The Us TOO Prostate Cancer Support Community connects patients, families, friends and caregivers to enhance the quality of life for all those affected by prostate cancer... More about this group

insomnia from lupron

ron56
  • By ron56 · New reply 9:33 am
  • Discussion in Managing side effects · 4 replies
  • hi this is ron and i would to ask again if anybody else suffers from insomnia because of lupron and how you are dealing with it? what do you do to help your sleep? please respond need some information ...

Anyone with experience re tumor testing

JBell
  • By JBell · New reply 9:10 am
  • Discussion in Recurrence / advanced disease · 17 replies
  • Long story short: My husband has done all the traditional/gold standard treatments since we've been battling his prostate cancer over the course of the past 21 years (diagnosed at 41)--he'll be 63 in ...

Focal Laser Ablation patients

1177025
  • By 1177025 · New reply 7:48 am
  • Discussion in Treatment options · 619 replies
  • I had a successful Focal Laser Ablation treatment on January 14, 2013 at the Sperling Prostate Center in Manhattan, New York. I am interested in grouping all of us into one forum to make it easier to ...

58 with prostate cancer

CharlesS
  • By CharlesS · New reply 6:01 am
  • Discussion in Newly diagnosed · 27 replies
  • I have been reading some posts of other members here, and realize that I am very lucky compared to many others. Still this whole thing scares the h*** out of me. I am a 58 year-old who was diagosed with ...

Cost/insurance re focal laser ablation

scottfried
  • By scottfried · New reply yesterday at 5:08 pm
  • Journal · 1 reply
  • Has anyone compiled a list of the cost for focal laser ablation where it is practiced, and which insurance companies are paying for the procedure, even if only partially? And any related tips in this ...

Brachytherapy Bounce

hopper765
  • By hopper765 · New reply yesterday at 3:43 pm
  • Discussion in Recurrence / advanced disease · 3 replies
  • Has anybody had experience of Brachytherapy Bounce. Was diagnosed in July 2012 and had 66 seeds inserted in October 2012. PSA pre treatment was 5.5 and PC found in 3 of 12 core samples with Gleason 7 ...

5 months post RP Surgery

Soyke
  • By Soyke · New reply yesterday at 3:20 pm
  • Discussion in Managing side effects · 4 replies
  • I'm not sure if there are mean averages in this business, but it is always somewhat interesting to compare notes.....I am 69 years old and in good health and good shape physically.....The robotic surgery ...

AMS 700 MS Penal Implant

Rich50
  • By Rich50 · New reply yesterday at 2:18 pm
  • Discussion in Managing side effects · 10 replies
  • Had "da Vinci" RP over 6 years ago having every complication possible. Now after penal rehab failure with Viagra after RP and also failure with all other PDE5 inhibitors ; Needing to control incontinence ...

10 weeks Post RP & still having bladder control issues

Otis857
  • By Otis857 · New reply yesterday at 11:22 am
  • Journal · 5 replies
  • My issues began at week 4 and are still ongoing - I get sudden nearly uncontrollable, and hard urges to urinate whether or not I have much in the tank, usually not. Many times, its all I can do to get ...

SRT with negative margins

willda109
  • By willda109 · New reply April 22, 2014
  • Discussion in Treatment options · 7 replies
  • I'm facing the issue of having salvation radiation therapy or not with negative margins, no indication of cancer in seminal vessels or lymph nodes, but with lymphatic (small vesse) invasion and persistent ...

USPSTF Recommendation of NO PSA Screening - Here's something you can do

mazdaguy
  • By mazdaguy · New reply April 22, 2014
  • Discussion in Screening and early detection · 8 replies
  • A few months ago, US Senator Jeff Sessions from Alabama introduced Senate Resolution 251 calling for the United States Preventive Services Task Force (USPSTF) to reevaluate the recommendation that men ...

3 Years After RP With No Regrets

puddlesalltheway
  • By puddlesalltheway · New reply April 22, 2014
  • Journal · 15 replies
  • My RP was 3 years ago yesterday. Members in my family have been dropping like flies for years and I was prepared to meet this head on when the time came as the cells were known to be aggressive in type ...

Prostate Focal Laser Ablation

readyforfunnow
  • By readyforfunnow · New reply April 22, 2014
  • Discussion in Treatment options · 26 replies
  • I was diagnosed on 11 December, 2013. Two 1cc tumors, gleason score 3+4 each, one in each lobe. I have had a CT of the pelvic area - negative and a whole body bone scan - negative. I was diagnosed with ...

Need help to get zytiga

Frankr848
  • By Frankr848 · New reply April 22, 2014
  • Discussion in Treatment options · 7 replies
  • Hi, new to forum. My dad has met to bones. He needs zytiga. He has insurance, but it will cost him 2700.00 for the first 2 months then all his insurance is used up. The following months he will have to ...

Age 53, PSA 6.5, Gleason 3+3, whats next ?

stp1234
  • By stp1234 · New reply April 22, 2014
  • Journal · 61 replies
  • Diagnosed in Dec 2013 - Healthy 53 year old male no urinary symptoms - PSA went from 1.2 in 2010 to 2.6 in 2012 to 6.5 in 2013 (two years between first two PSA tests; 18 months until next one was accomplished ...

Diabetic needing a biopsy

iconoclast6
  • By iconoclast6 · New reply April 21, 2014
  • Journal · 1 reply
  • Hi Folks, I'm new here. I had a baseline PSA of 2.8 that jumped to 4.8. After a round of antibiotics, it dropped to 3.7 and then went up to 4.5. I'm on another round of antibiotics, but expect to have ...

Broke my heart...

smroush
  • By smroush · New reply April 21, 2014
  • Discussion in Wives, family, friends and caregivers · 5 replies
  • When I was first diagnosed with prostate cancer at 62 I felt I was too young. The doctors used all the old Cancer language - advanced, incurable, aggressive. But in radiation therapy I say a 4 year old ...

Getting proton treatment covered by Individual health plan?

novatimo
  • By novatimo · Posted April 21, 2014
  • Journal · 0 replies
  • Are there any men on this list living in either Florida or California who underwent proton treatment within the past year or so and had it paid for under an INDIVIDUAL health plan (NOT an employer-paid ...

Provenge and Eosinophils

Kayakbob
  • By Kayakbob · New reply April 21, 2014
  • Discussion in Treatment options · 2 replies
  • (continued from Ready to start Provenge - any advice thread) Completed Provenge treatment on 4-4-14, went quite well. Went to see dr. last Monday 4-14 re general weakness & other SE's, and had blood work ...

Medical Marijuana. Let's debate.

Katuha
  • By Katuha · New reply April 21, 2014
  • Journal · 378 replies
  • AN OPINION: My Sister, who is a RN and who suffers from constant continual severe pain as well as depression from many problems, will not use legal medical MJ for fear her primary physician will be angry ...

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The Us TOO Prostate Cancer Support Community connects patients, families, friends and caregivers to enhance the quality of life for all those affected by prostate cancer. This community is sponsored by Us TOO International Prostate Cancer Education & Support Network, an Inspire trusted partner.