I have had severe headache problems since i was 10yrs old. I had numerous funky rashes that the dermatologist actually called (and showed me in a book) the "freak disease". They had no clue how I got or how to get rid of the constant rashes. I was not diagnosed with sarc at that time. I had many random issues until diagnosis when i was 19. I started with severe chest pain when breathing and difficulty swallowing. recently ive been having severe severe stabbing pains in my chest on both sides almost directly under my breasts. I had Bells palsy a few times (which i still second guess cuz i was on high levels of steroids which supposed to stop bells palsy). I am now about to be 24 and I have many crazy symptoms, mostly neurological and joint and muscle. about 2yrs ago right after i got married i ended up in er with what seemed similar to bells palsy again but was severe pain and drooping on left side of my face and arm and leg numb too. They never figured out problem and guessed it was sarc even tho I had been told by a supposed sarc specialist at biggest sarc clinic in us in nyc that it was gone and I was being dramtic. I now have permanent nerve damage on that side of my face that causes uncontrollable twitching when i attempt to move face muscles because after the damage my nerves tried to compensate by growing back 1 nerve to control multiple muscles. I also have hearing problems on same side where my ear crackles like a bad speaker when i hear certain levels of noise. I just came from dr today to find i have pneumonia. something feels wrong. i just stopped methotrexate and now have this problem that feels exactly as it did when i was first diagnosed in my lungs. I am confused and worried its back. No one seems to know whats wrong with me and I am so miserable. I have many other issues that will take too long to write but I need help. Anyone have any suggestions of dr's in ny who can help or have a similar experience PLEASE message me!!!!