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What's HappenINN: May 9th, 2012

Ryan_Whited
  • By Ryan_Whited · Posted May 9, 2012
  • Journal · 0 replies
  • 4:30pm Club Incredible: Mother's Day Gift Activity 6:00pm Family Dinner by Jeff Sklaver and Friends 7:00pm Family Night in the Garden To see what's going on the rest of the month check out the Inn's website ...

What's HappenINN: May 8th, 2012

Ryan_Whited
  • By Ryan_Whited · Posted May 8, 2012
  • Journal · 0 replies
  • 3:15pm Kid's Soccer Clinic with F.S. Soccer 4:30 Theatre with Only Make Believe 6:00pm Family Dinner by NICHD 6:30pm Grocery Store Run 7:00pm BINGO To see what's going on the rest of the month check out ...

What's HappenINN: May 7th, 2012

Ryan_Whited
  • By Ryan_Whited · Posted May 7, 2012
  • Journal · 0 replies
  • 4:30pm Kid's Exercise 6:00pm Family Dinner by CHS Group 6:30pm Grocery Store Run 7:00pm Family Night To see what's going on the rest of the month check out the Inn's website at childrensinn.org and follow ...

What's HappenINN: May 3rd, 2012 - May 5th, 2012

Ryan_Whited
  • By Ryan_Whited · Posted May 3, 2012
  • Journal · 0 replies
  • Thursday: 10:00am Only Make Believe 5:00pm ExploreInn Science Activity in the Learning Center 6:30pm Grocery Store Run (please sign up at welcome desk) Friday: 2:00pm Freaky Friday: Kid's Activity at ...

What's HappenINN: May 1st, 2012

Ryan_Whited
  • By Ryan_Whited · Posted May 1, 2012
  • Journal · 0 replies
  • 3:15pm Kid's Soccer Clinic with F.S. Soccer 4:30pm Parent Reception & Snack and Discover 6:00pm Family Dinner by the Salsbury Family 6:30pm Grocery Store Run (please sign up at welcome desk) 7:00pm Art ...

What's HappenINN: April 26th, 2012 - April 28th, 2012

Ryan_Whited
  • By Ryan_Whited · Posted April 26, 2012
  • Journal · 0 replies
  • Thursday: 4:30pm Earth Day "Lorax" Snack & Discover with Vi 6:30pm Grocery Store Run Friday: 2:00pm Freaky Friday: Kid's Activity Saturday: 12:00pm Trip to Montgomery Mall and Grocery Store Run (please ...

What's HappenINN: April 23rd, 2012

Ryan_Whited
  • By Ryan_Whited · Posted April 23, 2012
  • Journal · 0 replies
  • 4:30pm Creative Cooking Kitchen C/D 6:30pm Grocery Store Run (please sign up at welcome desk) 6:00pm Family Dinner by Temple Sinai 7:00pm Family Night with the Theatre Lab To see what's going on the rest ...

What's HappenINN: April 19th, 2012 - April 22nd, 2012

Ryan_Whited
  • By Ryan_Whited · Posted April 19, 2012
  • Journal · 0 replies
  • Thursday: 5:00pm ExploreInn Science Activity in the Learning Center 6:30pm Grocery Store Run (please sign up at welcome desk) Friday: 2:00pm Freaky Friday: Kid's Activity Saturday: 12:00pm Trip to Montgomery ...

What's HappenINN: April 18, 2012

Ryan_Whited
  • By Ryan_Whited · Posted April 18, 2012
  • Journal · 0 replies
  • 10:30am Baking a Difference with volunteers in the E Kitchen 4:45pm Free Dinner Trip to Ledo Pizza (please sign up at activity table) 7:00pm Teen Night To see what's going on the rest of the month check ...

