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vtimin D

LonesomePeg
  • By LonesomePeg · New reply April 9, 2014
  • In Treatment decisions · 40 replies
  • What is the latest on taking Vit. D if your count is low & you react badly to sun exposure (like it starts a sarc flare/skin rash ...

I finally filed for ssdi

Lovesdasmile
  • By Lovesdasmile · New reply April 9, 2014
  • In Living with sarcoidosis · 11 replies
  • After being diagnosed in 2007 with sarcoidosis I finally have come to the point were I can no longer work and have had to file for ssdi can any one tell me give me any insight on the process or how long ...

Week 4 of Pred

dapple14845
  • By dapple14845 · New reply April 9, 2014
  • In Living with sarcoidosis · 18 replies
  • Moon face, accomplished. Skin tearing and bruising, ongoing. Sleepless nights, consistent. New pain in hip, unbearable. One more week until the taper off. What will it bring ...

Symptoms

Brsparkles
  • By Brsparkles · New reply April 8, 2014
  • In Treatment decisions · 6 replies
  • Hi, The pulmonologists at Mayo have not clearly defined that I have Sarcoidosis, but last June, at Mayo Clinic they agreed to name it as "sarcoid like" granulomas, after a bronchoscopy (needle biopsy ...

Sarcoidosis Video/Photos

Gary_RN
  • By Gary_RN · New reply April 8, 2014
  • In Living with sarcoidosis · 2 replies
  • What and where Sarcoidosis can affect our bodies. Don't worry, we do not get all of these ...

Vitamin d question

calicosarajane
  • By calicosarajane · New reply April 8, 2014
  • In Living with sarcoidosis · 21 replies
  • I've had sarcoid for 2+ years. One year of steroids and I'm told its i remission. I have it in lungs, liver, and I suspect skin. I don't feel like its in remission. Weird skin probs and breathing is so ...

Are you in for the fight!!!!

flyingfish
  • By flyingfish · New reply April 8, 2014
  • In Treatment decisions · 12 replies
  • Today is day 4 of Sarcoid Awareness are you ready to help with the fight. Consider donating a dollar, a price of a latte, asking friends, co-workers we can make this happen http://ccf.convio.net/goto/sarcoidawaren ...

DR at Mayo in Jacksonville, Florida needed

uveitisguy
  • By uveitisguy · New reply April 8, 2014
  • In Treatment decisions · 1 reply
  • http://www.inspire.com/groups/stop-sarco idosis/discussion/symptoms-82 ...

Sarcoidosis

juanitareese
  • By juanitareese · New reply April 8, 2014
  • In Triggers · 15 replies
  • Hi, I don't have Sarcoidosis but my sister does. My question is where does this desease start from. When we were kids we had bed bugs very bad, The bugs hibernated in the mattress and in holes in the ...

Sarcoidosis

NicolaG
  • By NicolaG · New reply April 8, 2014
  • In Living with sarcoidosis · 2 replies
  • I came to know about sarcoidosis when I ended up spending three (3) days in the hospital last April. I had gone in for a tubal ligation procedure and awaken in the hospital. I was told that I was drowning ...

Cardiac Sarcoidosis

newfoundland_heather
  • By newfoundland_heather · New reply April 7, 2014
  • In Living with sarcoidosis · 12 replies
  • Just wondering if anybody has been diagnosed with Cardiac Sarc. My mom is in the middle of getting tested for it. We are from a rural area, and I would love to find a doctor who knows about Sarc to get ...

Sarcoidosis & finger & toe deformity.

Felicity17
  • By Felicity17 · New reply April 7, 2014
  • In Living with sarcoidosis · 7 replies
  • My hands andc wrists have been clubbng. Then predinsone helped. But also I have bony and fatty lumps all as round my wrists and finger joints. My feet have the big toe deviating toward the other fingers ...

An invitation to share

plainTRUUS
  • By plainTRUUS · New reply April 7, 2014
  • In Living with sarcoidosis · 14 replies
  • I've seen a few people post lately that they have found doctors they like and trust. GREAT!!!! But people, don't keep the info to yourselves. Share their names, locations and phone numbers (I'm sure they ...

Surviving Cardiac Sarc

melliepeas
  • By melliepeas · New reply April 7, 2014
  • In Living with sarcoidosis · 16 replies
  • Statistics on cardiac sarc can be very frightening, because there really isn't much research on it at all, and I could never find anything on line that talks about the cardi sarc people who survive and ...

Referral in London?

AminaV
  • By AminaV · New reply April 7, 2014
  • In Treatment decisions · 9 replies
  • Hi everyone, I just stumbled across this site when doing some research on Sarcoidosis and am hoping someone can share some advise. My mother-in-law has multiple organ sarcoidosis which is now spreading ...

Chest Pain

ocnan
  • By ocnan · New reply April 7, 2014
  • In Symptoms · 19 replies
  • I am just wondering about these chest pains. My cough comes and goes but the chest pain and shortness of breathe is sometimes unbearable. Is the chest pain caused by the pressure of the swelling? Is there ...

Rare manifestations of sarcoidosis

LemonDream
  • By LemonDream · New reply April 7, 2014
  • In Symptoms · 24 replies
  • Interesting and (mostly) understandable chapter by Dr. Moller on rare manifestations of sarc. Many here have what he calls "rare." http://ildcare.eu/Downloads/artseninfo/S arcoidosis/Chapter%2015%20Rare%20manifes ...

Medic alert bracelet for Prednisone

dapple14845
  • By dapple14845 · New reply April 7, 2014
  • In Living with sarcoidosis · 5 replies
  • Is it a good idea? http://funkygenes.blogspot.com/2011/10/i f-youre-on-prednisone-you-need-medic.htm l ...

Vitamin D

plainTRUUS
  • By plainTRUUS · New reply April 6, 2014
  • In Treatment decisions · 9 replies
  • A little old (06-2010). . . . "Furthermore, a third study undertaken in Italy aimed to evaluate the affect of vitamin D supplementation in patients with inflammatory autoimmune disease (IAD) and non-inflammatory ...

frustrated and confused

frustratinggsd (Inactive)
  • By frustratinggsd (Inactive) · New reply April 6, 2014
  • In Symptoms · 1 reply
  • Hi everyone... New to forum. My 14 yr daughter has had numerous health issues for 6 mos now that started with her digestion...overactive gallbladder.. Removed..... Compactions... IBS....now mono for five ...

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Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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