Hi every I'm L-Jay's husband.
It's so stressful for me as a husband that cares for my wife immensely to go to her to a doctor's appointment and see the doctors act as though there are mental issues wrong with my wife. I have to literally show my emotions in a plea with her to get the help that she needs. On one occasion the doctor said that he was going to refer her to a psychotherepist. After he had informed us they yes she does have Sarcoidosis and that all the effects of this disease has yet been determined. To me it fills like everyone one of these physicians are just there to collect our money and refer us to one of their freinds to get a piece of the pie.
My wifes level of activity is almost in existance as of now and it is so hard to stand by as everyone does nothing. It kills me to see her hurt and the thought of knowing that she is in pain is unbearable. Another thing that kills me is that I explained to the doctor that my wife started having seizures on a regular occurance now. The doctor had the audacity asked me how do I know it was a seizure. People don't get me wrong, but if your lying next to your spouse sleep and wake thinking that he or she is trying to wake you and look over to see that their eyes are rolled in the back of thier head and their body is convulsing wouldn't you say as I did that, that was in fact a seizure.
All I'm trying to say that it is us you with Sarc as well as us loved ones that have to make a stand and even talk to our doctors to make sure this is world wide known. I say to myself for my wife that I will make a difference and they will know. I thank God for this site and you that share so much with my wife. She thought she was alone in this but now we see different.