Happy Sarcoidosis Month

  • By GeeGeeQueen · Posted April 1, 2014
  • 3 replies
  • Have a blessed day ...

Latex in my pillow

  • By dapple14845 · Posted April 1, 2014
  • 0 replies
  • About a month ago I bought a new pillow because the one I had would go flat after laying on it for awhile. The new one was too fluffy for me last night so I got out the flat one that was suppose to be ...

Weekends are for resting??? huh?

  • By Casie78 · Posted March 29, 2014
  • 10 replies
  • So today being Saturday, naturally my family thought it was a great idea to sleep in and laze around. My husband and 2 daughters, ages 14 and 11, thought it was a perfectly fine plan. I got up and made ...

Celebrities with Autoimmune Diseases

  • By coonhound · Posted March 28, 2014
  • 10 replies
  • I found this article online and thought I would share it with everyone. '15 Celebrities with Autoimmune Diseases'. (I searched Inspire and didn't see it posted. Sorry if it's up already) here's the link ...

Trials Help You Grow Stronger

  • By chaplainstevens · Posted March 28, 2014
  • 6 replies
  • I found this old picture when I was young and I am old and weak...physically.....but my spirit is growing daily, God is keeping me and sustaining me through all of my trials and tribulations....He ...

A Delay is not a Denial when it comes to GOD!

  • By chaplainstevens · Posted March 28, 2014
  • 9 replies
  • Being sick is very stressful and it has a way of affecting our faith quite often. Be encouraged folks God STILL loves you and has our best interest at heart. Don't lose hope in the Creator to help you ...

My "not cancer" situation.

  • By Casie78 · Posted March 27, 2014
  • 11 replies
  • Feb, of 2014 I went to my primary care doc, with a sinus infection and swollen lymph nodes in my neck, and around my clavicles. She sent me over for a chest X ray, which basically showed all of my thoracic ...

Because I'm Happy

  • By chaplainstevens · Posted March 26, 2014
  • 15 replies
  • I loooove that song by makes me smile every time I hear it ...

Frustrated and still looking for answers

  • By Neicy · Posted March 25, 2014
  • 20 replies
  • I went to my pulmonary today, he breezed in said all my last CT, PFT and Xrays (from 4months ago) looked good. He said "I don't see anything wrong with your lungs" as I sat there gasping for air. On my ...


  • By kristend · Posted March 25, 2014
  • 17 replies
  • I have neurosarcoidosis and am having my second severe event since I was diagnosed in sept 2012. I am back on prednisone and now I am suppose to start an immunosuppressant called imuran this week after ...

An Eh' Kinda Day

  • By DoubtedDebbie · Posted March 24, 2014
  • 0 replies
  • Today, I'm not feeling great, I have a lot of pain in my legs and arms. All night last night, while I was trying to sleep, I had tremendous hand pain and then numbness. Nothing helps. Even though I did ...

Finally Dr who knows about sarcoidosis

  • By roshan57 · Posted March 23, 2014
  • 4 replies
  • For 2 years I have suffered with sarcoidosis from specialist to specialist Finally I have an excellent DR at Sansum medical clinic santabarbara. after a broncos copy He found out I have a severe Lung ...

Hi everyone

  • By Helivesinme · Posted March 23, 2014
  • 2 replies
  • I am sorry i have not been on for awhile been trying to get my life right with God and trying to get this years Annual Sarcoidosis Walk started ...

Release the pain!

  • By chaplainstevens · Posted March 21, 2014
  • 6 replies
  • Denying grief and pain is not a good thing, acknowledge it and discuss it. Write journals, write poetry, and vent! Don't keep stuff bottled up inside, especially men. Men have a tendency to hold in pain ...


  • By Pris_H · Posted March 20, 2014
  • 5 replies
  • Today, I realized that taking my pain meds as often as prescribed makes me feel much better ...


  • By MZBIGGREDD · Posted March 20, 2014
  • 0 replies
  • There is NO cure for Sarcoidosis, but giving into Pain Anger Fear Frustration is Not An Option! As we ALL shall be Fighters to the end in this Battle against Sarcoidosis! As we continue to grow in numbers ...

JohnsHopkins Finally!

  • By volvo · Posted March 19, 2014
  • 0 replies
  • I am feeling good other that my sprained ankle and foot.... But what can you do??? I still can't believe Johns Hopkins finally called!!! I started reviewing my records and it's like trying to put a surround ...

Our second annual report with Stanford Medical School

  • By Brian · Posted March 19, 2014
  • 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Stomp Sarc

  • By momsjoy · Posted March 18, 2014
  • 0 replies
  • Stomp Sarc 1st Anniversary Please Join Us! Sarcoidosis awareness and support group meeting Saturday, June 21, 2014 @ 2:00 pm U. A. B. Hospital West Pavilion Conference Center 615 - 18th Street South Room ...


  • By GeeGeeQueen · Posted March 18, 2014
  • 8 replies
  • Well I have been achy for so long in my joints and bones and last week I could not feel the tips of my fingers, they had gone numb and everything was stiff as a board. Went to PCP same day and she gave ...

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Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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