so much, including how, or if, we can be treated for certain types of disease -- that is the nature ... Read More

Vascular Disease

Maybe Someone Can Figure Me Out....

Fireflies_Are_Magic's journal

Fireflies_Are_Magic

maybe-someone-can-figure-me-out

200198

I originally posted this in the UK forum by mistake and they suggested I post this here. I should add that in the UK forum, they felt it might be Behcet's disease. I don't think that covers all of it, but maybe some of it? Would love some feedback...I'm kinda desperate to figure this out. It just seems to be getting worse. Since 2008 I have been dealing with an unknown disease(s) or ... Read More

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Vascular Disease

What’s the story of your rare disease diagnosis?

Brian's journal

Brian

whats-the-story-of-your-rare-disease-diagnosis-1

200198

Dear members, Today, more than 200,000 Inspire members have a rare condition. You have made Inspire a place to share your experiences with others who understand what you’re going through and help others at the same time. Many of you have described how long it took for you to receive an accurate diagnosis for your rare condition, while some of you found your diagnosis quickly. If you’d ... Read More

Vascular Disease

Ask the Expert: Autoimmune disease researcher Dr. Meghan Free

Chronic-Inspire's journal

Chronic-Inspire

ask-the-expert-autoimmune-disease-researcher-dr-meghan-free

200198

  • 140 Replies
  • Processing ...

Meghan Free, Ph.D., is a basic science researcher who studies autoimmune disease – trying to understand how and why people’s immune systems react to themselves. Dr. Free will be available from Monday, July 24 to Friday, July 28 to answer questions about autoimmune diseases and help explore some of the science behind them. If you would like to ask her a question, we invite you to do ... Read More

Vascular Disease

Anyone Know This Rash?

Fireflies_Are_Magic's journal

Fireflies_Are_Magic

anyone-know-this-rash

200198

I've been getting this rash over the past week--it got really painful for a few days before I even realized it was there so it's probably more like 2 1/2 wks old now. > The rash doesn't itch at all--it just burns like shingles does but it's not shingles. Touching it stings a little, but otherwise it's just a constant burn that gets intense when I kneel or bend down. The worst pain ... Read More

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Vascular Disease

How do you make medical decisions?

Brian's journal

Brian

how-do-you-make-medical-decisions

200198

  • 1,015 Replies
  • Processing ...

Dear members, As patients and caregivers, we have more sources of medical information available to us than ever before to help us make the best decisions possible for our health. Advice from our doctors is sometimes not the same as the information we learn from the experiences of our peers, and there are often other sources of information available as well. Some of our decisions feel ... Read More

Vascular Disease

Chronic venous insufficiency > what to do?

In: Chronic venous insufficiency (CVI)

UncleJohnny

chronic-venous-insufficiency-what-to-do

200198

I was recently diagnosed with chronic venous insufficiency with leg , ankle, and foot swelling accompanied by pitting edema. Ortho doc put me on compression stockings and Naproxen 375 mg 2X day. Medication does reduce swelling, but wreaks havoc on my stomach and GI tract. Has anyone had success with alternative medicine treatment; my research has suggested using grape seed extract ... Read More

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