Emotional support

The physical symptoms of sarcoidosis are often compounded by emotional ones. Research shows that many sarcoidosis patients experience stress, anxiety and depression. Find support from and share personal stories with others living with this disease.

Discussions

Intergalactic Thankfulness Day

melliepeas
  • By melliepeas · Posted April 17, 2014
  • 0 replies
  • Unless someone has already beat me to the punch, I hereby proclaim April 25 to be "Intergalactic Thankfulness Day", And though it is about a week early, I want to kick it off by saying a big "THANK YOU ...

Starkville Mississippi Support Group Meeting.

alifay
  • By alifay · New reply April 11, 2014
  • 4 replies
  • Sarcoidosis Support Meeting to be held February 22, from 12:00 to 2:00 at the Travis Outlaw Center in Starkville, Ms. For more infor contact Shelly Clanton at 678-301-9040 ...

Husband with Sarcoidosis- refuses to go to the doctor

suziequiz
  • By suziequiz · New reply April 10, 2014
  • 21 replies
  • What do you do when your loved one refuses to go the doctor- until it gets serious. My husband has been sick for a week- feeling overly tired, coughing more than usual, saying he thinks he has a cold ...

NorthWest Social Meeting - Sunday 30th March - POSTPONED

McGuckenr
  • By McGuckenr · Posted March 28, 2014
  • 0 replies
  • Dear All, Sorry to postpone but I don't think many people could make this Sunday. Rescheduled for Sunday 27th of April, same time, same place. I'll repost nearer the time. Hope everyone is well and hope ...

NorthWest Social Meeting - Sunday 30th March

McGuckenr
  • By McGuckenr · New reply March 28, 2014
  • 1 reply
  • Dear All, Hope you are well and have managed to enjoy the little bit of sunshine we’ve had. The next meeting will be on Sunday 30th March at Bents Garden centre at 11am. The details are below: Bents Garden ...

Sarcoidosis Health Initiative Meeting in Alabama

alifay
  • By alifay · New reply March 27, 2014
  • 13 replies
  • In recognition of Sarcoidosis Awareness Month The Sarcoidosis Outreach and Support Group will Host The Sarcoidosis Health Initiative Meeting Wednesday April 2 2014 1:00pm Gadsden Public Library The Lena ...

Hello Beautiful People

Eve1990
  • By Eve1990 · New reply March 26, 2014
  • 6 replies
  • Hello my fellow sarkies, haven't been in here for a while. For the last three weeks I have been very ill, with this fatigue getting worse. I made an appointment with my pulmonologist who I haven't seen ...

Hold On For The Calm

Eve1990
  • By Eve1990 · New reply March 26, 2014
  • 2 replies
  • Those who abandon ship the first time it enters a storm miss the calm beyond. And the rougher the storms weathered together, the deeper and stronger real love grows. -Ruth Bell Graham Storms hit our lives ...

The disease no one can see! So, Tired

karenann09
  • By karenann09 · New reply March 25, 2014
  • 22 replies
  • HI, I was wondering what everyone else is going through. Just because, you can not see this disease does not mean it doesn't exist. UGH, I am not doing well this year! I live in an area where the air ...

a helpful way to look at our emotions

LORIFLEX58
  • By LORIFLEX58 · New reply March 25, 2014
  • 5 replies
  • Hi all, I just read this today, and the idea described gives me a sort of peace, I habe been going through alot of non- sarc related stress lately, and the usual sarc health stuff too, and have been a ...

Gastric Sleeve Surgery

drr228
  • By drr228 · New reply March 23, 2014
  • 33 replies
  • Hi, everyone. I haven't been on here in a while but tomorrow I'm getting the sleeve (weight loss surgery). Please keep me in your prayers, thanks and God bless ...

hospital results today

trendynanna
  • By trendynanna · New reply March 20, 2014
  • 4 replies
  • Hi all. An really scared. Test results today . UK time 4.15. blood tests, ct scan results and breathing tests results. I know I have it in my lungs and eyes. An terrified will want to do invasive tests ...

lack of local support groups

dapple14845
  • By dapple14845 · New reply March 16, 2014
  • 13 replies
  • New to all this. Just diagnosed with Pulmonary Sarc after years of being mis-diagnosed with pneumonia. How about that biopsy procedure? Never want to go through that again. I have had a look through the ...

A Different Topic

minerva
  • By minerva · New reply March 15, 2014
  • 36 replies
  • I haven't posted for awhile. I am kind of on again off again. I have some sad news in my life. Two weeks ago tomorrow I had to have my dear little kitty put down. She was having trouble breathing and ...

Getting back to work

LucyNow
  • By LucyNow · New reply March 10, 2014
  • 2 replies
  • I am fairly new to Sarcoidosis and this web site and have not posted very much. But after my recent diagnosis of sarcoidosis, I have been off of work for over 4 months. Now I am trying to return to work ...

Stage 4

dinorino
  • By dinorino · New reply March 9, 2014
  • 29 replies
  • I have been told I have stage 4 sarcoidosis. I am wondering what I can expect. One of my doctors told me it was time to make peace with God and spend time with friends and family ...What are the stages ...

Rare Disease Day

KimmiaFSR
  • By KimmiaFSR · New reply February 28, 2014
  • 1 reply
  • Today is Rare Disease Day! Many of you took our survey earlier this year. Here are the results of the survey just in time for Rare Disease Day! The results focus on the quality of life of patients. We ...

Treatment

trijoe
  • By trijoe · New reply February 25, 2014
  • 6 replies
  • I was diagnosed back in 2011 after a routine Chest X-ray. Did not have a good work up at that time and did not get treatment for the joint pain, fatigue and pulmonary symptoms. I just had an appt at National ...

Please help with awareness

sleepyeyezz
  • By sleepyeyezz · New reply February 25, 2014
  • 9 replies
  • Well, the MTX is finally kicking in and I'm starting to feel like my old self again. So I'm getting ready for April's Awareness Month. I decided to post 1 new thing each day about sarcoidosis to my FB ...

Some one hit me with this today,

Investigator618
  • By Investigator618 · New reply February 22, 2014
  • 35 replies
  • I was hit with this, words of wisdom, today. "The only true disability in life is your attitude." I'm disabled due to sarc, having pain issues among others. How would you take it. Just asking ...

Things you can do

Support FSR

Help the Foundation for Sarcoidosis Research reach its goals and support people like yourself by making a donation today.

Donate to the Foundation for Sarcoidosis Research

Discussion topics

Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

Community leaders