Journals

New Diagnosis....sigh (God Help me)

chaplainstevens
  • By chaplainstevens · Posted April 5, 2014
  • 20 replies
  • I talked to a VA Psychiatrist for an hour yesterday and he said without a shadow of a doubt I suffer from PTSD, he said working at a Psych hospital and a Trauma hospital is aggravating my already present ...

Pay Attention to YOUR Body

chaplainstevens
  • By chaplainstevens · Posted April 5, 2014
  • 3 replies
  • Please pay attention to the signals your body sends you. When you get pains in places you don't normally get them at. Watch the color of your urine and flem, don't ignore things like tiredness, and disorientation.....I ...

"Vacation" in The Library

chaplainstevens
  • By chaplainstevens · Posted April 4, 2014
  • 4 replies
  • Have you ever needed a break spend a day in the Library VERY theraputic ...

Do I or Don't I Have Sarcoid?

EdwardC
  • By EdwardC · Posted April 3, 2014
  • 1 reply
  • My Sarcoid drama has begun. Should I be Happy or Sad? My doctor's still haven't definitively diagnosed sarcoid but think it's best to begin treatment. My ejection fraction was 25% last March 2013 after ...

Good Day

Pris_H
  • By Pris_H · Posted April 2, 2014
  • 8 replies
  • Went to the beach today - first time since all of this began. Made me so happy that I don't care how exhausted I am! Funny - I live less than 2 miles from the beach, and it's taken me over three years ...

Miles Davis Therapy

chaplainstevens
  • By chaplainstevens · Posted April 2, 2014
  • 12 replies
  • For some reason when I am having a really bad pain day, I turn on some Miles Davis turn the lights down low and I just go into RELAX mode......yes today is a Miles Davis Day ...

First PFT

Casie78
  • By Casie78 · Posted April 2, 2014
  • 21 replies
  • Ok so I had my first appointment with the pulmonologist, and the first PFT of my life. Wow. super exhausting! However I guess all in all it went pretty well. I didn't pass out, and apparently my lungs ...

We Are At War

MZBIGGREDD
  • By MZBIGGREDD · Posted April 2, 2014
  • 3 replies
  • You never know how strong you are until being strong is the only choice you have. What defines us is how well we rise after falling.... everybody falls, everyone at one time or another has beaten by life ...

Revision/July is Stealing June

UnfortunatelyAnna
  • By UnfortunatelyAnna · Posted April 2, 2014
  • 2 replies
  • July is stealing June and it's more than I can bear He'll lie, steal and cheat And help you from your knees Does anyone ever really care There will be a ragged tear inside of me One you can't repair But ...

Let God Read Your Mail

chaplainstevens
  • By chaplainstevens · Posted April 2, 2014
  • 13 replies
  • In the Old Testament there is a story about King Hezekiah and how when he received a threatening letter from the King of Assyira....he placed the letter on the altar in the Temple and gave it to God ...

Walking By Faith

MZBIGGREDD
  • By MZBIGGREDD · Posted April 1, 2014
  • 2 replies
  • Being diagnosed with Pulmonary Sarcoidosis along with a few other things has taught me truly what it to Walk by Faith and Not By Sight. We all need to be encouraged when it comes to stepping out in faith ...

Today is the 1st day of Sarcoidosis Awareness Month

Helivesinme
  • By Helivesinme · Posted April 1, 2014
  • 7 replies
  • Hi everyone Today is the 1st Day for Sarcoidosis Awareness Day. Please turn your photos purple for the month ...

Denial

LollyG59
  • By LollyG59 · Posted April 1, 2014
  • 4 replies
  • I guess I have been denying that the fatigue I am starting to feel is from my Sarc. After all I was told in 2011 that I was in remission and I have done great without any meds since then. In the past ...

Rough Day

Casie78
  • By Casie78 · Posted April 1, 2014
  • 4 replies
  • Last night I could not get comfortable. I tossed and turned, flipped, flopped and rolled. This morning I woke up with pain in every joint, and the back of my head. The mere thought of dragging myself ...

The Days We Had

UnfortunatelyAnna
  • By UnfortunatelyAnna · Posted April 1, 2014
  • 9 replies
  • Tell me somethin', give me hope that will last for more than this night I just don't know how I feel All we can do is pray that we're doing this right Though that's not the way it seems Winter's gone ...

Happy Sarcoidosis Month

GeeGeeQueen
  • By GeeGeeQueen · Posted April 1, 2014
  • 3 replies
  • Have a blessed day ...

Latex in my pillow

dapple14845
  • By dapple14845 · Posted April 1, 2014
  • 0 replies
  • About a month ago I bought a new pillow because the one I had would go flat after laying on it for awhile. The new one was too fluffy for me last night so I got out the flat one that was suppose to be ...

Weekends are for resting??? huh?

Casie78
  • By Casie78 · Posted March 29, 2014
  • 10 replies
  • So today being Saturday, naturally my family thought it was a great idea to sleep in and laze around. My husband and 2 daughters, ages 14 and 11, thought it was a perfectly fine plan. I got up and made ...

Celebrities with Autoimmune Diseases

coonhound
  • By coonhound · Posted March 28, 2014
  • 10 replies
  • I found this article online and thought I would share it with everyone. '15 Celebrities with Autoimmune Diseases'. (I searched Inspire and didn't see it posted. Sorry if it's up already) here's the link ...

Trials Help You Grow Stronger

chaplainstevens
  • By chaplainstevens · Posted March 28, 2014
  • 6 replies
  • I found this old picture when I was young and strong....now I am old and weak...physically.....but my spirit is growing daily, God is keeping me and sustaining me through all of my trials and tribulations....He ...

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Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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