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Stop CAID Now

Inspire's New Search Engine

ErikInspire's journal

ErikInspire

inspires-new-search-engine

200224

  • 44 Replies
  • Processing ...

I’m very happy to share with you Inspire’s new search engine. We believe the recent improvements that we have made will make it much easier for you to find what you are looking for. The search box at the top of the page (the magnifying glass if you are on mobile) will allow you to search across All Communities by default, or narrow it down to a single community that you belong to ... Read More

Stop CAID Now

What’s the story of your rare disease diagnosis?

Brian's journal

Brian

whats-the-story-of-your-rare-disease-diagnosis-1

200224

  • 346 Replies
  • Processing ...

Dear members, Today, more than 200,000 Inspire members have a rare condition. You have made Inspire a place to share your experiences with others who understand what you’re going through and help others at the same time. Many of you have described how long it took for you to receive an accurate diagnosis for your rare condition, while some of you found your diagnosis quickly. If you’d ... Read More

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How do you make medical decisions?

Brian's journal

Brian

how-do-you-make-medical-decisions

200224

  • 733 Replies
  • Processing ...

Dear members, As patients and caregivers, we have more sources of medical information available to us than ever before to help us make the best decisions possible for our health. Advice from our doctors is sometimes not the same as the information we learn from the experiences of our peers, and there are often other sources of information available as well. Some of our decisions feel ... Read More

Stop CAID Now

What’s in a number? The million member milestone

Brian's journal

Brian

whats-in-a-number-the-million-member-milestone

200224

Dear members, Last night, Inspire hit a milestone -- one million members. One thing that is clearer than ever is that the value of this community is created by you, every minute of every day. I often think that our job is to provide you a safe, supportive space, and then get out of your way. The words you write and the friendships you forge are things we could never create on our own ... Read More

Stop CAID Now

Hello, everyone!

Radha_Inspire's journal

Radha_Inspire

hello-everyone-97

200224

Hello everyone! My name is Radha and I am the digital editor at Inspire. We’d like to share some news about an editorial initiative that we hope will be of use to you. Your community is a space where you can express your thoughts, seek support, and share information with fellow members, and will, of course, continue to be. My goal is to take cues from your discussions, your questions ... Read More

Stop CAID Now

Patients are experts by experience

Radha_Inspire's journal

Radha_Inspire

patients-are-experts-by-experience

200224

Dear members, Inspire has just released a new online report, Experts by Experience 2017, a compilation of a year's worth of monthly columns written by patients and caregivers for the Stanford Medicine "Scope" blog. Inspire and Stanford Medicine have partnered on the patient-written columns for more than five years, and this is the fifth edition of "Experts." The phrase "experts by ... Read More

Stop CAID Now

Pokemon Go and the gamification of health

John2's journal

John2

pokemon-go-and-the-gamification-of-health

200224

  • 458 Replies
  • Processing ...

Dear members, Like many, we’ve been watching the phenomenon of the Pokemon Go app, and not only many of our employees and friends are actively catching Pokemon, but several Inspire members have recently shared their experiences about how this has positively impacted their health. The game, as I suspect many of you know, allows players to use their mobile devices to explore real-world ... Read More

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Reflecting on our community

Brian's journal

Brian

reflecting-on-our-community-1

200224

Dear members, I'm writing to share with you a recent story about Inspire. We were honored to be described in this manner and particularly grateful to members Renata Louwers and Mike Lawing for their insights. Please share the article as you see fit. Also, Inspire employees gathered at our Arlington, VA office last week for a company retreat. We were joined by five Inspire members who ... Read More

Stop CAID Now

New Feature - Inspire Reactions

ErikInspire's journal

ErikInspire

new-feature-inspire-reactions

200224

Earlier this year, we had a wonderful discussion with all of you about Facebook-style “Like” buttons on Inspire, and all of the positives and negatives that are associated with them. Through more than 200 replies we heard from many of you with widely differing opinions. The overwhelming consensus was that, while the idea of being able to give reactions to posts and comments could be ... Read More

Stop CAID Now

Inspire members are Experts by Experience

Brian's journal

Brian

inspire-members-are-experts-by-experience

200224

  • 139 Replies
  • Processing ...

Dear members, I’d like to share with you Experts by Experience 2016: A compilation of patients’ stories, which we created together with Stanford Medicine. As you explore these stories, please also read the foreward by Jimmy Lin, the founder and president of the Rare Genomics Institute. Jimmy’s words capture the power of patient-centric medicine and the promise the future holds for ... Read More

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