What's HappenINN: April 16, 2012

Ryan_Whited
  • By Ryan_Whited · Posted April 17, 2012
  • Journal · 0 replies
  • 3:15pm Field Trip to Circle of Hope: Horse Back Riding Center (please sign up at activity table) 3:15pm Soccer Clinic with F.S. Soccer 4:30pm Prent and Caregiver Gathering & Dinosaur Egg Hunt with Viola ...

What's HappenINN: April 16, 2012

Ryan_Whited
  • By Ryan_Whited · Posted April 16, 2012
  • Journal · 0 replies
  • 12:30pm Manchester Orchestra Concert at NIH Auditorium 4:30pm Kid's Exercise 6:00pm Family Dinner by Visa Government Services 6:30pm Grocery Store Run (please sign up at welcome desk) 6:30pm NIH Movie ...

The Inspire Q&A: Inspire talks with Howard Luks, MD

John2
  • By John2 · New reply April 15, 2012
  • Journal · 59 replies
  • Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...

What's HappenINN: April 5th, 2012 - April 8th, 2012

Ryan_Whited
  • By Ryan_Whited · Posted April 5, 2012
  • Journal · 0 replies
  • Thursday: 5:00pm ExploreINN: Science Activity in the Learning Center 6:30pm Grocery Store Run Friday: 2:00pm Freaky Friday: Kid's Activity Saturday: 12:00pm Trip to Montgomery Mall and Grocery Store Sunday ...

What's HappenINN: April 3rd, 2012

Ryan_Whited
  • By Ryan_Whited · Posted April 3, 2012
  • Journal · 0 replies
  • 3:15pm Soccer Clinic with F.S. Soccer 4:30pm Parent and Caregiver Gathering & Snack and Discover 5:00pm-7:00pm Seated Massage for adults 6:00pm Family Dinner by N.I. Child Health and Development 6:30pm ...

What's HappenINN: April 2nd, 2012

Ryan_Whited
  • By Ryan_Whited · Posted April 2, 2012
  • Journal · 0 replies
  • 4:30pm Yoga for Caregivers & Kid's Exercise 6:00pm Family Dinner by CHS Group 6:30pm Grocery Store Run (please sign up at welcome desk) 7:00pm Family Night To see what's going on the rest of the month ...

Family Update from the better side of Cancer

JLH1
  • By JLH1 · New reply March 30, 2012
  • Journal · 2 replies
  • Hi Friends, It has been a long time since I have written anything for this site. It seems that as time passes our family’s cancer experience with my daughter Ashley drifts farther from my thoughts. It ...

What's HappenINN: March 28th, 2010

Ryan_Whited
  • By Ryan_Whited · Posted March 28, 2012
  • Journal · 0 replies
  • 4:30pm Science Activity with UMD 6:00pm Family Dinner by Green Acres Book Club 6:00pm-8:00pm Spiritual Support 6:00pm YANO: Adult Night Out to Dave and Busters! (please sign up at the activity table ...

Does My Daughter have HIDS or FMF?

momtolpem
  • By momtolpem · New reply March 27, 2012
  • Discussion in Rare and Genetic Diagnosis · 10 replies
  • Hi, My 14 month old daughter has been having periodic fevers since about 6 months of age. They have been on a 21 day cycle, but lately have increased to every 14 days. She has been diagnosed with a periodic ...

What's HappenINN: March 27th, 2010

Ryan_Whited
  • By Ryan_Whited · Posted March 27, 2012
  • Journal · 0 replies
  • 3:15pm Yoga for Caregivers & Soccer Clinic for Kids with F.S. Soccer 4:30pm Parent and Caregiver Gathering & Snack and Discover 5:00pm-7:00pm Seated Massage for adults 6:00pm Family Dinner by Blessed ...

Fever Syndromes and muscle laxity/hypotonia

GBasile
  • By GBasile · New reply March 26, 2012
  • Discussion in Rare and Genetic Diagnosis · 1 reply
  • Hi Everyone, Just wondering if any of you or your children have experienced hypotonia/muscle laxity? Our son has been physically delayed and has hypotonia/laxity and also has trouble with balance and ...

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