Discussions

Anyone with Sarcoid also in the spleen ?

ryanthelion
  • By ryanthelion · Posted March 12, 2014
  • In Symptoms · 15 replies
  • I would appreciate any feedback as my Sarc has now gone to my spleen and it has enlarged and is full if lesions. Thanks ...

Uh... Cancer and Sarc?

Grapecooper
  • By Grapecooper · Posted March 11, 2014
  • In Living with sarcoidosis · 6 replies
  • Ok. I was diagnosed with Pulm. And Lymph sarc in October. You all helped me through that and more. I've had these pain/fatique, night sweats, cough, yadda yadda for around five years. You all know the ...

Vitamin D Interactions

priscurl
  • By priscurl · Posted March 11, 2014
  • In Treatment decisions · 9 replies
  • Vitamin D has very few drug interactions and most of these interactions pertain to causing slower uptake of D from the gut. This does not affect D naturally made by the body itself, only ingested varieties ...

Inactive Sarcoidosis - How will I know when it becomes active.

retagayle
  • By retagayle · Posted March 11, 2014
  • In Triggers · 15 replies
  • Before I get to my question, a little background history. In February of 2012 I had a severe case of double pneumonia. I never really regained all of my lung capacity afterwards and was told it would ...

Salt Therapy

Tired_of_tests
  • By Tired_of_tests · Posted March 11, 2014
  • In Living with sarcoidosis · 10 replies
  • Has anyone tried Salt Therapy for Sarcoidosis and breathing issues? (Salt Room Therapy) I bought a groupon for 1 session at $20. My husband thinks I should ask my doctor before doing it, but my appointment ...

JUST SOMETHINGS ON MY MIND

deltagammamu
  • By deltagammamu · Posted March 11, 2014
  • In Living with sarcoidosis · 11 replies
  • THIS AS BEEN A HARD PAST YEAR ALL OF MY JOINTS ARE BEING TO HURT, SOMETIME I JUST WANT TO GET N BED AND JUST STAY THERE BUT MY WIFE AND KIDS ARE DEPENDING ON ME TO BEAT THIS I DONT KNOW IF I CAN ANYMORE ...

Chronic spontaneous urticaria and angioedema

dryzeabone2012
  • By dryzeabone2012 · Posted March 11, 2014
  • In Triggers · 2 replies
  • Today I attended a hospital in Oxfordshire as I had been suffering with swellings of the lips and face and also hive like rashes on my body. This has been going on for about 4 months. I thought it was ...

Diagnosis from lacrimal gland biopsy?

MrsCinnamon

How to get off Topamax without side effects, only taken 27 pills at 25mg ea

Bourdon
  • By Bourdon · Posted March 10, 2014
  • In Help desk · 13 replies
  • My husband was prescribed Topamax at 25 mg once a day for 2 days, then two pills a day for 3 days, then 4pills a day for 7 days, he has not yet completed the 4 pills a day for the 7 days, and he is having ...

Getting back to work

LucyNow
  • By LucyNow · Posted March 10, 2014
  • In Emotional support · 2 replies
  • I am fairly new to Sarcoidosis and this web site and have not posted very much. But after my recent diagnosis of sarcoidosis, I have been off of work for over 4 months. Now I am trying to return to work ...

A Different Topic

minerva
  • By minerva · Posted March 9, 2014
  • In Emotional support · 36 replies
  • I haven't posted for awhile. I am kind of on again off again. I have some sad news in my life. Two weeks ago tomorrow I had to have my dear little kitty put down. She was having trouble breathing and ...

Exercise

Louised
  • By Louised · Posted March 9, 2014
  • In Living with sarcoidosis · 19 replies
  • Hi i just wondered what your take is on exercise is it actually important when you have sarcoidosis? And if yes what type of exercise do you recommend for pulmanory sarcoidosis ...

Diagnosed, where to go from here

JulesM
  • By JulesM · Posted March 9, 2014
  • In Living with sarcoidosis · 8 replies
  • Mid January I had fallen on my back and ended up in the ER. They did a CT scan of my back and saw that there were enlarged lymph nodes around my lungs and heart. My primary care doctor then sent. E a ...

Calcified Granulomas

rossheartchick
  • By rossheartchick · Posted March 8, 2014
  • In Living with sarcoidosis · 9 replies
  • Happy Saturday everyone:) I just have a quick question. Been living with this lovely disease the last 8 years but just active in my lymph nodes, skin and nerves. I just had a Chest CT with contrast and ...

Information about Rituxan and Sarcoidosis

payoung13
  • By payoung13 · Posted March 8, 2014
  • In Treatment decisions · 11 replies
  • Hi. I have sarcoidosis and my doctor wants to try Rituxan on me. I was first diagnosed in 1998 thru a biopsy in my lung and I have been in and out of remission since then. This current round is the worst ...

what not to eat

FranchescaJ
  • By FranchescaJ · Posted March 8, 2014
  • In Living with sarcoidosis · 6 replies
  • Have significant sarc growths in lungs and bottom of feet. Had one removed on bottom of foot only to come back bigger and more painful. Done with 40mg of pred for awhile. I want food as my anifiamatory ...

Dealing with Sarc - what you are feeling is pretty normal

Tofumonkey
  • By Tofumonkey · Posted March 8, 2014
  • In Living with sarcoidosis · 3 replies
  • We all go through our emotions and reactions differently, but essentially upon diagnosis we go through a grieving process, the Kubler-Ross cycle of Grief. Denial, Anger, Bargaining, Depression, Acceptance ...

Sarc and PBB/PBC contamination

princess6983
  • By princess6983 · Posted March 8, 2014
  • In Living with sarcoidosis · 1 reply
  • I am new to Inspire...Thank you for a outlet of support! ! I was diagnosed in 2010 with Sarc following a lymphnode biopsy. Is it known if Sarc is known to be more vicious when you have been exposed to ...

Reiki and sarcoidosis

Carole-Jayne
  • By Carole-Jayne · Posted March 8, 2014
  • In Treatment decisions · 10 replies
  • Good morning, I am feeling buffeted by the whole treatment cycle of this illness. I am wondering if anyone has tried Reiki - I'm told that it can help in 'healing' and also with the whole mind/body connection ...

Is biopsy necessary?

Lettrich
  • By Lettrich · Posted March 7, 2014
  • In Treatment decisions · 4 replies
  • I was just diagnosed with Sarcoidosis via a mediastinal node biopsy node in Nov of 2013. As per Pulmonologist sarcoid is stage 1. I developed 3 "lesions" in my conjunctiva about 4 weeks ago. Of note from ...

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Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

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