Journals

Further treatment

susiesnowbaby
  • By susiesnowbaby · Posted September 9, 2012
  • 2 replies
  • Well tomorrows the day. Hopefully I will have the third wire successfully implanted and my heart will settle down to some sort of "normality". Will be in touch ...

sudden death of my husband

annmcdon
  • By annmcdon · Posted September 7, 2012
  • 13 replies
  • I am still in total shock at the sudden death of my husband a month ago. I am wondering whether anyone has any knowledge of the anti-depressant citalopram and sudden cardiac arrest? My husband had been ...

Working God's Plan for Brenna's Life

pamhopefulheart
  • By pamhopefulheart · Posted August 30, 2012
  • 18 replies
  • On September 22, 2012, I will begin the journey from Idaho to Washington, DC, taking the message to our politicians that change in brain injury rehabilitation must come. Along the way, I will meet with ...

Treat your heart to 2000 member virtual choir moment

martzj
  • By martzj · Posted August 28, 2012
  • 10 replies
  • Humans who had never met....singing alone...together. Watch a TED talk video of Eric Whitacre's "virtual choir" project below. At bottom of the page is video of 'Water Night' sung by virtual choir 3 ...

EHLERS DANLOS SUPPORT GROUP MEETING

lori326
  • By lori326 · Posted August 24, 2012
  • 0 replies
  • Sept 22 ,from 3-5 pm is the EDS support group meeting,at Barnes and Nobles in Lancaster Pa ,IN THE CHILRENDS SECTION. If you have or know someone who has EDS or just to find out more come share with us ...

Ehlers danlos syndrome support group

lori326
  • By lori326 · Posted August 14, 2012
  • 2 replies
  • August 18th is the next EhlersDanlos Support group here in lancaster pa at Barnes and Nobles,from 3-5 pm. Please if you or someone you know has this or you want to learn more please come ...

Sources sought for article on multiple chronic condition

John2
  • By John2 · Posted August 13, 2012
  • 0 replies
  • From: John Novack, Communications Director, Inspire Dear members, A reporter for the Deseret News newspaper (http://www.deseretnews.com) is writing an article about working older Americans with multiple ...

SCA and after.

susiesnowbaby
  • By susiesnowbaby · Posted August 13, 2012
  • 5 replies
  • After having a SCA in January this year I had a defibrillator fitted, only partially successful as it was not possible to place the third wire and the vein was getting damaged. So I now got a new date ...

Remember the Heroes

CJPS
  • By CJPS · Posted August 6, 2012
  • 2 replies
  • This little story is a bit long, but bear with me. I think it could be important to some and for some. Or maybe I just need to share. The set-up: 3 years ago at 4am, my husband suffered SCA. The ambulance ...

I am Carissa

BlueLightningJeep
  • By BlueLightningJeep · Posted July 27, 2012
  • 10 replies
  • Hello! Please let me introduce myself. My name is Carissa Renee Haston. I was born in Chattanooga, TN on Oct. 28, 1977. I grew up five minutes from the Little Debbie snack cake factory in Collegedale ...

Too Easily Dissatisfied

BlueLightningJeep
  • By BlueLightningJeep · Posted July 17, 2012
  • 6 replies
  • There was a blind girl who hated herself because she was blind. She hated everyone, except her loving boyfriend. He was always there for her. She told her boyfriend, 'If I could only see the world, I ...

EDS LOCAL SUPPORT GROUP

lori326
  • By lori326 · Posted July 16, 2012
  • 0 replies
  • There is a support group meeting for EDS ON Saturday-July 21st from 3-5 pm,at BARNES AND NOBLES in the childrens center, in Lancaster Pa on Fruitville Pike in shopping center .Anyone interested in meeting ...

Update > positive :)

FunSyze
  • By FunSyze · Posted July 10, 2012
  • 21 replies
  • Yesterday was a good day full of energy and I had a very productive day, Praise God :) Im feeling better than the day I went to the hospital. It took me about three days to recover. Im just tired and ...

Please pray for me, I am not looking forward to this round....of my lupus

FunSyze
  • By FunSyze · Posted July 8, 2012
  • 33 replies
  • The first time I started posting on here, I was going to a lot of dr. visits, and my specialist trying to figure out what was happening. I ended up in the hospital as you will see from my earlier posts ...

CAUSES

julieshrive
  • By julieshrive · Posted June 28, 2012
  • 3 replies
  • Could the unseen spina bifida of sacrum be causing acute bouts of excrutiating pain & near paralysis resolved witin hours by adding to uti medication. Could stem cells help? Or could the heart be involved ...

Released: Condemned to Die: Ask me how. Tell me why.

pamhopefulheart
  • By pamhopefulheart · Posted June 24, 2012
  • 24 replies
  • I just checked and the publishing company has released the book to Amazon. I wasn't expecting this until July 1st. I don't understand publishing but just thought I would catch you up. http://www.amazon.com/s/ref=nb_sb_noss?u ...

Research needed UK ?

julieshrive
  • By julieshrive · Posted June 17, 2012
  • 0 replies
  • I have several diagnosis to a certain extent ignored eg: chronic utis 3 weekly are not re:SBO, also CFS / fibro & cardiac arrest . The utis are out of control if left longer than 3 weeks . If I up my ...

Medtronic - careline monitor

susiesnowbaby
  • By susiesnowbaby · Posted June 2, 2012
  • 0 replies
  • I've just got my super new monitor. It monitors me anywhere in the house 24/7 and will send any irregularities to the hospital via the phone line. Also I don't have to attend every appointment as the ...

Condemned to Die: Ask me how. Tell me why.

pamhopefulheart
  • By pamhopefulheart · Posted June 1, 2012
  • 16 replies
  • Brenna's book is complete. I just sent in the sign-off for the cover. The book has been assigned a Library of Congress ID number and a SKU. Seeing those two things made this more real. It won't be long ...

One year and counting!

bobso
  • By bobso · Posted May 16, 2012
  • 3 replies
  • On the occasion of my first "re-birthday" today, I would like to thank this online community for the wonderful posts and information that you have shared. I've learned so much from all of you! Today I'm ...

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