We are looking for other families dealing with HIDS. We have an almost 3 yr old son who was diagnosed at about 19 months. We have been going to the NIH since April 2007 about every 3 months. We have met many wonderful families during our trips and love the community at the NIH. We would love to hear from another family who may be going thru some of the same issues we are concerning HIDS. Right now our son is doing ok, but that can change in a heart beat.