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Today at the INN: Monday, April 4th

BKuz
  • By BKuz · Posted April 4, 2011
  • Discussion in My First Visit to The Children's Inn at NIH · 0 replies
  • Soup Luncheon in the Bistro- 1:00PM AdventureINN DC Cherry Blossom Field Trip- 3:30PM Grocery Store Run- 6:30PM Family Movie Night in Multipurpose Room- 7:00PM Hope to see you there! To see what's going ...

Today at the INN: Thursday, March 31st

BKuz
  • By BKuz · Posted March 31, 2011
  • Discussion in My First Visit to The Children's Inn at NIH · 0 replies
  • ExploreINN- 5:00PM Family Dinner- 6:00PM NIH Clinical Center Trip to Old Town Alexandria, VA- 6:30PM Grocery Store Run-6:30PM Hope to see you there! To see what's going on the rest of the month check ...

Today at the INN: Wednesday, March 30th

BKuz
  • By BKuz · Posted March 30, 2011
  • Discussion in My First Visit to The Children's Inn at NIH · 0 replies
  • Free Dinner Trip to the Doubletree- 4:30PM Spiritual Support- 6:00PM to 8:00PM Purim Holiday Story Time & Dessert- 7:00PM Hope to see you there! To see what's going on the rest of the month check out ...

Anyone have TRAPS and FMF

makennas_mom
  • By makennas_mom · Posted March 29, 2011
  • Discussion in Rare and Genetic Diagnosis · 1 reply
  • My 6 year old daughter has been sick most of her life and has been tested for everything under the moon, except Periodic Fevers, until recently. She has mutations for both TRAPS and FMF. She is currently ...

Today at the INN: Tuesday, March 29th

BKuz
  • By BKuz · Posted March 29, 2011
  • Discussion in My First Visit to The Children's Inn at NIH · 0 replies
  • Parent Reception- 4:30PM Homework Club- 4:30PM Family Dinner with live music by Richard Montgomery UNICEF club- 6:00PM Grocery Store Run- 6:30PM Chill-INN Kids Club- 7:00PM Hope to see you there! To see ...

The Children's Hosiptial

Tuffy
  • By Tuffy · Posted March 28, 2011
  • Discussion in My First Visit to The Children's Inn at NIH · 0 replies
  • Hi all!! its been a while since ive posted on here due to things that are uncontrollable in life. now that were caught up. i can now "share our experience". How lovely!! ANYWAY.... my daughter who is ...

Today at the INN: Monday, March 28th

BKuz
  • By BKuz · Posted March 28, 2011
  • Discussion in My First Visit to The Children's Inn at NIH · 0 replies
  • Meet the Author Story Time- 5:00PM Family Dinner & Face Painting- 6:00PM Grocery Store Run- 6:30PM Teen Night- 7:00PM Hope to see you there! To see what's going on the rest of the month check out the ...

Today at the INN: Thursday, March 17th

BKuz
  • By BKuz · Posted March 17, 2011
  • Discussion in My First Visit to The Children's Inn at NIH · 0 replies
  • NIH CC St. Patrick's Day Party- 5:30PM Grocery Store Run- 6:30PM Community Meeting in Spanish- 4:30PM Hope to see you there! To see what's going on the rest of the month check out the Inn's website at ...

Today at the INN: Wednesday, March 16th

BKuz
  • By BKuz · Posted March 16, 2011
  • Discussion in My First Visit to The Children's Inn at NIH · 0 replies
  • Free Dinner Trip to Ledo's Pizza- 4:45PM Spiritual Support- 6:00PM-8:00PM Art Activity- 7:00PM Hope to see you there! To see what's going on the rest of the month check out the Inn's website at childrensinn.org ...

Today at the Inn: Tuesday, March 15th

BKuz
  • By BKuz · Posted March 15, 2011
  • Discussion in My First Visit to The Children's Inn at NIH · 0 replies
  • AdventureINN Field Trip to the Portrait Gallery-3:30PM Parent Reception- 4:30PM Family Dinner- 6:00PM Grocery Store Run- 6:30PM Scrapbooking- 7:00PM Hope to see you there! To see what's going on the rest ...

