Active discussions

Pity!

tpostrion
  • By tpostrion · New reply April 6, 2014
  • In Living with sarcoidosis · 2 replies
  • I just need to rant right now! I stepped on a screw last night so I just got home from Geisinger urgent care to get a tetanus shot to be safe. Well while I was there of course they ask what meds Im on ...

Predisone as an Injection

antie_net
  • By antie_net · New reply April 6, 2014
  • In Treatment decisions · 13 replies
  • Hi everyone....I decided several months ago to make myself a journal of information that I have received from this site. As of right now I have never been treated with medication for saracoid but I want ...

Low WBC

Rephill
  • By Rephill · New reply April 5, 2014
  • In Symptoms · 12 replies
  • My WBC have been consistently dropping for the past few months. Im now down to 2.3. What role does sarcoid play in this ...

Antibiotics for Sarcoidois with success

redhulk
  • By redhulk · New reply April 5, 2014
  • In Living with sarcoidosis · 93 replies
  • I have had Sarcoidosis since 1995 and around 2006 i was prescribed Antibiotics for few months with good results, has anyone else been prescribed Antibiotics with success? I live in the UK ...

Really? Sarcoidosis?

Queenofxs
  • By Queenofxs · New reply April 4, 2014
  • In Living with sarcoidosis · 26 replies
  • I'm overwhelmed and melancholy regarding a recent diagnosis of sarcoidosis. In October I went to my PCP for shortness of breath and was diagnosed with a right lower lobe infiltrate consistent with pneumonia ...

Anyone have experience with ACTHAR?

ryanella

I need a doctor NOW !!!!

Sarcdove1
  • By Sarcdove1 · New reply April 4, 2014
  • In Living with sarcoidosis · 16 replies
  • I need a Dr. NOW! I use to go to Dr. Swiess, but she left the University of Chicago. During that time I had Bluesheild Blue cross, but now after stage 4 cancer; I am on Medicaid. I can't find a doctor ...

Digestacure

MonicaS
  • By MonicaS · New reply April 4, 2014
  • In Treatment decisions · 8 replies
  • Has anyone tried this supplement called digestacure? It claims to help with all autoimmune diseases. Does anyone know of natural supplements that help ease the sarcoidosis symptoms ...

swallon glands in the neck and face

paulaw
  • By paulaw · New reply April 4, 2014
  • In Symptoms · 5 replies
  • ok its me again, I haven't been on this sight for some months now. I was taken off all meds about a year ago doing fine then a week ago I went and had a lung test and failed. My Dr. wanted another CT ...

becoming stronger

allinmyhead
  • By allinmyhead · New reply April 4, 2014
  • In Living with sarcoidosis · 6 replies
  • So, after 5 years of torment, I'm finally getting over sarc. What was the worst part? 1) Weight loss, massive weight loss. 2) Massive doses of steroids, but they helped. 3) Depression, a lot of. 4) Losing ...

a lot of ?'s

blessedat41
  • By blessedat41 · New reply April 4, 2014
  • In Symptoms · 5 replies
  • I have had sarc since 1994 mines is in my lungs. For the past year ive had to get glasses,a new bed, and about a month ago i ended up with all kinds of brown spots on my arms,hands,legs,thighs i dont ...

Vit D

paulaw

sarcs

santina
  • By santina · New reply April 4, 2014
  • In Treatment decisions · 8 replies
  • Hi everyone I was wondering if anyone is on methotrexate 2.5mg and side effects Thanks sandy ...

Hematological Results for Sarcoid Patients

priscurl
  • By priscurl · New reply April 3, 2014
  • In Treatment decisions · 24 replies
  • People have been asking questions about signs of active sarcoidosis in blood tests. Beginning with CBC, FBC Complete or Full Blood Count. 1. White Cell Counts Only! If in remission or controlled on treatment ...

AFIB & PHT

10022Days
  • By 10022Days · Posted April 3, 2014
  • In Symptoms · 0 replies
  • Hi I have sarc of the lungs and lately I was diagnosed with Pulmonary Hypertension PAH. I am on oxygen and medication for PAH and Adfib but have noticed that even when I am at rest my heart continues ...

WLS and Sarc

debperk
  • By debperk · New reply April 3, 2014
  • In Living with sarcoidosis · 2 replies
  • Hey everyone! I was diagnosed back in 2005 with Neurosarcoidosis. I did a whole year on intensive steroid treatment and that was the worst year of my life! I actually call that time the "dark days". After ...

Losing weight while on Pred

dapple14845
  • By dapple14845 · New reply April 3, 2014
  • In Treatment decisions · 14 replies
  • Just started on the Prednisone diet. 40 mg a day for thirty days then taper off by one a week. I'm on day 15. I have Pulmonary Sarc with rheumatoid manifestations. I think I have gained 20 lbs in these ...

Sarcoidosis and Parkinson's

palomablanca
  • By palomablanca · New reply April 2, 2014
  • In Symptoms · 5 replies
  • Hi I am new to this site, but a little bit of history. I have Parkinson's disease and was diagnosed through lung biopsy with sarcoidosis in 2010. I was treated immediately with prednisone and improved ...

Wegener's Disease

sundancer104
  • By sundancer104 · New reply April 2, 2014
  • In Triggers · 25 replies
  • Hi, I am new to the site. I am trying to find anyone out there that has Wegener's and was also at the World Trade Center during 9/11. It is very important that you respond to this if you were because ...

Sarcoidosis and the occurrence of malignant diseases

plainTRUUS
  • By plainTRUUS · New reply April 2, 2014
  • In Living with sarcoidosis · 9 replies
  • "Our hypothesis is that the immune dysregulation which persists during or after chronic sarcoidosis might represent a contributing factor for the development of B-cell lymphoma." http://link.springer.com/article/10.1007 ...

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Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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