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anyone high grade STS with type other in abdoment/pelvis NED 2 yrs or more?


Trabectedin. Is Working

  • By EstesPark · New reply November 18, 2013
  • In Treatment · 12 replies
  • Dr. Myron called with Les' scan results. The Trabectedin is working!!!!! His tumor shrank from about 5" x 3.25" to 3.5" x 2.25." This is about a third -- and he has only had two treatments! We are going ...

Surgery in the morning

  • By Rhandrh · New reply November 17, 2013
  • In Emotional support · 21 replies
  • 5 cm mass on left kidney....Pathology is either Leiomyoma or angiomyolipoma.....I have enlarged renal hilar lymph nodes...which makes my surgeon suspicious....I am 47 and had zero symptoms...wonderful ...

so, it's been a while.

  • By Rag2010 · New reply November 15, 2013
  • In Living with a soft tissue sarcoma · 10 replies
  • So, it's been almost a year since my diagnosis of myoepithelial sarcoma in my right thigh. This month I've been in and out of doctors offices and hospitals. I've been so sick and lost around ten pounds ...

Spreading the word about Pecoma diagnosis

  • By Audee · New reply November 13, 2013
  • In Family and friends · 19 replies
  • How have you shared the news or did you keep things quiet about your diagnosis? I initially waited until I met with the oncologist to tell my parents and in-laws. I also shared the news with several people ...

Anyone using doxorubicin

  • By ajeber2020 · New reply November 12, 2013
  • In Treatment · 8 replies
  • Has anyone used doxorubicin ? Side effects ...

Nervous about surgery on Tuesday

  • By Jtv · New reply November 7, 2013
  • In Treatment · 17 replies
  • My husband 47yrs old is having surgery at Moffitt to remove a grapefruit size tumor that is at his upper thigh/groin area. It was up against the femoral artery but five weeks of radiation pulled it away ...

Votrient - kinda, sorta OK

  • By cabby92 · New reply November 6, 2013
  • In Treatment · 5 replies
  • I had another PET scan and CT scans yesterday, eight weeks after starting Votrient and nine weeks after the last scans. There was growth all the way around, but small enough to be considered stable. Especially ...

after treatment

  • By Freak73 · New reply October 31, 2013
  • In Newly diagnosed · 9 replies
  • Just found LMS in my uterus.... now they want to remove my ovaries and omentum... From what I have found their isnt any information that supports removal of the ovaries... why does my doctor recomment ...

Trabectedin out, Votrient back in

  • By researchingforbro · New reply October 29, 2013
  • In Treatment · 7 replies
  • Hi All, Chris got results from his scan on Saturday and the Trabectedin was doing nothing, in fact he has 2 new growths in the lung lining, they are very small. So, they will try him back on Votrient ...

When to quit

  • By Btorrens · New reply October 27, 2013
  • In Family and friends · 21 replies
  • My husband has stage 4 liposarcoma, and they are saying there is nothing more they can do. He is currently taking TPn for his nourishment and hydration. His local dr called and said theat he needed a ...

Low grade pelvic spindle cell tumor

  • By smd1954 · New reply October 25, 2013
  • In My diagnosis · 27 replies
  • I went into the ER in May 13 to verify a diagnosis of diverticulitis. After the CT scan, the ER doc said that there was a "softball" sized mass on the other side of my abdomen. That was a surprise because ...

Leiomyosarcmoa -- Hope is on the Horizon!

  • By DBCrofton · New reply October 25, 2013
  • In In the news · 4 replies
  • HOPE --ya can't see it, but you sure can feel it! Read on friends: Exciting news that will help leiomyosarcoma patients! Research from Stanford -- clinical trials soon! ...

TH-302 usage?

  • By ajeber2020 · Posted October 20, 2013
  • In Treatment · 0 replies
  • Has anyone used or know anyone that has used TH-302 ...

Soft tissue sarcoma in stomach area

  • By ajeber2020 · New reply October 20, 2013
  • In Newly diagnosed · 7 replies
  • My dad was just diagnosed with tumor in the location of kidney that he no longer had. It's to big for surgery we have been to university of michigan they said he might qualify for a case study on. Drug ...

Aldoxorubicin Clinical Trials

  • By EstesPark · New reply October 19, 2013
  • In Treatment · 3 replies
  • From a digest on sarcoma treatment - received today: What if it were possible to deliver a broad range of potent cancer drugs more optimally, enhancing both their safety and efficacy? That's the question ...

Pump On / Trabectedin In (Fingers Crossed)

  • By EstesPark · New reply October 19, 2013
  • In Treatment · 7 replies
  • Les got a 24-hour pump hooked up this morning for his first infusion of Trabectedin. Tomorrow, he has a brief visit just to take off the pump. He did not get Aridia (to lower calcium level) because it ...

Opinions on chemo wanted

  • By DebraLouise · New reply October 16, 2013
  • In Treatment · 2 replies
  • The doctor I went to for an additional opinion on treatment options for me has said that he wants to run some cardiac and lung function studies on me and also a PET scan, but if all goes OK with them ...

Anyone taking antidepressants finding it helps scar tissue pain?

  • By sarcogal49 · New reply October 15, 2013
  • In Symptoms · 3 replies
  • I see the sports medicine doc again next Friday for a steroid injection into my hip socket to try to figure out whether that or the scar tissue is causing my pain, he and i are leaning towards it being ...

It's back

Jones2292 (Inactive)
  • By Jones2292 (Inactive) · New reply October 14, 2013
  • In Symptoms · 23 replies
  • Damn! Today Hopkins told me my sarcoma has returned. I've been clean for about a year and was getting pretty cocky. Start new chemo next week or the following. Has anybody on the list been given the chemo ...

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