I rearly post anything on here and normally just reply. But I have noticed alot of posting and I was wondering if most of you (your family memembers) know what stage your sarcoidosis is in? I ask becuase I have STAGE IV (since 2000) and I promise you, I have never went through some of the things you all have. I have it in my nose, lungs, legs, arms, skin lesions and had to have a heart catherization because its spreading to my heart (now I have cardi hypertention). Now when if flares up... I can cancel Christmas... but as long as I have had it I have to admit I have had EXCELLENT doctos in Augusta, GA/ Alexandria, VA; Charleston, SC and with Cleveland my hometown, I will be heading for Cleveland Clinic as soon as I arrive.
I was just wondering if you all had been told the stage of the disease?