Journals

What I wrote him

SurroundingHope
  • By SurroundingHope · Posted March 28, 2014
  • 0 replies
  • The day I became yours you became mine. Forever we will be together, through hell and back again, we will figure out any challenge. I gave you my heart the night we met and the more we talked the more ...

What he wrote to me

SurroundingHope
  • By SurroundingHope · Posted March 22, 2014
  • 10 replies
  • Babe I love you and always will. I love the way you look at me with those beautiful eyes; the way they radiant just blows me away. You make me want to do the best in everything. The way I feel when I ...

This is me....

rubylane869
  • By rubylane869 · Posted March 20, 2014
  • 4 replies
  • I'm glad I found this site. Mostly I was just looking for some support for HES...which I MIGHT have. They haven't figured it out yet. I had gone to the ER in December with stomach pain & when they checked ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

Alone, but not alone.

frequentfaller
  • By frequentfaller · Posted March 14, 2014
  • 0 replies
  • Despite having Narcolepsy, I'm a morning person. I drive 3 hours north to Mayo Clinic, every three months to see the doctor who opened their new sleep center. With his advice, I've done a complete 360 ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · Posted March 14, 2014
  • 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Hi, my name is Billie

Billie_Jo
  • By Billie_Jo · Posted March 9, 2014
  • 8 replies
  • Hi there!!! It's been a truly crazy end to 2013, And beginning of 2014..... I've missed you all a Great Deal! I am still very busy. I will see if I can keep this short.... I believe I mentioned before ...

Enjoying Every Moment

SurroundingHope
  • By SurroundingHope · Posted March 8, 2014
  • 12 replies
  • Over the years I have survived. All forms of abuse from my family, cops that wouldnt help, school wouldnt help, and friends couldnt do anything. Abandonment, Abuse, Neglect, and so much more. When I turned ...

Introducing Photos for Inspire

Walter
  • By Walter · Posted February 11, 2014
  • 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

An Antidote for Hypersomnia

JanineE
  • By JanineE · Posted February 4, 2014
  • 1 reply
  • I recently found this study online. I have never heard of this treatment before... although the study is old news. I wonder if anyone else has heard of it? http://news.emory.edu/stories/2012/11/an tidote_for_hypersomnia/campus.html ...

Xyrem

SeanG12830
  • By SeanG12830 · Posted January 28, 2014
  • 3 replies
  • I just got off the phone with the Xyrem people and I should have my package in the morning. I am a little scared to take it because I had so much problems with ambient. I would cook and sleep walk, and ...

Misophonia sufferers, where are you?

BijouxBloat
  • By BijouxBloat · Posted January 12, 2014
  • 7 replies
  • After searching, it appears there is no "group" on Inspire that has been devoted to this HORRIBLE disorder. I guess it would fit under the "Mental Health" umbrella, even though it has actual physical ...

Mind Fog

BijouxBloat
  • By BijouxBloat · Posted December 30, 2013
  • 13 replies
  • Mind fog is a total bitch. I have had it for so long, I can't really remember when it started. I soldiered through every day, and worked myself to the point of near death. My symptoms increased exponentially ...

Middle Insomnia

mHinton
  • By mHinton · Posted December 15, 2013
  • 0 replies
  • I was doing very well for quite a while until something new came up. For almost a month now I've been suffering from "middle insomnia." I go to sleep very easily. I sleep from 4-6 hours quite well. But ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · Posted December 6, 2013
  • 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Thank You, From Inspire

Walter
  • By Walter · Posted November 26, 2013
  • 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

Any more straw, and this back is going to break

BijouxBloat
  • By BijouxBloat · Posted November 18, 2013
  • 6 replies
  • This week has been a gigantic cesspool of stress, pain and unplanned and unwelcome intrusions in an already difficult life. First - the IRS decides to crawl up my ass with a light bulb. I really should ...

Triggering - Rape, Trauma, Dissociation - The S word.

Jessheeran
  • By Jessheeran · Posted November 12, 2013
  • 5 replies
  • It’s hard for me to even begin to explain my feelings on this subject. Day after day, I’m subject to triggers and memories of things that haunt me, more than ever, now, that I’ve been attacked. Again ...

Update!

Jessheeran
  • By Jessheeran · Posted October 26, 2013
  • 5 replies
  • Hey there! It's been a while since I said anything at all. I hope everyone's okay, and things are doing well for you all. After Mathew and I broke up, I decided I'd give myself some time to heal before ...

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