Treatment options

Share information and resources regarding scleroderma treatments.


antibiotics in small intestinal bacterial overgrowth

  • By Sue_D · New reply January 27, 2013
  • 5 replies
  • I'd be curious to hear which antibiotics people here with SIBO take. Do you rotate them? How often do you take them? Has Xifaxan worked for you? How expensive is it for you? ($422.01/month is my copay ...

Scleroderma centers

  • By MaryEllen123 · New reply January 26, 2013
  • 8 replies
  • Does anyone know anything about the centers in NY-hospital for Special Surgery, Thomas Jefferson Hospital in Philadelphia or John's Hopkin's ( which would b the furtherest from my home ...

treatment from Germany for scleroderma

  • By Kalipso · New reply January 26, 2013
  • 8 replies
  • Hello Everybody, Has anybody heard of or had the treatment provided by the hospital of Prof. Dr. med. Alexander Herzog near Frankfurt, Germany? They perform further diagnostics to find out the reason ...

Alternative Therapys

  • By Abycat · Posted January 25, 2013
  • 0 replies
  • Has anyone had Chelation therapy for autoimmune diseases? My Naturopathic Dr. has suggested I get IV Calcium EDTA Chelation Therapy and that would help me w/my problems--RA,Scleroderma,Fibromyalgia and ...

Scleroderma as a Hyperviscosity Syndrome: Implications for Treatment and Re

  • By Choclit · New reply January 24, 2013
  • 39 replies
  • (This will be a fairly long post. In order to make it more readable I will not put specific research citations in the body of this post but can supply citations and in many cases copies of relevant articles ...


  • By natureplus · Posted January 22, 2013
  • 0 replies
  • Arthritis can be reversible and in some cases, curable with proper DIET and LIFESTYLE changes. this simple changes cannot only relieve the inflammation and pain but stop degeneration and rejuvenate the ...


  • By kitty5313 · New reply January 22, 2013
  • 6 replies
  • Help!! My rheumatologist is leaving Charlotte, NC! Does anyone know of a doctor with experience treating scleroderma in this area? Any advice ...


  • By swaud · New reply January 19, 2013
  • 16 replies
  • I saw my rhuematologist yeasterday mainly to see if I could try something or anything for Raynauds. I 've tried nifedipine without any results other than being lightheaded and dizzy. He is hesitant about ...

Fluoride toothpaste has been linked with scleroderma

  • By Kiku78 · New reply January 16, 2013
  • 21 replies
  • At the moment I'm reading a book called "Detox your world" by Shazzie and there is an interesting point about fluoride: "Fluoride interferes with collagen formation and results in the body's inability ...

lung transplant for pulmonary fibrosis

  • By mchobisa · New reply January 14, 2013
  • 11 replies
  • i have pulmonary fibrosis and want to discuss about the lung transplant option as a treatment . everyone is welcome with all the information to tell the pros and cons of the procedure ...


  • By prog3 · Posted January 13, 2013
  • 0 replies
  • Can anyone help? I'm looking for someone that offers the antibiotic protocal in Dallas / FT. Worth area ...

Surgeons in Sacramento?

  • By Landilee · Posted January 12, 2013
  • 0 replies
  • I had surgery on my right elbow 2 years ago. I had to change health plans and am looking for a recommendation for a surgeon to remove my calcium deposits as they are painful and pressing on a nerve. Anyone ...


  • By prog3 · Posted January 10, 2013
  • 0 replies
  • Just visited rhummy and during the discussion was mentioned a drug called Velcade that's used for a couple of cancers but has promise with Scleroderma. I don't have PF but was alert to what was being ...

rheumy recommendations for the dfw area

  • By rumblytoaster49 · New reply January 8, 2013
  • 4 replies
  • I'm currently transitioning from one location to another and am looking for a new rheumatologist in my area. I have a Dr I go see in Houston every six months but need someone here in the Dallas/Fort Worth ...

Scleroderma and Vitamin D

  • By rcbaker200 · New reply January 7, 2013
  • 22 replies
  • http://robertbakermdhealthnewsletter.blo l-remission-of.html I saw again the patient I wrote this about recently, she continues to do terrifically and her creatinine ...

Newly Developed Acid Reflux

  • By Bassoonbear · New reply January 3, 2013
  • 2 replies
  • When diagnosed 2-3 yrs ago with scleroderma and interstitial lung disease I had NO acid reflux or GERD at all. Had some for short time on Cytoxan (1st medicine) but it resolved spontaneously. Now has ...

zinc supplements

  • By Happy123 · Posted December 31, 2012
  • 0 replies
  • Hello everyone, Has anyone tried zinc supplements? If so how much and what kind? I came a across an abstract from Dr.Wigley dated 2000. He was testing zinc supplementation ...

Worse with Cellcept - Temporary?

  • By topazst · New reply December 25, 2012
  • 14 replies
  • I recently began treatment with Cellcept (2000mg per day). I developed an allergy to Plaquenil, so I had to discontinue it. My muscle pain and stiffness is considerably worse than prior to beginning the ...

PPIs are addicting!

  • By Choclit · New reply December 24, 2012
  • 38 replies
  • Many of us need proton pump inhibitors to treat reflux (heartburn), but people should be aware that if you start taking PPIs, it is very difficult to get off them. Basically, PPIs are self-addicting ...

To see a doctor or not to see a doctor, that is the question.

  • By NatureGoddess · New reply December 20, 2012
  • 19 replies
  • I am 20 years old, I was diagnosed at 17 with scleroderma, only to be put on Plaquenil. Which I then found out that I was part of the 2% who are allergic to it, then was switched to methotrexate. Made ...

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