Sarcoidosis can affect almost any organ in the body. Symptoms typically depend on which organ the disease affects. Discuss your specific organ symptoms (lung, heart, eyes, skin, central nervous system) and meet others who have had similar experiences.



CorgiLuv (Inactive)
  • By CorgiLuv (Inactive) · New reply July 27, 2013
  • 11 replies
  • Has anyone experienced sarcoid lesions that eventually spit out hard white particles that resemble salt grains-except they are a brilliant more solid white color? Also, has anyone experienced some of ...

Should I See a Sarcoid Specialist?

  • By ChrisAZ · New reply July 27, 2013
  • 10 replies
  • Good evening everyone, My name is Chris, I am a 33 year old male who was diagnosed with stage 1 Sarcoidosis through a chest lymph node biopsy last month. I have no lung or eye involvement but had systemic ...

heart palpatations and pulmonary sarcoid

  • By TopGun · New reply July 26, 2013
  • 25 replies
  • Hi everyone, I figured you all might have better answers than the doctors ;) since you all live with sarcoidosis as well... I was diagnosed with pulm sarc by lung biopsy in March. Since then, I have decided ...

Does anyone have bladder issues caused by neuro sarc and need to self cath?

  • By Chihuahualady · New reply July 26, 2013
  • 9 replies
  • My neurologist says that neuro sarc has affected the nerves running to my bladder and I often have to self catheterize which can lead to UTIs and kidney infections. Biopsies of my bladder are negative ...

Pain in soft tissue and nerve endings

  • By muddle64 · New reply July 26, 2013
  • 15 replies
  • I have had pain in my soft tissue for years consistent with a diagnosis of fibromyalgia and then sarcoidosis . This chronic pain has for years been more severe in areas of pressure/trigger points but ...

Pain in palms, fingers and feet

  • By Kayemom · New reply July 26, 2013
  • 7 replies
  • Over the past three months I've developed severe pain in my fingers, wrists, arms, and the bottom of my feet. The pain is usually at its most intense in the evening and is not consistent. I could have ...

Vibrating foot

  • By TheTinman007 · New reply July 26, 2013
  • 16 replies
  • I've had numbness, pins and needles, tingling, and pain in my hands and feet for quite sometime now. I've just started having a sensation in my left foot that I can only describe as like a cell phone ...

Change in symptoms

  • By LauraB1165 · New reply July 26, 2013
  • 15 replies
  • I am fairly new to the Sarcoidosis diagnosis, so forgive my ignorance. I was only diagnosed in the past 6 months. My treatment protocol is...well, there isn't one. I am being "followed," for lack of a ...

pyoderma gangrenosum

  • By hjpblue · New reply July 25, 2013
  • 11 replies
  • I know I haven't posted in a while, even stopped reading this site because i felt so hopeless of ever getting better. While i still feel the same i decided to start again researching and trying to find ...

feeling beat up

  • By Vickyv · New reply July 24, 2013
  • 4 replies
  • For the last couple weeks, it seems like in the morning it takes me like 30 to 40 minutes to get out of bed. Back pain, leg pain, pain shooting through my head and hands. I feel like some one jump me ...

lung CT ?

  • By jennyat · New reply July 24, 2013
  • 4 replies
  • Hi, I've posted a few other times & am still in the dx stage. I recently got the results on a chest ct & was hoping someone could explain it a bit more. Here's what it says, "Linear infiltrates in left ...

Angina & cardiac sarcoidosis?

  • By PEteacher · Posted July 24, 2013
  • 0 replies
  • Has anyone experienced exercise induced angina as a result of cardiac sarc? I've read that this can be due to the inflammation and subsequent restriction of cardiac arteries and that this can be relieved ...

Silent reflux

  • By thomka · New reply July 20, 2013
  • 6 replies
  • I went to an allergist Thursday a week ago with hope he could help me Identify some of my triggers for my coughing.I did six breathing test and answered a lot of history and symptom questions .He is treating ...

Very confused

  • By chrisg99 · New reply July 18, 2013
  • 10 replies
  • Hi All, So I had the acute form of Sarcoidosis in 2005 and the docs said it was acute and it would never come back. Well in March of this year I ended up with a cough that wouldn't go away, so by May ...

Does anyone out there have Osteo Sarcoidosis

  • By Chihuahualady · New reply July 17, 2013
  • 3 replies
  • I know it is very rare but I have Osteo Sarcoidosis in the bone at the back of my pelvis. It has been confirmed by 2 bone biopsies. Any help would be great. Chihuahualady ...

Could this be Sarcoid?

  • By Nonnajlm · New reply July 17, 2013
  • 1 reply
  • Hello Everyone, In 2011 I was diagnosed with Sjogrens after feeling very fatigued and achy for years. A few weeks later I was diagnosed with Breast cancer. While undergoing a Petscan, they found nodes ...

Bronchoscopy and Mediastinoscopy

  • By bkm0117 · New reply July 17, 2013
  • 21 replies
  • Just came from the surgeon's and he decided to do both bronchoscope and mediastinoscopy. Just want to know from those that had both at the same time. How long was the procedure? How did you feel after ...

Lymph node removed was hard?

  • By bkm0117 · New reply July 16, 2013
  • 6 replies
  • Last week I had a mediastinoscopy and bronchoscopy. While I was in recovery the dr told my husband he removed a lymph node and it was very hard. I have been reading through posts and many people found ...

Swollen neck and tightness

  • By JackieHan · New reply July 15, 2013
  • 3 replies
  • In my right side neck, the front the center feel so tight and swollen for over a week. I went to ask my doctor, he said it just swollen veins no need to worry about and he gave me some medicine, but it ...


  • By jennyat · New reply July 13, 2013
  • 17 replies
  • Hi, I'm new. This is my second time posting. I am wondering how much, if any, pain others are experiencing with their sarc. I recently had a lymph node biopsy that showed non-caseating granulomas, have ...

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Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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