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Stop Sarcoidosis

Foundation for Sarcoidosis Research support group and discussion community

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Stop Sarcoidosis

In the hospital and no answers

In: Treatment decisions

Credin

in-the-hospital-and-no-answers

200139

  • 2 Replies

Hello I am 57 with sarcoidosis in the hospital very sick they found some fluid around my gallbladder but other test said my gallbladder is fine. Last year I went septic because of appendicitis. 30 doctors said it wasn't my appendix. They took it out as a percaution then after pathology result showed it was in fact appendicitis. I m afraid I need my gallbladder removed. I just feel ... Read More

Stop Sarcoidosis

Upcoming visit to Cleveland Clinic .... Suggestions?

In: Treatment decisions

Mara23

upcoming-visit-to-cleveland-clinic-suggestions

200139

  • 1 Reply

Cleveland Clinic appointment with a newer doctor, Dr. Manuel Rameiro-Neto. Any feedback from patients who have seen him? I will also be seeing Dr. Ginny Vetee for neuro eval and an ophthalmologist. Any suggestions for my visit to Cleveland Clinic ? Thanks ... Read More

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Stop Sarcoidosis

09/24/2016 Meme

RonLS' journal

RonLS

09-24-2016-meme

200139

  • 5 Replies

Disagreement, Big Horn Mountains, Lovell, Wyoming Several weeks ago I found myself walking along a rock strewn ledge on the back side of Bald Mountain. There I found a Nine Stripped Chipmunk weaving in and out of the rocks doing its best to distance itself from me, I am guessing it was camera shy. But finally it gave up that game and decided it would just ignore me turning its back ... Read More

Stop Sarcoidosis

09/26/2016 Meme

RonLS' journal

RonLS

09-26-2016-meme

200139

  • 0 Replies

The Line Between Light and Dark, Big Horn Mountains, Lovell, Wyoming As the light fades there is a line between the light and the darkness. The golden glow beckons me to that point but the darkness doesn't seem so dark and even shows striations of light within its recesses. That slope is steep and slippery and you don't know the depths of its darkness until you are in its midst. However ... Read More

Stop Sarcoidosis

Chronic fatigue patients fought against the faulty PACE trial, and won

Chronic-Inspire's journal

Chronic-Inspire

chronic-fatigue-patients-fought-against-the-faulty-pace-trial-and-won

200139

  • 5 Replies

By Radha_Inspire Digital Editor, Inspire A five-year battle spearheaded by patients resulted in the takedown of a landmark chronic fatigue syndrome (CFS) study that made cognitive behavioral therapy (CBT) and graded exercise therapy (GET) – problematic treatments at best and counterproductive at worst – fixtures in the myalgic encephalomyelitis (ME)/CFS treatment landscape. The PACE ... Read More

Stop Sarcoidosis

Sarcoidosis Magazine - Where is it???

In: Help desk

khounsel

sarcoidosis-magazine-where-is-it

200139

  • 24 Replies

Has anyone else paid for a magazine subscription to the Sarcoidosis Foundation of WV and received anything??? I paid back in January 26, 2016 and have not heard a word or received anything. I did read that the person handling this was having a "rough time" so I think I have been patient. Could I get my money refunded? Thanks, Kathy ... Read More

Stop Sarcoidosis

Pulmonary Hypertension-Right heart catherization

In: Living with sarcoidosis

chesswizard55

pulmonary-hypertension-right-heart-catherization

200139

  • 14 Replies

I just had a second echo which shows mild pulmonary hypertension and my pulmonologist referred me to see a PH specialist for a possible right heart catherization. My doctor said this was a one day in patient procedure. Is this a risky procedure? Is it painful? I see the specialist on October 13th. Thank you ... Read More

Stop Sarcoidosis

Traditional opioids probably unsuitable for chronic non-cancer pain

In: Living with sarcoidosis

JulesPrast

traditional-opioids-probably-unsuitable-for-chronic-non-cancer-pain

200139

  • 0 Replies

Traditional opioids for chronic non-cancer pain: untidy, unsatisfactory, and probably unsuitable http://www.evidentlycochrane.net/opioids -chronic-non-cancer-pain/ - Evidently Cochrane @CochraneUK ... Read More

Stop Sarcoidosis

Hello, everyone!

Radha_Inspire's journal

Radha_Inspire

hello-everyone-96

200139

  • 154 Replies

Hello everyone! My name is Radha and I am the digital editor at Inspire. We’d like to share some news about an editorial initiative that we hope will be of use to you. Your community is a space where you can express your thoughts, seek support, and share information with fellow members, and will, of course, continue to be. My goal is to take cues from your discussions, your questions ... Read More

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