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Stop Sarcoidosis

Foundation for Sarcoidosis Research support group and discussion community

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Stop Sarcoidosis

Hello, everyone!

Radha_Inspire's journal

Radha_Inspire

hello-everyone-96

200139

Hello everyone! My name is Radha and I am the digital editor at Inspire. We’d like to share some news about an editorial initiative that we hope will be of use to you. Your community is a space where you can express your thoughts, seek support, and share information with fellow members, and will, of course, continue to be. My goal is to take cues from your discussions, your questions ... Read More

Stop Sarcoidosis

Do We Need A Major Shake-up Around Here?

Mandymuff's journal

Mandymuff

do-we-need-a-major-shake-up-around-here

200139

Know what makes my heart sad? 1. It's when I see posts on here that have gone unanswered, for a day, a week, even more sometimes. 2. Some of our regulars, getting support from only one person. Awwwww......I don't know, maybe it is me that is off, but I have to wonder....when we ourselves are well acquainted with pain, suffering, disappointment, bewilderment, how can we not stop to ... Read More

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Stop Sarcoidosis

Feeling overwhelmed

Jemason's journal

Jemason

feeling-overwhelmed-12

200139

My husband has cardiac sarcoidosis and lately it is really bad. In May 2016 my husband got an emergency pacemaker for complete heart block. Soon after he received a definitive diagnosis after lung biopsy. Though initial pet showed granuloumas in a few organs most involvement was cardiac. Pet scan 3 months later (after starting prednisone) showed decreased involvement in other orphans ... Read More

Stop Sarcoidosis

Inspire's New Search Engine

ErikInspire's journal

ErikInspire

inspires-new-search-engine

200139

I’m very happy to share with you Inspire’s new search engine. We believe the recent improvements that we have made will make it much easier for you to find what you are looking for. The search box at the top of the page (the magnifying glass if you are on mobile) will allow you to search across All Communities by default, or narrow it down to a single community that you belong to ... Read More

Stop Sarcoidosis

Should I take prednisone while having pneumonia?

In: Treatment decisions

melibee

should-i-take-prednisone-while-having-pneumonia

200139

Hello, I was diagnosed with lung Sarc at the end of 2014. Through going back through my medical history, my pulmonologist found that I had it in my sinuses during a sinus surgery in 2004, but was never told. I seemed to have picked up a virus from my grandson on May 14 and it started with a scratchy throat and cough. That was on a Sunday. By Wednesday the cough became productive, but ... Read More

Stop Sarcoidosis

Could it Be?? God Is Only Interested In Our Big Problems?

Mandymuff's journal

Mandymuff

could-it-be-god-is-only-interested-in-our-big-problems

200139

Bringing you another comforting and assuring piece by Pastor Carnes. He always reaches in and touches us where we live! ........................................ ........................................ ........................................ ........................................ ........................................ .......... “God’s Interest in You” For several months my Sunday ... Read More

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Stop Sarcoidosis

05/23/2017 Wyoming Minute

RonLS' journal

RonLS

05-23-2017-wyoming-minute

200139

Cool Night and Melted Shoes, Bighorn Mountains, Lovell, Wyoming On crisp cool June evening while waiting for the stars to come out and play, I sat by the fire contently staring into the flickering flames of our camp fire. Time seems to stand still in those moments to contemplate life or to completely zone out and have not a thought enter or exit. But to be balanced between cool evening ... Read More

Stop Sarcoidosis

How do you make medical decisions?

Brian's journal

Brian

how-do-you-make-medical-decisions

200139

Dear members, As patients and caregivers, we have more sources of medical information available to us than ever before to help us make the best decisions possible for our health. Advice from our doctors is sometimes not the same as the information we learn from the experiences of our peers, and there are often other sources of information available as well. Some of our decisions feel ... Read More

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