Systemic scleroderma

Information and support for those diagnosed with systemic scleroderma (systemic sclerosis).

Discussions

Can all make a list

Jinleejin
  • By Jinleejin · New reply March 3, 2014
  • 10 replies
  • Can all make list 1)Date of diagnose 2)limit or diffuse 3)antibodies Thank u Jin ...

Cymbalta

BankGirl12
  • By BankGirl12 · New reply March 3, 2014
  • 13 replies
  • My neurologist just started me on 30 mg of Cymbalta a day. I am having lots of trouble sleeping. The first two days I took the capsule at night. I woke up at 2:30 AM. The next two pills I took in the ...

Draft Scleroderma FAQ - Available by Request

Choclit
  • By Choclit · New reply March 3, 2014
  • 31 replies
  • I have had a number of requests recently to see the forthcoming complete rewrite of my Scleroderma FAQ. I spent the entire month of November doing the literature research behind this update and was originally ...

Fracture Risk High in Systemic Sclerosis

watergrl
  • By watergrl · New reply March 3, 2014
  • 3 replies
  • http://www.medpagetoday.com/Rheumatology /GeneralRheumatology/44389 Study done it Taiwan. I don't think this is a surprise, but maybe not everyone has thought about the higher risk of fracture ...

Would like to share with you

Jinleejin
  • By Jinleejin · Posted March 2, 2014
  • 0 replies
  • I wish to share with you that I have begun to take 500 mg of turmeric and I drink beet juice. I have seen major improvement in all joint pains and muscular pains. I hope it may help you too! Thank u Jin ...

stabbing pain and scalp tingling

isabelarizona
  • By isabelarizona · New reply March 2, 2014
  • 3 replies
  • Hi there. I Have another question trying to figure all this scleroderma stuff out. Does anyone get stabbing pains in their head that come and go along with a tingling sensation that runs across the scalp ...

kidney stones

kathyboz
  • By kathyboz · New reply March 2, 2014
  • 5 replies
  • I have a question about kidney stones. I never had them before but this is my second one in a few years. Is there a direct correlation between kidney stones and systemic scleroderma? Kathy ...

Michigan-- Scleroderma?

ccjo106
  • By ccjo106 · New reply March 2, 2014
  • 16 replies
  • Are there any patients near Taylor, Michigan 48180 ...

Let’s Talk About “Sine” Scleroderma

Choclit
  • By Choclit · New reply March 2, 2014
  • 3 replies
  • Those of you who have reviewed the draft versions of my forthcoming updated Scleroderma FAQ may have noticed that there is no mention of “sine” scleroderma in it. There is also no mention of “sine” scleroderma ...

ideas for wedding ring for SSc?

joyu
  • By joyu · New reply March 2, 2014
  • 8 replies
  • Hi, Due to a large knuckle ulcer on ring finger, I have had a tough time wearing a wedding ring. I have tried very large rings and stretch rings and debated about a clamp ring but not sure about the dexterity ...

MTCD/scleroderma overlap Anyone else with this?

MsMoon
  • By MsMoon · New reply March 1, 2014
  • 12 replies
  • I was diagnosed with limited scleroderma in June of last year, but the rheumatologist put MCTD as the diagnosis in my records. I saw a scleroderma specialist at Duke University on October 30 who listed ...

New drug passes Trial I

Trapier
  • By Trapier · New reply March 1, 2014
  • 1 reply
  • http://www.medpagetoday.com/Rheumatology /GeneralRheumatology/44525 ...

Acute pancreatitis

kathyboz
  • By kathyboz · New reply March 1, 2014
  • 3 replies
  • Has anybody had issues with their pancreas? I have systemic scleroderma. Most of my issues have involved the GI tract. But this is a new one for me. I was just inpatient at the hospital for 4 days with ...

Scleroderma FAQ- Rewritten Diagnosis Section

Choclit
  • By Choclit · New reply March 1, 2014
  • 10 replies
  • I just completed the initial draft of a complete rewrite and expansion of the Differential Diagnosis section of the forthcoming Scleroderma FAQ. It now includes a discussion of the new 2013 ACR/EULAR ...

Nevada Chapter

MichR
  • By MichR · New reply February 28, 2014
  • 4 replies
  • Hi, the Nevada chapter is doing a membership drive. Please get your dues up to date and help support the Scleroderma Foundation. The Nevada chapter is working hard to have great support group meetings ...

Rituximab

funattic
  • By funattic · New reply February 28, 2014
  • 5 replies
  • Hi I was wondering if any one can tell me if Gerd is a part of Systemic Sclero and also what meds seem to work the best. I'm on Rituximab IV infusions now but It is already working less and less. I've ...

Cuticle care

Kbstack
  • By Kbstack · New reply February 28, 2014
  • 17 replies
  • So my daughter, who has systemic scleroderma, has pretty bad raynauds. Of course the winter in New England isn't helping. Well her nails are a mess. The cuticles are hard and are overgrown. I have no ...

New to group

wondermom1999
  • By wondermom1999 · New reply February 27, 2014
  • 11 replies
  • My name is tonya. I am 32. I have 5 daughters. I have systemic limited scleroderma. After my third daughter was born in 2002 I immediately started to have some strange symptoms. It started with the frequent ...

Support group Columbus GA

Mjjoy
  • By Mjjoy · Posted February 27, 2014
  • 0 replies
  • Does anybody know of a support group in the Columbus GA area ...

Trying to Figure Things Out

AnnieMA
  • By AnnieMA · New reply February 27, 2014
  • 11 replies
  • I've had my 5th blood test with ANA nucleolar of 1:320 or 1:640, and my newest also showed ANA speckled at 1:160. I have Raynaud's, heartburn with some small esophageal and stomach ulcers, and joint pain ...

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