Today at the INN: Monday, March 14th

BKuz
  • By BKuz · Posted March 14, 2011
  • Discussion in My First Visit to The Children's Inn at NIH · 0 replies
  • Stretching with Marga- 4:30PM Chill-INN Kids' Club St. Patty's Day Scavenger Hunts- 4:30PM Family Dinner- 6:00PM Grocery Store Run- 6:30PM Teen Night- 7:00PM Dog Visit-7:00PM Hope to see you there! To ...

The Inspire Q&A: Inspire talks with “e-Patient Dave” deBronkart

John2
  • By John2 · Posted March 14, 2011
  • Journal · 35 replies
  • Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...

Today at the INN: Thursday, March 10th

BKuz
  • By BKuz · Posted March 10, 2011
  • Discussion in My First Visit to The Children's Inn at NIH · 0 replies
  • Explore INN- 5:00PM Grocery Store Run- 6:30PM NIH Clinical Center (CC) Movie Trip- 6:30PM Hope to see you there! To see what's going on the rest of the month check out the Inn's website at childrensinn.org ...

Today at the INN: Wednesday, March 9th

BKuz
  • By BKuz · Posted March 9, 2011
  • Discussion in My First Visit to The Children's Inn at NIH · 0 replies
  • Waffle Bar Breakfast- 8:00AM Fused Glass Art- 4:30PM Family Dinner by Jeff Sklaver and Friends- 6:00PM Spiritual Support- 6:00PM-8:00PM Hope to see you there! To see what's going on the rest of the month ...

Today at the INN: Tuesday, March 8th

BKuz
  • By BKuz · Posted March 8, 2011
  • Discussion in My First Visit to The Children's Inn at NIH · 0 replies
  • Parent Reception- 4:30PM Homework Club- 4:30PM Grocery Store Run- 6:30PM BINGO- 7:00PM Hope to see you there! To see what's going on the rest of the month check out the Inn's website at childrensinn.org ...

New feature - Change the background color

Walter
  • By Walter · Posted March 7, 2011
  • Journal · 36 replies
  • Hello everyone, Hope this finds you well. I'm writing to let you know about a new feature in Inspire -- an option to change the background color of our pages from white to another color of your choosing ...

Today at the INN: Thursday, March 3rd

BKuz
  • By BKuz · Posted March 3, 2011
  • Discussion in My First Visit to The Children's Inn at NIH · 0 replies
  • Chill-Inn Kid's Club - Fused Glass art: 4:30PM Relaxation with Marga- 4:30 PM NIH Clinical Center Trip to Montgomery Playhouse's "Stones in His Pockets"- 6:30PM Grocery Store Run- 6:30PM Hope to see you ...

Today at the Inn: Tuesday, March 1st

BKuz
  • By BKuz · Posted March 1, 2011
  • Discussion in My First Visit to The Children's Inn at NIH · 0 replies
  • Parent Reception- 4:30PM Homework Club- 4:30PM Grocery Store Run- 6:30PM Scrapbookng- 7:00PM Hope to see you there! To see what's going on the rest of the month check out the Inn's website at childrensinn.org ...

Today at the INN: Monday, February 28th

BKuz
  • By BKuz · Posted February 28, 2011
  • Discussion in My First Visit to The Children's Inn at NIH · 0 replies
  • Stretching with Marga- 4:30PM Family Dinner by NIH Fellows- 6:00PM Grocery Store Run- 6:30PM Teen Night- 7:00PM ChillINN Kid's Night- 7:00PM Hope to see you there! To see what's going on the rest of the ...

Patients Organinsation for Carney Complex

motorgirl85
  • By motorgirl85 · Posted February 27, 2011
  • Journal · 10 replies
  • Hello to everyone that has found their way to this journal entry. I am 25 years old and was diagnosed with Carney Complex. Besides Carney Complex I also have Cushings and Acromegaly. I've always been ...

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