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Us TOO Prostate Cancer

Prostate cancer support group and discussion community

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Us TOO Prostate Cancer

Being careful with advise.

In: Newly diagnosed

1Randy

being-careful-with-advise

200125

  • 48 Replies

Hi guys. Just a reminder to be careful with advise. We're all in this together. New guys want to know what to expect and what treatment options might be available. Not everything is right for every guy. Some tests and treatments aren't available to everyone and might not be covered by their insurance if they are. There's no reason to scare a new guy. He just found out he has cancer ... Read More

Us TOO Prostate Cancer

PSA rising on Zytiga

In: Treatment options

dayfit

psa-rising-on-zytiga-2

200125

  • 2 Replies

My husband has castration resistant Prostate Cancer that has advanced to his bones. He has many bone lesions but an especially large one on his right femur (15 cm). After being on ZYTIGA for several months, his PSA is rising again. His oncologist says the rise in PSA is probably caused by this large bone lesion. Does this sound right? I am afraid he just wants to prescribe radiation ... Read More

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Us TOO Prostate Cancer

Could this be the breakthrough we pray for....

In: Treatment options

X-Rays

could-this-be-the-breakthrough-we-pray-for

200125

  • 10 Replies

Hi All, Just a quick note about my journey so far. Had a Robotic Prostatectomy in 2012. Cancer had spread to Seminal Vesicles. Gleason 3+4 (7) Stage pT3b. PSA kept rising over past few years and completed salvage IMRT December last year. I have just read an interesting media release regarding some exciting work being carried out by Deakin University in Australia. It's headed Prostate ... Read More

Us TOO Prostate Cancer

MRI results and questions

In: Active surveillance

burpy200

mri-results-and-questions

200125

  • 26 Replies

Finally got my prostate MRI results back. I'm actually encouraged, but I'm not sure if I should be. A year and a half ago I was diagnosed with low grade PC. Gleason 6 scores in four areas. I changed my diet and began exercising. My PSA has dropped from 6.4 to 4.2. The MRI showed only on "small, but suspicious lesion. It was given a PIRADS4, means that I have a clinically "significant ... Read More

Us TOO Prostate Cancer

No bike riding before PSA test even after RP

In: Managing side effects

firespooks

no-bike-riding-before-psa-test-even-after-rp

200125

  • 11 Replies

My oncologist said I shouldn't ride my bike a few days before my PSA test even though I've had my prostate removed. He said that certain activities can alter the test whether there is a prostate or not. I've even had salvage radiation . Anyone ever hear any thinking on this subject ? Thank You, Steve ... Read More

Us TOO Prostate Cancer

Fatigue and Muscle Cramping

In: Managing side effects

nolongerinvincble

fatigue-and-muscle-cramping

200125

  • 26 Replies

Hello folks.Since I get my shot of T destroyer once every 3 months i am also on casodex.I used to run in races of several miles and work like an immigrant right off the boat.I now fatigue easily and barely can run a mile.I get leg cramps,and having gained 20 pounds after getting my taste buds back after chemo the muscles just above the knee ache.Any thoughts out there on what my issue ... Read More

Us TOO Prostate Cancer

Transitioning to Medicare During PC Treatment

In: Newly diagnosed

z1JohnH

transitioning-to-medicare-during-pc-treatment

200125

  • 5 Replies

I am in the process of determining whether or not to treat my PC with RP or EBRT. I was planning to do the treatment after the holidays because my wife and I and all are five adult children have a week vacation planned together over Christmas. As such, if I go the EBRT treatment route which is my current bias, I will be transitioning to Medicare on February 1st which will be about ... Read More

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Us TOO Prostate Cancer

Confused

In: Newly diagnosed

Cindy8163

confused-416

200125

  • 16 Replies

Hi. My husband (54) is recently diagnosed with Gleason 7 (4+3) anterior apex tumor on a MRI fusion biopsy done at NYU. The mass is approximately 2 Cm and extracapsular extension is suspected on MRI. Surgery has been recommended and our surgeon whom I totally trust believes he can achieve negative margins at surgery. He will also have a lymph node dissection at surgery. Surgeon slso ... Read More

Us TOO Prostate Cancer

Talk to me about upron long term effects please.

In: Treatment options

PopH

talk-to-me-about-upron-long-term-effects-please

200125

  • 5 Replies

I have been told by the oncologist that I would need 2 years of hormone therapy after the cyber knife. I am seeing some scary things here about luron, in addition to the hot flashes, ed, libido loss, muscle loss, bone loss and other things the doc said "could" happen. Has anyone had long term Lupron without these devastating side effects ... Read More

Us TOO Prostate Cancer

Clinical Trials for prostate treatments - questions

In: Clinical trials

cruzmom4

clinical-trials-for-prostate-treatments-questions

200125

  • 2 Replies

I'm researching clinical trials for my husband and I haven't been involved in them ever before... some questions.... Is there any chance for reimbursement through an insurance company if he is part of a clinical trial? Anyone have success? Do most US clinical trials charge the patients for the treatment? If there are retail options vs clinical trial, does it matter which we choose ... Read More

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