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Stop Sarcoidosis

Foundation for Sarcoidosis Research support group and discussion community

Foundation for Sarcoidosis Research support group and discussion community

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Connect with patients and caregivers affected by sarcoidosis. Get support for breathing issues, clinical trials, genetics, and more in the forums.


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Stop Sarcoidosis

Gene testing, precision medicine, and shared information

Brian's journal

Brian

gene-testing-precision-medicine-and-shared-information

200139

Dear members, How should we be thinking about our genetic information when it comes to disease? It’s a question many of us are asking here on Inspire, sometimes very intensely, depending on the nature of the disease. The information we get from our genome can have a direct impact on so much, including how, or if, we can be treated for certain types of disease -- that is the nature ... Read More

Stop Sarcoidosis

Anxiety and Aging

Mandymuff's journal

Mandymuff

anxiety-and-aging

200139

First off........who is "aging"? Is it the people over 50? People over 70? It is neither of those....WE ARE ALL AGING! It has been a long time since I have met a person who is younger than they were yesterday! Oh yes.....some folks can be made to LOOK YOUNGER, but that has nothing to do with this topic. Somewhere around 60 years,(give or take a decade) we start to worry about aging ... Read More

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Stop Sarcoidosis

What Is The Worst Thing We Do To Self?

Mandymuff's journal

Mandymuff

what-is-the-worst-thing-we-do-to-self

200139

I warn you before I start....this is me coming from a place of conflict! I have been e-mailing for several years, with a lady I met on a chat board, several years ago. She was never a warm bubbly person, but needy, and we did have things in common, and I continued the friendship until this time, but I think I see the finish line. Let me explode, and tell you why I think there is one ... Read More

Stop Sarcoidosis

POSITIVELY SO !!!!

Mandymuff's journal

Mandymuff

positively-so

200139

When we are unwell it is sometimes very difficult to find the "good things" in our day, so, we stay focused on the pain, the inability, and the things which constantly bring us down. Finding "the positive" in any given day takes a lot of thought, incite, and just plain guts. However, that is what I am proposing for us, in this thread. Will it be easy every day? Certainly not! However ... Read More

Stop Sarcoidosis

04/22/2018 Wyoming Minute (Ironwoman Tribute #3)

In: Emotional support

RonLS

04-22-2018-wyoming-minute-ironwoman-tribute-3

200139

Be Humble, Lovell, Wyoming Aeron faced so many battles on so many fronts; with her health, her relationships and her family. Her health was a storm that seemed to ever be turbulent and raged with out ceasing. Her past relationships and family turmoil she at times were self inflicted causes. But, I know how hard she tried or at least wanted to try to be the person she knew she could ... Read More

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Stop Sarcoidosis

04/21/2018 Wyoming Minute

In: Emotional support

RonLS

04-21-2018-wyoming-minute

200139

Highlighted by the Light, Lovell, Wyoming The day I took this picture it was a nice sunny spring day but I really liked these blooms on the shady side of the tree. But until I got them uploaded to my computer so I could actually see them in a larger format, I had missed noticing how the sunlight shimmered and glowed off of the edge of the bloom facing the sunny side of the tree. My ... Read More

Stop Sarcoidosis

What’s the story of your rare disease diagnosis?

Brian's journal

Brian

whats-the-story-of-your-rare-disease-diagnosis-1

200139

Dear members, Today, more than 200,000 Inspire members have a rare condition. You have made Inspire a place to share your experiences with others who understand what you’re going through and help others at the same time. Many of you have described how long it took for you to receive an accurate diagnosis for your rare condition, while some of you found your diagnosis quickly. If you’d ... Read More

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