Active posts

psa anxiety

goodgirl4
  • By goodgirl4 · New reply 2:52 pm
  • Discussion in Local support group leaders · 18 replies
  • how have you guys coped with the anxiety of getting your psa done after5 months after robotic surgery ...

Physicians willing to try combination therapy

FarmerRay
  • By FarmerRay · New reply 2:04 pm
  • Discussion in Treatment options · 19 replies
  • Hello! I have aggressive prostate cancer and have blasted through multiple treatments this last year. I have come to believe that the only way I'll get on top of this thing is with aggressive treatment ...

disappearing bone mets

ryguy119
  • By ryguy119 · New reply 2:03 pm
  • Discussion in Recurrence / advanced disease · 33 replies
  • My recent bone scan on 4/4/14 showed complete healing of 3 out of my 4 bone lesions. The 4th one is also shrinking fast according to my Doctors. Dr. Charles Myers is an amazing Doctor who thinks outside ...

PectaSol-C or Zyflamend

Highanxiety
  • By Highanxiety · New reply 1:35 pm
  • Discussion in Recurrence / advanced disease · 2 replies
  • I am interested in knowing if anyone is, or has taken, these two supplements. There is quite a bit of literature on them and I would appreciate any discussion on these. Thank you ...

PSA down to .1 after 1st Lupron shot

Haliday
  • By Haliday · New reply 1:16 pm
  • Discussion in Recurrence / advanced disease · 14 replies
  • We will learn more at med onc appointment on Wednesday but blood test has PSA down to .1 after first Lupron shot. That's down from 147 in 4 months (it dropped to 39 after one month of Casodex). We assume ...

Focal Laser Ablation patients

1177025
  • By 1177025 · New reply 10:16 am
  • Discussion in Treatment options · 550 replies
  • I had a successful Focal Laser Ablation treatment on January 14, 2013 at the Sperling Prostate Center in Manhattan, New York. I am interested in grouping all of us into one forum to make it easier to ...

How Selenium and Vitamin E Increase Prostate Risk

dave205
  • By dave205 · New reply 9:27 am
  • Discussion in Active surveillance · 18 replies
  • How Selenium and Vitamin E Increase Prostate Risk http://www.ustoo.org/PDFs/HotSheets/HotS heet042014.pdf ...

Lung + prostate cancer caregiver

thetylerhayes
  • By thetylerhayes · New reply 1:57 am
  • Journal · 2 replies
  • Just want to introduce myself since I'm new here. (Not sure if that's what others do but figured I'd take a chance?) I'm 28 and have never had cancer but my dad had small cell lung cancer and passed away ...

Male Sling

Jphil49
  • By Jphil49 · New reply yesterday at 11:35 pm
  • Discussion in Managing side effects · 13 replies
  • I had the robotic surgery for prostate cancer over 2 years ago. The incontinence has been driving me crazy. I had the male sling put in several months ago and it has been a terrible experience. If it ...

Age 53, PSA 6.5, Gleason 3+3, whats next ?

stp1234
  • By stp1234 · New reply yesterday at 6:08 pm
  • Journal · 45 replies
  • Diagnosed in Dec 2013 - Healthy 53 year old male no urinary symptoms - PSA went from 1.2 in 2010 to 2.6 in 2012 to 6.5 in 2013 (two years between first two PSA tests; 18 months until next one was accomplished ...

AUS 800 Artificial Sphyncter

larbra43
  • By larbra43 · New reply yesterday at 5:57 pm
  • Discussion in Treatment options · 5 replies
  • Has anyone had the AUS 800? I am experiencing a great deal of testicular pain at 3 weeks out. Would like to hear from anyone who had one of these ...

A Conversation With Dr. Mark Scholz

dave205
  • By dave205 · Posted yesterday at 2:27 pm
  • Discussion in Newly diagnosed · 0 replies
  • A Conversation With Dr. Mark Scholz Posted April 15, 2014 Dr. Mark Scholz is medical director of Prostate Oncology Specialists Inc. in Marina del Rey, CA a medical oncology practice exclusively focused ...

orchiectomy vs hormonal castration

PPicard
  • By PPicard · New reply yesterday at 12:42 pm
  • Discussion in Treatment options · 34 replies
  • Hello, PSA 300+ , extensive metastatis all over the body, Biopsy 4+3. There is a note that 80% of the cancer volume is 4. However there seem to be two different cancer proliferations. The major one is ...

Role of repeat 3T multiparametric MR imaging for men in Active surveillance

dave205
  • By dave205 · New reply yesterday at 12:23 pm
  • Discussion in Active surveillance · 1 reply
  • Role of repeat 3T multiparametric MR imaging and MR-guided biopsy versus repeat TRUS-guided biopsies after 1 year follow-up in low-risk prostate cancer patients in an active surveillance protocol - Session ...

Proton therapy for salvage treatment after reoccurrence following surgery

X-Rays
  • By X-Rays · New reply yesterday at 11:57 am
  • Discussion in Treatment options · 18 replies
  • I have just read an article on the use of Proton Therapy as a salvage option after reoccurrence following a radical prostatectomy. Is there anyone out there who has tried it and can let me know how it ...

Motorcycles and Lupron Injections

Highanxiety
  • By Highanxiety · New reply yesterday at 11:51 am
  • Discussion in Recurrence / advanced disease · 6 replies
  • My 68 year old husband is on casodex and will begin his first Lupron injection on Monday. He feels that his motorcycle riding days are over, mainly because of the situation he may/will have with bone ...

Xtandi

starting2010
  • By starting2010 · New reply yesterday at 2:39 am
  • Discussion in Treatment options · 8 replies
  • have been on Xtandi for 2-1/2 moths wondering what can be expected for side effects? and what is the next step if this fails ...

We’re home. 1,632 miles – 5 states – 8 days – warmth - golf.

Katuha
  • By Katuha · New reply yesterday at 12:49 am
  • Journal · 22 replies
  • I spend a lot of time on my computer because I’m retired and I obviously don’t have anything better to do right now. If spring ever comes, maybe I’ll find something else to do. Just before we left, I ...

Cannabis for Cancer

Elucidated1
  • By Elucidated1 · New reply April 14, 2014
  • Discussion in Managing side effects · 18 replies
  • I'll be a panelist with Dr. Donald Abrams fom UCSF on CurePanel Talk Radio on April 15 when he discusses Cannabis for Cancer. http://curepanel.carefeed.net/event/rsvp /22/ Cure Panel Talk Radio is an ...

Phase III Clinical Trial S1216 - TAK-700

Highanxiety
  • By Highanxiety · New reply April 14, 2014
  • Discussion in Recurrence / advanced disease · 2 replies
  • This clinical trial is to find out what effects there are to adding the new drug TAK-700 (orteronel) to standard hormone therapy. Are any of you on this trial or know anything about the results so far ...

Things you can do

Support Us TOO International

Help Us TOO International Prostate Cancer Education & Support Network reach its goals and support people like yourself by making a donation today.

Donate to  Us TOO International Prostate Cancer Education & Support Network

Discussion topics

Us TOO Education Tools & Resources

Get Involved with Us TOO

Community leaders