Discussions

Article on sarcoidosis

ConcernedRN
  • By ConcernedRN · Posted March 19, 2014
  • In Living with sarcoidosis · 6 replies
  • A while back ( I think last summer) someone shared a rather lengthy artless are excerpt from a book about sarcoidosis. I remember that the pages had pink on them at least between chapters. It covered ...

Medical records

volvo
  • By volvo · Posted March 19, 2014
  • In Living with sarcoidosis · 3 replies
  • Does anyone know how you can get medical records dated back when we were young? I think they could be helpful take me for example.. I was extremely sick as a child and had Scarlett fever. Also, one of ...

South florida sarcoidosis physicians

zengirl
  • By zengirl · Posted March 19, 2014
  • In Treatment decisions · 10 replies
  • Anyone know of specialists that are experienced in treating sarcoidosis in south florida ...

hospital results today

trendynanna
  • By trendynanna · Posted March 19, 2014
  • In Emotional support · 4 replies
  • Hi all. An really scared. Test results today . UK time 4.15. blood tests, ct scan results and breathing tests results. I know I have it in my lungs and eyes. An terrified will want to do invasive tests ...

What a shocker!!!

grngito
  • By grngito · Posted March 18, 2014
  • In Living with sarcoidosis · 5 replies
  • I received a few bits of good news. First I was finally accepted by Medicaid so now I have health insurance. It only too 9 months of jumping thru their hoops. Second, and the biggest surprize, I was accepted ...

natural pain relief

imalivin
  • By imalivin · Posted March 18, 2014
  • In Treatment decisions · 0 replies
  • There is a lot of hings just the way God made them. Here are a three to check out for pain relief. DMSO, Stone breaker tea, & Serrapeptase. Serrapeptase DOSAGE Treatment of Inflammation/Pain: 30,000 U ...

Need referrel

sverser
  • By sverser · Posted March 18, 2014
  • In Treatment decisions · 13 replies
  • My mom was newly dx with Sarcoidosis. Can anyone recommend a doctor in the Atlanta area that specializes in Sarcoidosis? Thank you ...

Antibiotics for Sarcoidois with success

redhulk
  • By redhulk · Posted March 17, 2014
  • In Living with sarcoidosis · 93 replies
  • I have had Sarcoidosis since 1995 and around 2006 i was prescribed Antibiotics for few months with good results, has anyone else been prescribed Antibiotics with success? I live in the UK ...

Sarcoidosis in Scotland UK

redhulk
  • By redhulk · Posted March 17, 2014
  • In Living with sarcoidosis · 4 replies
  • Interested to hear from anyone who has Sarcoidosis in Scotland UK Regarding Doctors and treatment etc ...

Dr-Patient Relations

priscurl
  • By priscurl · Posted March 17, 2014
  • In Living with sarcoidosis · 1 reply
  • http://www.medpagetoday.com/HOTTOPICSPol icyandPractice/special-reports/SpecialRe ports-Videos/428 This is a video which states, among other things, that doctors do better all round when they admit a ...

wife with optic neuritis, looking for help

jchisholm1
  • By jchisholm1 · Posted March 17, 2014
  • In Symptoms · 8 replies
  • At risk of being "Dr. Google", I'm trying to identify potential causes for my wife's optic neuritis. It's getting obvious that it's not MS, but all the doctors are doing is testing for that. My wife ...

Cleveland Clinic Cost

BarbNY
  • By BarbNY · Posted March 17, 2014
  • In Living with sarcoidosis · 4 replies
  • To those who were diagnosed at Cleveland Clinic, did you all have insurance that was accepted there? My insurance isn't on their list. Did you pay out of pocket? It must cost a pretty penny to have all ...

Chest Pain

ocnan
  • By ocnan · Posted March 17, 2014
  • In Symptoms · 19 replies
  • I am just wondering about these chest pains. My cough comes and goes but the chest pain and shortness of breathe is sometimes unbearable. Is the chest pain caused by the pressure of the swelling? Is there ...

Anyone have body aches?

annteget
  • By annteget · Posted March 17, 2014
  • In Symptoms · 17 replies
  • I have been experiencing serious body aches for about three months now. I consistently have pain in my right shoulder, hips, and ankles and have found it very difficult to walk up steps. Is anyone else ...

I need a doctor NOW !!!!

Sarcdove1
  • By Sarcdove1 · Posted March 17, 2014
  • In Living with sarcoidosis · 16 replies
  • I need a Dr. NOW! I use to go to Dr. Swiess, but she left the University of Chicago. During that time I had Bluesheild Blue cross, but now after stage 4 cancer; I am on Medicaid. I can't find a doctor ...

Living with oxygen 24/7

deena-m
  • By deena-m · Posted March 16, 2014
  • In Living with sarcoidosis · 5 replies
  • Hi- This is new to me since I have never joined a discussion group before. I feel that I really need the support and understanding that could only come from going through this. I recently found out that ...

Diet

anchianchi
  • By anchianchi · Posted March 16, 2014
  • In Living with sarcoidosis · 10 replies
  • Hello, I'm here for the first time. I've been disgnosed sarcodidosis 3 years ago. I used some meds like Simbicort turbohaler, Singular, Nasonex with not much benefits. Every cold makes it bad, with fatigue ...

Tea

dapple14845
  • By dapple14845 · Posted March 16, 2014
  • In Living with sarcoidosis · 20 replies
  • I am addicted to coffee. I like herbal tea and know I should cross over to only tea, no coffee. Is tea good or bad for Sarc? Do you have a favorite brand/flavor? Please share with me your tea experience ...

Confused

jscheele
  • By jscheele · Posted March 16, 2014
  • In Living with sarcoidosis · 4 replies
  • Okay, I was diagnossed with sarcoidosis last November when my dermatologist did a biopsy on two growths that had developed under old scars. The results came back positive and he referred me to a pulminologist ...

Migraine Relief

debzone
  • By debzone · Posted March 16, 2014
  • In Treatment decisions · 3 replies
  • Today on Fox News - House Call they gave the following as effective treatment and prevention of migraines.... CoQ10 Magnesium Riboflavin (B2) Fever Few ...

Things you can do

Support FSR

Help the Foundation for Sarcoidosis Research reach its goals and support people like yourself by making a donation today.

Donate to the Foundation for Sarcoidosis Research

Discussion topics

Help and information from FSR

Sarcoidosis and the Body
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.

You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.

Community leaders