Localized scleroderma

Information and support for those diagnosed with localized scleroderma.

Discussions

strange feelings in throat

jessdelucio
  • By jessdelucio · New reply October 3, 2012
  • 17 replies
  • I always feel like somethings in the back of my throat I also have to concentrate when swallowing. Anyone else feel this way? If so what helps? I was diagnosed with morphea 14 years ago should I be concerned ...

Mayo Clinic MN or Mayo Scottsdale??

Lm12345
  • By Lm12345 · New reply September 26, 2012
  • 1 reply
  • My Derm is referring me to the Mayo Clinic for treatment of my Linear Morphea. Does anyone know if Mayo MN bs Mayo Scottsdale is better for Morphea specifically or have experience with either place? Thanks ...

Gluten free or Vegan??

Lm12345
  • By Lm12345 · New reply September 26, 2012
  • 27 replies
  • I've been reading about anti inflammatory diets and auto immune disease. (I have linear morphea) Has anyone seen a nutritionist or had any other doctor recommended a gluten free diet or Vegan diet specifically ...

doctor

jessdelucio
  • By jessdelucio · New reply September 25, 2012
  • 5 replies
  • In search of a specialist near indiana. Am willing to drive to find good treatment. Thanks ...

Just looking for an answer!!

jessdelucio
  • By jessdelucio · New reply September 24, 2012
  • 5 replies
  • I was diagnosed with Morphea at age 8, am now 22. The doctor has never tested my vitamin d levels, ANA levels, nothing. I have never been encouraged to change my diet. The doctors in my area are not too ...

Scleroderma, Morphea, & Joint Pain

lmg22
  • By lmg22 · New reply September 23, 2012
  • 11 replies
  • Hello, I am new to this group. About 8 months ago, I was diagnosed with morphea after a punch biopsy from my dermatologist. I had never heard of this before, but she explained it briefly, that it was ...

Scleroderma

CARLOTTAMATILDA
  • By CARLOTTAMATILDA · New reply September 23, 2012
  • 10 replies
  • Dear To Whom It May Concerned, I had to retire as a registered nurse after working 34 years. I developed a patch of dry skin on my upper back; initially I thought it was a contact dermatitis from putting ...

New to this site.

AlwaysItching
  • By AlwaysItching · New reply September 22, 2012
  • 6 replies
  • I googled what causes scleroderma and found this website. I don't know anyone personally except me and I kind of freaked out when I found out I had this. I itch all the time. I take meds that help the ...

my picture

hnsw723
  • By hnsw723 · New reply September 19, 2012
  • 6 replies
  • Since I have never met anyone else who has morphea, how does my, what I call my scar, look compared to everyone else's. That's just one 'scar' my elbow looks the same ...

Help make sense of tests?

lmg22
  • By lmg22 · New reply September 19, 2012
  • 6 replies
  • I was wondering if anyone could help me make sense of the blood tests ordered by my rheumatologist. All he really told me is that it was negative for lupus and RA. Antinuclear ANA: Positive 1:40 homogeneous ...

Treatment for Morphea/Scleroderma

Sejky76
  • By Sejky76 · New reply September 15, 2012
  • 20 replies
  • What kind of treats are available for individuals with this disease? What did Occupational Therapist do to help you ...

out of remission?

hnsw723
  • By hnsw723 · New reply September 13, 2012
  • 9 replies
  • I was diagnosed in 1997 with linear morphia. I haven't seen a Dr since 2004 cuz I haven't had any problems with it. 2 years ago I had my son and after going back to work I had these 'flare ups' I guess ...

I have Morphea and seeking info for school

Sejky76
  • By Sejky76 · New reply September 12, 2012
  • 7 replies
  • I was diagnosed w/Morphea not so long ago. I'm going to Occupational School and my professor wants me to do a PowerPoint for class this Monday. I need help w/finding correct info., correct pictures and ...

Can Morphea become systemic?

jb75
  • By jb75 · New reply September 11, 2012
  • 43 replies
  • I was diagnosed with Morphea 3 years ago. I have a large patch covering the right side of my neck and partially on my adams apple. Since my diagnosis I have developed esophigial mobilty dysfunction and ...

Localized scleroderma?

veefmxo
  • By veefmxo · New reply September 4, 2012
  • 11 replies
  • Im 14 years old, i was diagnosed with some type of skin scleroderma almost 2 years ago i think? im not sure if its localized scleroderma, so PLEEEASE CORRECT ME IF IM WRONG :) My doctor and family started ...

vascular pump!

carla65
  • By carla65 · New reply September 2, 2012
  • 1 reply
  • I was diagnosed in 2005. I was given a vascular pump from mayo clinic rochester. It helps force the blood to my fingertips. In 2011 I had an mri . It showed avascular neucrosis of the lunate bone.dying ...

Sun exposure makes it worse (?)

banana_fish
  • By banana_fish · New reply August 30, 2012
  • 9 replies
  • Hi everyone, I'm a 20 year old female and was diagnosed with morphea (localized scleroderma) about 6 years ago. I have discolored spots on the backs of my legs, my hips, my chest/stomach, and the insides ...

Morphea and joint pain?

Lm12345
  • By Lm12345 · New reply August 26, 2012
  • 2 replies
  • Hi I was diagnosed with linear morphea by my derm laat week (down one leg although it starts on my sacrum) About a year ago I noticed red marks in the same Area (looked like pressure bruising) they have ...

Best Schleroderma/Linear Morphea Specialist?

Lm12345
  • By Lm12345 · New reply August 26, 2012
  • 5 replies
  • I've recently been diagnosed by my dermatologist with linear Morphea down one leg (I have a spot on my tail bone also). She admitted to not being familiar with this and even got her med school book out ...

daughter sick blood test not showing anything

poobird
  • By poobird · New reply August 23, 2012
  • 4 replies
  • Lex is in the hospital theyhave done numerous of test to see if its viral or bactiral.still waiting on a couple test. they cant think of any other test her symptons is fevers and headaches, wbc 1.7 and ...

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