Sickle cell Anemia and Stem Cell transplant

  • By lorenelady · New reply March 25, 2014
  • 18 replies
  • My son who is now 18 received a stem cell transplant when he was 17, he started the process when he was 16. It is a long process with much testing, seeking donors and getting approval from insurance ...

Sickle Anemia and Stem cell Transplant

  • By lorenelady · New reply March 16, 2014
  • 2 replies
  • I just found out something very interesting from my son's doctor. My son had a stem cell transplant and he no longer produces sickled cells so I thought he no longer had sickle cell anemia but I was incorrect ...

Tell the FDA what you think!

  • By kinuvian · New reply February 16, 2014
  • 3 replies
  • Hi all, The FDA has created a program to 'listen' to people with 16 different diseases thoughts about treatments for these diseases, and sickle cell disease was one of the ones they chose! Usually, you ...

Sickle Cell Nautral Healings

  • By nicole12345 · New reply December 25, 2013
  • 107 replies
  • Hello Everyone, I have a 3 year old son with Sickle Cell Disease, I have a 2 year old with SC, my husband also has SC and my 4 year old daughter has the trait. I have been doing a lot of research on natural ...

yellowish of the Eye

  • By bazeze · New reply November 18, 2013
  • 9 replies
  • Please any body know the precise tablet or capsule for whiteness of the eye ball ...

"Natural Selection????"

  • By kamerongroup · New reply November 17, 2013
  • 6 replies
  • "An old falsehood is much more acceptable than a new truth..." We've been sold a pack of lies by the doctors. Think on this. If sickle cell anemia is genetically coded, like the color of our eyes and ...

this might be of interest to some?

  • By mandolin · New reply November 8, 2013
  • 4 replies
  • d-events/2013/october-2013/newly-discove red-gene-regulator-could-precisely-targe t-sickle-cell-disease ...


  • By Revs · New reply July 24, 2013
  • 5 replies
  • Hello everyone, I was just reading some info on SCD, and I noticed a product called Dioscovite. It is a supplement that contains thiocynate which reducing sickling. I was just curious if anyone has taken ...


  • By wully · New reply May 7, 2013
  • 20 replies
  • Hi evr'yone has anyone use pnuemoccoci vacine for 'SS' bellow 5yrs?any other vacines nd for what infections? Doc adviced that 'SS' shld feed aleast 6x daily to replace red blood cell,gain weight nd mask'SS ...

Can anyone share their experience of having the gallbladder removed?

  • By motherofchildwss · New reply May 13, 2012
  • 2 replies
  • My daughter is now eight years old and they have found gallbladder stones. They want to remove the gallbladder of course. This will be her first surgery and although it's a fairly common procedure with ...

Treatment in NYC

  • By Raylene1974 · New reply May 18, 2011
  • 1 reply
  • I live in Queens, NY I was wondering what hospitals specialize in treating children with sickle cell disease ...

Nicosan a drug known to help sicklers in Nigeria.

  • By Ihatesicklecell · New reply May 27, 2010
  • 5 replies
  • Now I don't know how true the following letter I found on Facebook is, but if it is true then we should really do something about it. Dear NEXIM, Diamond Bank and Bank PHD, My name is Tosin Ola, and I ...

Pls read the following, it's good news!

  • By Ihatesicklecell · Posted May 11, 2010
  • 0 replies
  • Easing Bone Marrow Transplants - Hope on the horizon!Share Today at 9:31am Easing bone marrow transplants to widen their use By LAURAN NEERGAARD (AP) – May 10 WASHINGTON — Bone marrow transplants ...

Are There Any That Limit Transfusions

  • By Ivy12 · New reply April 23, 2010
  • 5 replies
  • Are there any of you out there that try to limit the amount of transfusions they get? Many times I will have the doctors give my sons fluids and pain medications and by doing so we have avoided an excess ...

New treatment Info

  • By Ihatesicklecell · New reply April 21, 2010
  • 3 replies
  • I just got this information from facebook under Sickle Cell Warrior's profile. I hadn't had an opportunity to full read it as I am in a rush. But I will later. Check the two sites. ...


  • By BriaC · Posted December 4, 2009
  • 0 replies
  • I'm moving to Orlando fl. I was wondering if there is anyone who lives there and have any recomendations for doctors, hospitals etc......... thank you in advance ...

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